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Edema with Fm and MPS

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Fibromyalgia
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Posted 5/14/2011 4:37 PM (GMT 0)
rolleyes we get a news letter from the med center not too far from us every 2 months or so has some interesting articles. This latest one says that people with FM and CMP can experience edema in the legs, feet and hands. I never heard of this so checked my books by Devin, she says nothing about this. I did do  a internet search and found several sites that say we can get edema. Anyone have this problem or read info about this.

 

I noticed during the winter months when I wear socks I have a deep indenture where the sock ends on my legs and in the crease of  my ankle. not sure that this would be edema as my G/P always checks your ankles for swelling.

 

Linda  

Posted 5/14/2011 4:44 PM (GMT 0)
Linda, if I sit too long, my ankles and feet will get a little puffy.  It's no big deal to me because once I'm up and walking around, it goes back down.  It's not noticable either.  I've seen some people with their ankles hanging over their shoes but they don't have fibro!  But for me, it's just a little puffiness. 

 

Sherrine

Posted 5/14/2011 9:09 PM (GMT 0)
Even tho I haven't be dx with fibro that is one reason I started going to the Dr.
My knees and ankles would swell but no pain. It happens when I am walking a lot. Still don't know why.
Posted 5/14/2011 10:36 PM (GMT 0)
I get so much swelling in my feet and hands.Actually all over.I see this rhumy once..he walked in and took 1 look and said "youre all swlled up! were gunna give you a couple shots of methatrexate(prednosone) and I want you to come seeme in a month!"I guess he thought I had lupus cause I was so swollen.pain doc said swellibng is not fibro and she took me off my gabapentin.thyroid doc said looks like lupus...but my reg. rhumy says nope..not lupus.tests positive but no lupus.then she put me on plaquenil.weird doctors.
Posted 5/15/2011 12:43 AM (GMT 0)
I have swelling in my hands and legs, it kind of funny you mention this. I was in the Dr. yesterday and he said why are yours hands have so much fluid on them? I din't know and he didn't know why. Maybe it's caused by the FM. It seems everthing gets blamed on FM. lol
Posted 5/15/2011 1:45 AM (GMT 0)
My doctor says that swelling is a part of fibro. I find that tylenol and NSAIDS like Ibuprophen cause me to have swollen ankles and feet also.

When I swim the selling decreases. I am trying to not take the ANSAIDS and Tylenol.


Oh, I wear support socks to help reduce the edema.

Donnaeil
Posted 5/15/2011 3:04 AM (GMT 0)
sometimes I feel swollen all over.My stomach,feet and sometimes my head and sinuses and ears.I wear support socks in winter but am searching for something I can wear in summer since the heat brings on alot of these feelings.I was looking up "feet swelling and numbness in heat" and I came up with vasodialation,that's pooling of blood due to enlargement of the veins or something on that order I can't remeber it word per word and I feel so dumb cause I know what I want to say I just can't remeber exactly,anyways I am gonna ask my rheumatologist about it,she may tell me she can't do anything about it to see a vascular doctor but I'm hoping she does know something about it because I notice a difference from a hot shower or walking to long especially when its warm plus my skin gets light red.
Posted 5/15/2011 9:34 AM (GMT 0)
I have just recently begin to have the light red skin and just one leg mid calf down to foot which then swells slightly.Only after sleeping under my electric blanket which is so helpful with the fibro. Thanks for the name to Google, Nana68.

My Mom had a poor functioning vascular system and in fact terrible varicose veins. She was told when I was small that her vascular system was wearing out but she lived another 50 years. I wonder if anything like that is hereditary? The pink tinged skin was scaring me because it isn't painful and in fact the lower leg is cold as ice. I also get this same thing when I take a shower and only on the one leg.

I always can find such good information here and everyone is so candid and helpful.
Posted 5/17/2011 5:24 AM (GMT 0)
yes, I get that too. When walking a lot, my feet swell up to be huge. Don't know if it is fibro or not
Posted 5/17/2011 6:23 AM (GMT 0)
Hi Linda~

My suggestion would be that there is no definitive answer, but the circumstantial evidence seems to be in agreement with what you, and many of us, are experiencing. Why no authoritative answer? Because the cause and reason behind fibro are still mostly unknown so it's hard to attribute adjunct symptoms to a disorder that is so evasive.

And, like others here, I have been getting some ankle and lower leg swelling for the first time this winter. Our stories seem so similar and I'm inclined to go with what those who are suffering are experiencing. Another thing that researchers and doctors are telling us is that fibro isn't progressive. Oh ya??? rolleyes When that question comes up here it's rare when someone says theirs has gotten better over time. I have no idea where doctors information comes from but those of us with fibro are living day to day with increasing pain and/or new symptoms showing up. And along with that our lower legs and ankles look like over inflated soccer balls about to rupture!

I guess that's one reason I love this forum so much. We share and learn from each other. Sure, I listen to my doc and he's wonderful but he also doesn't have fibro. Enough said~ What was the question again???... smilewinkgrin

Chutz
Posted 5/17/2011 7:26 PM (GMT 0)
Hi Linda

The swelling in my hands, feet and legs was one of my first symptoms (along with Plantar Fasciitis). I was experiencing it on and off (both in the heat and in the winter)... sometimes so badly that I couldn't wear my wedding rings (my fingers looked like fat little sausages), and had to take off my running shoes (already losely tied) at work and walk around in my sticking feet. A real pain... and walking felt like I was walking on 2 round hams... not a great look for anyone! I've found drinking some extra water helps, as does elevating your legs when your sitting. Watch your salt intake when you feel swollen, and even adding a little lemon to your water should help as well, at least it does for me.

Good luck and gentle hugs.
Kristin
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