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Posted 5/30/2011 3:46 PM (GMT 0)
I find myself asking this question on a regular basis, "What is this from? What did I do to get this? Did I catch something? Is this a precursor to cancer (which one parent is suffering from)? Is this environmental related?" etc.  After reading more and more posts on this board, I find myself getting even more frustrated as so many of you are so very sick.  I worry that I'm at the beginning stages of this and things are only bound to get worse and since I am relatively young, and have a small child, this is very alarming.

Unfortunately I don't have the time to read research studies like I would like to and to really study what doctors may think is causing this.  I have heard various theories but just wanted to see if any of you are in support groups, or have been studying what might be to blame for what we are all collectively suffering from?  I'm also curious how much money is being spent on research and if there is something we can do to lobby for more money to be spent on it...

Thanks.

Posted 5/30/2011 4:43 PM (GMT 0)
I wish I had the answers for you...and so do the doctors!  That's the problem.  They don't know what is causing fibro...at least not yet.  They are working on it and the latest research is pointing to a neurological problem where we perceive pain differently than others.  If you go into Fibro 101 and read the link called Doctors Respond to New York Times Article, you will see more of what research is going on, too.  They really are working on this.

 

Fibromyalgia has been around for centuries.  It's been called many things.  When I was diagnosed, it was called fibrositis because they thought it was the inflammation of the muscles but now they say there is no inflammation.  I'm not sure about that one because ibuprofen helps me a lot.  It's also been called rheumatism and hysteria back in the 1800's.  Here is a link showing some history of fibromyalgia...starting back in the bible! 

 

http://www.healthcentral.com/chronic-pain/fibromyalgia-287647-5.html

 

 

Don't despair!  I've had fibro for 24 years and have had a full and enjoyable life in spite of this illness.  I found what helps me CONTROL the pain and I've learned how to work around the illness to do what I want to do.  I do keep moving, too.  As I've aged, I find that if I sit too long, I get in trouble!  I'm 64 right now and do a lot of things others my age do not do.  I don't want to sit now and regret it later so I keep on keeping on.  Yes, I tire easily and I do have to pace myself.  But, I'm so proud of myself when I do certain things.  This past spring I spread 99 bags of mulch in my gardens!  Yep, I couldn't believe I could do it either.  I did it over a period of days...I think about a week and a half...but I did it!  I'm a widow and take care of a large home, lanai, and gardens plus I walk daily.  I also find that I'm more flexible after doing a large task, too.  Yes, I have pain but I'll have pain no matter what I do so I have decided to keep living and enjoying my life. 

 

I've also traveled a lot.  I've stood on glaciers in Canada, snorkled in the Caribbean, walked the streets of Italy, Germany, and Austria, and have even been parasailing....since I was diagnosed with fibromyalgia!  Keep living your life and don't let fibro steal from you.  You will have to do things differently and in a different time frame, but it can be done.  Keep a positive attitude and look at your many blessings.  Honestly, this really helps me a bunch! 

 

So, keep a smile on your face and really enjoy your child and family.  These really are good times for you.

Sherrine 

 

Posted 5/30/2011 4:53 PM (GMT 0)
Sherrine, you never cease to amaze me! What great support you offer, and what a wonderful role model.

Andrea, I know how you feel...it scares me, too. I have found myself thinking I have als at times (my father died from it) - why is my foot dropping, why am I losing weight - ugh! But then I take a deep breath and keep going, and it appears that's not the case. What's that poem, "Desiderata"? ..."many fears are born of fatigue and loneliness..." and I would add, "and PAIN!"

It really does seem like our powers of perception are skewed. Noises, lights, touch, you name it, it's off. I hope they do figure it all out soon, what a great day that will be.

Debbie
Posted 5/30/2011 6:48 PM (GMT 0)
Hi there,

I loved Sherrine's post.  It is so very encouraging.  I have to reinforce it about the exercise part.  And making good memories with your little one.  You can still enjoy your life.  Try not to project what might happen in the future.  Because some people don't have a lot of pain and you could be one of them.  I have my pain under control too.  It can be done.  But I have a high tolerance to pain, I always have.  So that helps.

Debbie,

I am glad that you mentioned Desiderata.  Here is a link to it so that others can read it.  I love it and live by it.

http://www.freewebs.com/crys/

I hope that you all read it.  I love it, I am sure that you will too.

Hugs, Karen

Posted 5/30/2011 7:08 PM (GMT 0)
Hey everyone,

     I am on disability, mydaughter is a teen and hubby retired/disabled, so I have plenty of time for research and have always been a rabid reader and believe knowledge IS power.

     Her are  a few theories I've found floating out there, and each has some validity to it.

!. My first pain management doc truly believed that it all stemmed from inflammation, of nerves of muscles of discs, all depending on where and when you hurt. Alas, after too many steroid shots, I ended up in roid rage and ended up in the psych ward, but, boy, I felt great_LOL!!! He was a very compassionate doc who ended up taking his own pain pills and has lost his career, facing charges from DEA.  BUT, inflammation is still intriguing. It shows up in almost all AI disorders, CFS, EBV Lyme, connective tissue disorders, polymyositis, complex regional pain syndrome etc. Inflammation wreaks havoc on central nervous system, our 5 senses, of course movement, exercise, thus triggering all sorts of depression, anxiety, guilt, more pain etc. I call it the Hamster Wheel Theory.

2. My second theory is, at least with me, my 2 worst symptoms have been EXTREME fatigue and some pretty darn bad pain days. Some researchers have zeroed in on sleep disturbances of fibro patients. Apparently alot of us to not get enough deep-wave sleep. This is the stage at which growth hormones are released to repair the daily damage done to our muscles (pain) and it is the stage where serotonin is replenished (our feel good chemical ). Most of us take anti depressants which are ssris or snris, both of which attempt to boost serotonin levels. I have seen research on a sleep drug (xyrem-don't know if I can put that in) which shows promising results for fibro patients. BUT, it is schedule II, anywhere from 600-1100 per bottle, and is dispensed from 1 centralized pharmacy. Potent stuff. The other promising drug is flupirtine, which has been used in Europe for 10-15 years but is not in US. Someone correct me if I'm off-have not found too much on this one but small double-blind studies looked really good.

Finally, ultimately I have no idea where it comes from or why. My reasoning mind seeks a finite definite answer. Yet, great minds cannot even tell us what causes rheumatoid arthritis or lupus, we are all thrown into one boat - I cannot help thinking that all these come from autoimmune systems gone awry for whatever reason and our bodies are attacking themselves.

Boy, what a windbag!!!LOL!!! Thanks for letting me get on my soapbox. 

Maggie/bayoub 

Posted 5/30/2011 7:56 PM (GMT 0)
I think that it is caused by a bunch of things,when your body and mind has had enough from viruses and stress,poor diet or whatever (there are alot of things)and it just short circuits.I am not saying this out of research just personal opinion
Posted 5/30/2011 8:00 PM (GMT 0)
I think mine was caused by a combination of things. My first husband had died (trauma), I was trying to run a business (stress) and then I got a bad virus, flu like. But my two front bottom teeth fell out for some reason. I don't know if it was the virus, or stress or what. There was nothing wrong with them as far as the dentist could see. Strange. But it was like that flu never went away. And that was about 2002. Maybe 2001. I think it was in 2002 that the pain and fatigue set in. Blood pressures went up because of pain. It was a downhill ride for a long time. But things are better now. I am on some medications and supplements that help. I have worked some, which I am proud of. And I walk daily in the summer. Winter not so much, but I do try. I think that the more I walk the stronger I get. I build muscle rather easily, which raises my weight, but at least it is muscle. Not that I don't have fat, I do, but I have been losing weight so that is good.

Wishing you all a wonderful day.

Hugs, Karen
Posted 5/30/2011 9:47 PM (GMT 0)
I agree with Maggie about the inflammation.  I don't understand why ibuprofen works well for me if I didn't have inflammation.  Also, ibuprofen is usually the first line of attack that doctors start with, with this illness.  I was put on it 24 years ago and haven't looked back.  I do have some really bad days and I haven't been pain-free ever (unless I was hospitalized and put on morphine) but overall I'm in control.  I'm starting to think I know why I have more control of the pain. 

 

I do not take antidepressants, narcotics, sleeping aids, anxiety meds, Lyrica, Savella, etc.  This was my choice.  My doctor has tried to get me to take these things but I felt I was managing with what I was taking and I know pain goes with the territory of fibro.  I was able to live my life without them but I do keep moving.  I never used to read side effects of things because I was afraid it would cause an anxiety attack.  I did suffer from anxiety attacks years ago and was on Valium for one year.  I got off the Valium when my mother came for a visit and said my personality was changing!  Anyway, since becoming a mod here on HealingWell, I've done a lot of searches for members and I can't believe what I'm reading!  A lot of what is given for fibro can cause pain, muscle spasms, palpitations, etc!  These are the things we are trying to get rid of!  That's why, lately, I've been suggesting members to google their meds and read the side effects.  It's been an eye-opener for me.  All medications have side effects though but if you seem to be getting worse be sure to talk to your doctor about what is going on.  Not everything is caused by fibro

 

I'm on disability, too, and do have time to research things and I do that all of the time.  I always see on site after site after site that we should exercise and I do hope all of you are doing that...gentle exercises like walking, swimming and yoga.  Cleaning is an exercise, along with gardening and other things in daily life.  I do all these as additional exercises to my walking.  I walk even when it kills me.  I take along my collapsible cane some days because my hips and knees hurt.  But when I get home, I'm a lot better!  Today when I walked, my legs ached and felt like rubber, my hips hurt, and of course my back, neck, and shoulders are always screaming at me.  But I went anyhow and, by the time I got back, I felt much better!  Still in pain but much better! 

 

I sure hope they find answers soon.  This isn't a fun way to live your life but yet I can think of a lot worse things.  This makes me thankful that I have fibro!  I know that sounds crazy but my health issues started when I was 2 1/2 years old with Crohn's disease.  I have had to learn to deal with things early on and that might be another thing that has helped me with fibro. 

 

I hope you all start to get in control of your pain, too, and start really enjoying life.  There will be good days and bad days but the good days make it all worthwhile.

Sherrine    

Posted 5/30/2011 10:25 PM (GMT 0)
I agree Sherrine. I was up to 20 meds at one point and I said "This is insane". I am down to 2 meds for blood pressure and welbutrin, muti vit with D and calcium, pain meds for worst days (I am not going thru withdrawal from opiates again ever). We are so broke we can't pay attention! But every am I pick up a 2lb can and do arm curls and over the head lift and get in the old cuzzi and stretch and kick. And it hurts!! But it helps muscle atrophy.....the less you do the more it hurts to do anything.

Hey I went to see a neuro/sleep specialist, he spent an hour with me really listening, and after being dxed with fibro in 2004, he tells me he is not so sure it is fibro, .! WHAT???? He ordered some unususal labs including CPK, aldolase and creatine which test muscle tissue damage from some kind of myopathy. Has anybody else gone thru this? I am grateful to him, but I'm really angry thinking we have been "treating" the wrong thing. Myopathies are guess what----Inflammation!!! And usually treatable. I can't wait to get results.

Anyway, even if you walk to the mailbox do it....I guess I just got tired of playing the victim and decided God does truly help thos ewho help themselves You go girls!

maggie
Posted 5/30/2011 10:38 PM (GMT 0)
Hi, I've also read alot concerning fibro. This is what I've learned...

Fibromites process pain differntly from other people...the difference is in the way the the brain and spinal cord process and transmit pain. Our "volume control" is turned up on pain and that makes us hypersensitive. We have lower levels of the brain chemicals called neurotransmitters...they reduce pain transmission. Norephinephrine and serotonin are two of the chemicals...these are in the Savella I take for fibro.

Fibro is absolutely real but the pain we feel is not due to damage or inflammation in the muscles or joints...it feels that way because it is our perception due to another neuro transmitter that increases pain. Glutamate is that chemical and fibromites have a higher levels.

No matter what causes fibro there is no cure yet. It is up to us to do what we can do to help ourselves. One day at a time works for me along with plenty of exercise, relaxation therapy, heat and my meds.... Savella, cyclobenzaprine for flares...and lots of prayer.

Hoping great days ahead for all of us!

Hugs, Robin :)
Posted 5/30/2011 11:42 PM (GMT 0)
Wow! Great feedback - looking forward to reading through everything you guys wrote. I had a client who recently told me her support group therapist said "they" think it may be something like "XMR" virus or something?? or related to Gulf War Syndrome? Anyway, I'll read what you guys wrote and comment more after that! Thanks!
Posted 5/31/2011 12:08 AM (GMT 0)
The doctor that dx'd me explaind that it is like a short circuit in the nervous system. I tend to believe that is possible. Then she said it was very painful and there is no cure for it. I accepted that and went from there. Everybody is different, I guess we all have different levels of pain and fatigue that is unique to us. We all have different coping mechanisms too. What works for us. I guess we live and we learn.

Hugs, Karen
Posted 5/31/2011 12:38 AM (GMT 0)
Again, thanks to all for your great feedback and to Sherrine, for her motivating message! What I'm really struggling with is the chronic fatigue, no energy, malaise, etc. It's all I can do to get through a work week and take the best care of my child that I can. I struggle to get laundry done, dishes done, housecleaning done, grocery shopping done, etc. I never feel like I can get ahead on any tasks - it's all I can do to just "maintain!" Like many of you, though, I continue to push on through because what choice does one have? Most of us don't have the luxury to retire and have a staff help us with these things. Plus I do feel that it's incumbent upon me to try to push myself to complete as much of these tasks as possible. But it does wear on your mental health after a while to constantly be struggling and I do have pain, too. Some days much worse than others. Today I found myself waddling like a pregnant woman and exhausted after walking 2 blocks. On the weekends I take daily naps - sometimes more than once a day. I'm short with my husband, and with my child who is almost literally climbing the walls all day. It's the struggle that gets to you and that leads to that irritability, I think. Trying to maintain a PMA but just exhausted. Anyone else feeling this way? ;)
Posted 5/31/2011 1:44 AM (GMT 0)
I have more problem with fatigue than pain, as I have always been able to handle pain better. There are a number of things that you can do for the fatigue, such as breaking up your day and throw in a walk or some exercise. I know it sounds crazy, but exercise gives you energy. There are supplements that you can take such as malic acid/magnesium, or vitamin D3. They both help a lot. I take adderall and that helps me. I also take the supplements to, it can't hurt. Though you might want to get your vitamin D levels checked before you start taking it. Usually fibromites are low on D3.

Do you get a good nights sleep? A lot of people with fibromyalgia don't get the deep sleep that is used for repairing muscle, which leaves not only your mind fatigued, but your muscles too. At one point I was so tired (and I slept all the time) that I could barely stand up. I had to hand on to furniture to walk around the room. I slept for close to two years. Or was in bed. I feel like I lost two years off of my life, as I wasn't able to enjoy myself, I was miserable. In pain, exhausted, the only time I got up was to take a shower, use the bathroom, or get something to eat. And I wasn't burning any calories, so I was gaining weight even though I wasn't eating much. I was very physically active before this.

I hope that this helped some. I do take medications for pain too. I still have pain but can handle it. It is there, but I try to keep myself distracted and keep my mind off of it. I try not to talk about it a lot, because the more I talk about it, the more I notice it. lol...

Hugs, Karen
Posted 5/31/2011 10:17 AM (GMT 0)
Thanks, Karen. I was just about that exhausted this weekend! Could barely stand - I know exactly what you mean. Like all of your limbs are weighted and there's just this overwhelming heaviness about you? I went to bed at 9pm last night and will try to do the same the rest of this week. No, I don't sleep well through the night anymore. I did prior to my pregnancy but ever since then I haven't even though it's been at least a year and a half since the baby slept through the night. I believe that the pregnancy is when all of this started up and then the pain started after I was in an accident. Thanks for the advice. Headed to work now! :)
Posted 5/31/2011 1:54 PM (GMT 0)
Dear Andrea
WOW I got tired just eading your post!!!!LOL!. When I was first dxd with fibro, I also worked full time, had a small child and hubby was gone 16 hr per day. And I was not sleeping well. I'd come home from work, and would not sit down because I knew that once I sat, that was it. I'd haul my tired butt thru "maintenance" tasks and fall in bed. Eventually, as I missed days, it put a burden on my co-workers and I resigned. 3 weeks later, we lost everything in Katrina and I went into a medical tailspin.

The fatigue is paralyzing, so weak sometimes I have to grab the headboard to turn over or it is hard to hold your head up. But life goes on. I have said before that provigil works for some adderall for others. and EXERCISE-I read somewhere that with severe fibro you can do just 2-3 minutes per day-we can all do that. I spend time in a quiet room and do deep breathing when overwhelmed and I journal (all those ugly things you want to yell at yr loved ones when you're hurting) Sometimes I feel like everyone is pulling on me, sucking my energy out demanding my attention, my love, my work everything...but I know that is the fibro so I take a deep breath and push thru it.....AA always says one day at a time, some days with fibro it is one second at a time, putting one foot in front of the other...it takes alot of stength and courage to live with this disease. So give yourself a pat on the back, it sounds like you are coping. And, we are always here to listen.

Maggie
Posted 5/31/2011 3:41 PM (GMT 0)
You've gotten great advice here.  Be sure to eat healthy foods....don't eat too many carbs.  These make me more tired.  Stay with fresh vegetables, some meat and a few carbs. 

 

Put yourself on a sleep schedule.  Go to bed and get up in the morning at the same times.  This will help because your body gets used to knowing that, when you lie down, it's time to sleep.  (I set my alarm but never need it because my body wakes up on it's own.)  I am usually asleep within ten minutes of lying down.  I never get in bed during the day.  I've been know to fall asleep sitting up at the computer...just for a few minutes.  The power naps help and so does hot tea! 

 

The fatigue can be very bad and you aren't the only one who has complained about the fatigue more than the pain.  But exercise does help with that too.  I've improved since I started walking.  When I first started, I could only go four houses down and had to turn around and come back home but I went out the next day and could go a little further.  Next thing I knew, I was walking at least a mile.  I always come back with more energy, too. 

 

Walking is wonderful for depression, too.  I nearly lost everything in the stock market a couple of years ago.  I went in such a depression that I was close to a nervous breakdown.  I couldn't eat or sleep but I sure could cry a lot.  This jacked up my pain, too.  Then I started walking several times a day during that period and I always came back happier and with more energy.  My little dog lost a lot of weight too!  LOL  But she LOVED going out for a "sniff".  So I really do push gentle exercise.  Even if you can only do a little, a little is better than nothing.  Oh, I also have a walking-in-place video by Leslie Sansone that I've used, too.  Using it for 15 minutes is like you walked a mile.  I HATE exercise so this was right up my alley!

 

Sherrine

Posted 6/1/2011 3:30 AM (GMT 0)
I have had fibro for 19 years yet I was able to raise three kids who were 3, 6, and 11 when I was diagnosed. I, like the others, have learned to pace myself. I can usually do most things I want but I have to spread them out. I can "abuse my body" for a few days (like when we moved across the country) but I pay for it later. I have found the things that work the best for me are mindful yoga, my beloved heating pad, my whirlpool tub, and avoiding sugar and over processed food.

I have the best husband on the planet and he helps with shopping, cooking, and cleaning (no, he does not have a brother! LOL). He accepts my limitations and has a lot of hobbies of his own. We are fortunate that we can afford to have someone clean our house. That really helps.

I work full time with students with disabilities so I am fairly sedentary at work - unless it is enrollment time in which case I usually have a huge flare up every March. But it goes away gradually.

I have found that my fibro has not gotten worse over time. I have gotten older so some of things I could do in my thirties, like paint a room, take longer with frequent rest breaks. I would encourage you to move and rest and relax. You didn't cause this illness. Treat yourself with same kindness you use if a good friend had fibro. It is manageable and life can be full and enjoyable. AB
Posted 6/1/2011 10:18 AM (GMT 0)
Yes, definitely need to start exercising. Think I'm going to start getting the stroller out when I get home from work and going for about 15-20mins before I start dinner. All I want to do is come home and lay on my couch, and then I get up, do a little, lie day, get up, etc. But I am starting to put on some lbs, so that's motivation enough to get out there and start moving. Plus I want my child to understand from an early age how important it is to live a healthy, active life. Thanks, ladies!
Posted 6/1/2011 10:54 AM (GMT 0)
Good for you!!!  If you sit or lay too much, you will be stiff as a board and have more pain with fibro.  I, too, raised three children with fibro.  They were 9, 10, and 13 when fibro hit me but my Crohn's hit me when they were ages 4 and under.  They have never had a healthy Mom but they tell me I was the best Mom of all their friends.  I felt guilty for years because there were many things I couldn't do with them...especially because of the Crohn's disease.  I still regret that I could never take them on a picnic.  I couldn't be far from a bathroom those days.  But, because of illness, I was always home and there for them.  I was always a room mother and managed to sit through all the baseball, soccer, and football games, too.  Sitting on frozen bleachers isn't a picnic...even if you are healthy!  I was in misery when I got home but the memories I have were well worth the extra pain.  So get out and enjoy your child!  You have some great times ahead of you.

 

Sherrine 

Posted 6/1/2011 12:29 PM (GMT 0)
I would have to agree with the nervous system, I can see the connection with my own body that it must be my nervous system.

I personally was fine until several things happened, car accident (2: one was rear ended by a drunk driver  the other a drunk walker run out in front of me) , nasty sinus infection, stress and depression. 

You do have to keep moving, for two reasons in my opinion.  For an example I have just dealt with several days of leg pain (weather), it felt better to stretch it, exercise  plus it helps take your mind off what is going on with your body.  I know if you focus on what is going on pain/nerve sensations then it gets overwhelming and you do start to worry.

I just put it in God's hands, I am a big supporter of Vit. D 3.  I really believes it helps in several ways.

Posted 6/1/2011 3:12 PM (GMT 0)
Hi everyone,

I've actually read an other interesting article the other day. Some doctors in some part of the world (i could remember this 5 minutes ago, but the fog has gone and stolen the location, bugger!) has done some research in to Fibo and has come up with another possible theory.

Theory: I reckon everyone here has at least heard about Carpal Tunnel syndrome at one point in their lives but if anyone hasn't: With this condition the nerve that runs to your hand has to squeez through a too tight space (this space is called the Carpal tunnel) now this doctor believes that we have more than one place in our body where this problem can occure, this beeing where your legs meet your hips, where your shoulders meet your arms and even where your neck meets your shoulders and that it is very much possible that we have a narrowing of those tunnels on several spots in the body and that this causes pain, the pain than in itself would cause the depressiveness, fog, tirednes (mostly by a lack of sleep or at least deep sleep) hence: we have Fibro!

It's not a bad theory in itself (if it wer proven to be true it would actually be realy great because it would mean that we could get it sorted with surgery!) howevere on the other hand it doesn't sound to plausible to me... If this would have been the case i figure they would have discoverd this a long time ago.
I myself am a firm believer in the fact that it is just something that is there in our bodies and can rear it's ugly little head when it feels the time is right.
I would put my bet on it starting in the brain, plain and simply because doctors still know so very little about how the brain works, but again thats just my opinion

Fiona
Posted 6/2/2011 4:31 PM (GMT 0)
Maggie. wow. I research like crazy too and totally totally agree with your thoughts. Personally, I tend to think it's autoimmune in nature, that there is an inflammatory component to this ( nerves and connective tissues in particular?) and that it's effect on sleep that you mentioned, thus amplifies and the problem. As your body is now unable to repair itself or make the appropriate amount of serotonin. I also think there may be a hormonal component to this too, perhaps because I've noticed my hormonal changes effecting Fibro. For example I have my worst flares like clock work 10 days before my period and my best days 10 days after my period. I also tended to feel somewhat better when i was pregnant. My personal theory ( and I am no doctor) is that I think that some sort of autoimmune dysfunction triggers this disease and it becomes a domino effect. One thing effects the other...for me, it started with IBS then fibroids and endometriosis, then my sleep was effected and I began waking up unrefreshed, then my libido tanked then the pain started, first in my upper back and shoulders, then my neck. Eventually, my joints started to hurt. Being constipated nearly all the time and feeling like I never got a restful nights sleep takes a toll and causes the pain and fatigue to get worse. Now in constant pain, unable to get restorative sleep, tack on job/child care stress, family/friends that do not believe you or understand you, doctors who can not help you or worse don't believe you and you have a recipe for depression. It becomes a cycle of pain. Anyway just had to post because I was so struck by your post.
Posted 6/2/2011 6:09 PM (GMT 0)
Dear Redheadbk

Well, thank you. Nobody ever agrees with me at home-lol. Yeah, the whole autoimmune thing...Lots of folks have mentioned a viral factor in this thread, so maybe we get a virus or suffer trauma (car accident, disasters even a hard childbirth) something weakens our autoimmune system and for some of us, it cascades into fibro or lupus or CFS. The brain/sleep and autoimmune systems are probably the 2 parts of us that are least understood. Hopefully, when our children and grands come up, they will have figured it out. Take care and thank you for the feedback

Maggie
Posted 6/2/2011 6:19 PM (GMT 0)
Maggie,

That makes a lot of sense. I am one who started with a virus, but had a lot of mental stress going on at the same time. I think it all just took a toll on me. And one thing led to another. But I am beyond trying to figure this syndrome out. I am just living with it now. Some good days, some bad. But over all, it is still a good life.

Hugs, Karen
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