"Fibro Fog Express"... Allllll Aboard!!!

It seems as though my brain "de-railed" lately and I have a one-way ticket on the Fibro Fog Express. Oh, how I wish I could get this mess to clear.

The depression has spiraled out of control quickly. Putting coherent thoughts together (without intense concentration) is quite the challenge.

I went to chiropractor today and my words were all messed up/jumbled/couldn't get the sentences to come out right. He said the flow to my brain was very sluggish and did a lot of adjustments with my neck and jaw today... and wants to see me back again in two days (I usually go 3-4 weeks in between).

Sure hope this helps cause I feel like I'm losing my mind. Tonight when I went to get an ice cream sandwich out of the freezer I almost put my cell phone in the box to replace it. Oh Lord, I can't imagine how long I would have been searching before I found it again!

I'm trying to laugh, because otherwise I'll be drowning in tears again and I want out of this funk; I want off the merry-go-round now. Me not like this ride!!!

Hi Crush. The fibro fog on top of all the physical concerns can really send a person over the edge and make a bad day worse. It's been a day since your post--are you feeling any better?

I had a disturbing fibro fog moment today. I was walking our dogs and was about 1.5 blocks from our house when I realized I had no idea which way I needed to go. Should I go left or right? Which way is the "long" walk route and which way is the "short" walk route (I wanted the short one)? So I choose left (wrong), but as we walk I feel like I have no idea which street to turn on up ahead and how to get back home. We got back home just fine (though the long way), but it was extremely unsettling to feel that way.

Tara, hope you're feeling better, too.

My cognitive thinking became very scary to me that my dr. Tested me. The test scores were low low. It was up setting to me and my husband. He was told that I could not work and that I needed to be monitored. I felt like a baby. I knew something was wrong because I would get lost driving or forget how to take my meds correctly. I am working real hard on trying to keep my mind active and create new brain cells. Lol . I guess good things have come out of this that I have a personel driver now. I am only 46, very scary for the future.

Crush,  you have been very upset lately and I know that when I'm upset, my brain doesn't work.  I stand there stammering.  I can't come up with words either.  I don't say the wrong words but I sure type them!  I reread my posts several times before I post them and I still have mistakes in them.  I can't spell, either!  Also, if I'm overly tired, I can have the same problems.

 

I do use games and things like genealogy to keep my brain active.  That is so important.  I rarely watch television because most of it is mindless anyway.  I like playing Bridge with my computer.  I have a Nintendo DS Lite that I love and I bought Clubhouse Games for it.  I carry that with me all of the time.  I also bought Brain Age for it, too.  The old saying, if you don't use it you'll lose it, is true. 

 

So keep your mind active.  If you watch television perhaps turn to channels where you can learn new things.  All of this will help with your brain fog.

 

Sherrine

I forgot how to cook one of my favorite meals the other day...just forgot the recipe and I have been making it for years...stood in the middle of the yard the other day because I couldn't remember what I was doing out there....yeah the fibro fog is fun fun fun....I just try to laugh at myself and make jokes to keep my spirits up

I wonder if other people have minor hallucinations when their fibro fog gets bad? Sometimes I'll see something, like a pair or scissors on the table, then I'll look again and there isn't anything there. Or I'll blank out for a few moments and forget big chunks of entire conversations, or remember them incorrectly all together. I'm also having a hard time seeing, like, it's difficult to process info that I'm seeing... strange, huh?

My head is just so disoriented, confused, exhausted, and it's such a scary feeling.

Hopefully everyone here will start feeling better soon :)

The slightest thing can throw us.  Yesterday, I was driving on Southern State and saw a sign that said, 7 miles to Heckscher State Park.  My exit is just before the gates to Heckscher, so seeing the sign I knew at 60 mph, I would be to the exit in 7 minutes.  At that point I got very upset because I had no idea how I knew it would take 7 minutes to get to the exit.  I went from thinking very clearly to not understanding in just moments.  A friend explained to me that 60 mph means 1 mile a minute, which then made perfect sense, but very aggravating that I could not remember that.

People do not understand us, not a tiny bit.  They will pat us on the shoulder and say, "It happens to all of us."  BUT, we all know, this is different.  A friend told me yesterday and to not get so upset over it all because we know I'm very smart and it's still in my head.  It's that broken connection we worry about.  I do honestly think this will always come and go for us, nevertheless, it's very disturbing when it happens.

My neuro wants me to do a neurological test again in the late fall.  I think it's the same test they use for ADD.  I had it done last year too and passed it.  I have had ADD my entire life, so I have learned many methods to overcome problems.  The test seemed hard to me and I thought I failed it yet he told me I passed it with flying colors.  It's all on a computer, the test I did any ways.

O yea I almost forgot, it's actually kind of funny because I've grown accustomed to forgetting things and the fact it's hard for me to make out sentences that either make sense or propper grammer and my concentration is just horrible. So fibro fog I personally think that is connected with ADD. Which I believe I have had a long time even before I was diagnosed with fibro 3 years ago. But what I think is funny is that it was probably 4 appointments ago with my rheumatologist but he was talking to me and he stopped me and said something along the lines of, you're speach seems stringy( he said something like this) then he said I believe you have fibro fog. Which I know I do I've just tried to grow accustomed to it. But anyways he prescribed me Elivil for this.....Well it didn't work for me, but maybe you could try it???? Like I said above add meds are awesome for fibro fog but for me they raised my pain so no thank you for me...to each their own.

On a bad day, I try to dig out my favorite crafts and things I enjoy (music, movies, books, videos, etc.--just avoid the chocolate you enjoy, if you're like me :)). This seems to lift off the bad stuff and puts me in a better perspective. I also try to 'up' my prayer time a bit, and just tell all my troubles to God. That really takes a lot off my back.

Also, on those nastier day, I sometimes find it helpful to sit down and make a list of things I want to accomplish. Then I take baby steps to 'get there.' It puts me in a more positive frame of mind. I just keep reminding myself "Rome wasn't built in a day," and little by little, you can accomplish more than you think. I know some days seem impossible, but even baby steps can create a happier picture.

I think when the fog is at its worst, it's time to baby ourselves a bit and not feel guilty about it.

Recoveryme2day:  Great point about medications!  Something for each of us to consider.

Post Edited (Luvzminis) : 1/8/2013 8:10:25 AM (GMT-7)

Ya, I don't think it is meds for me either. I was extremely anti-medication unless absolutely necessary, and I still had horrible fog. You can tell in my grades around when it hit and the slow decline of my GPA as a result.

Now I feel the meds just add to my fatigue.