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Posted 6/29/2011 8:55 PM (GMT 0)
Well Dear Friends; I made the appointment with the Dr. in Mint Hill. I have an appointment next Wednesday.I'm kinda
nervous about it. I guess it's because I've had such horrible luck with past doctors.So wish me luck u guys!:)
Posted 6/30/2011 3:11 AM (GMT 0)
Dear FM sufferer...well not exactly about getting the meds from doctors. It sounds like you have had a hell of a time though. 3 years ago When all this started I was immidiately put on hydrocodone from my Primary, after a couple visits I guess I built trust, I told him the hydrocodone was not really helping. He was actually the one who asked me if it was helping or not and I answered honestly not really, so he gave me perc 10's and this was even before I got xrayed and mri's which happen to show NOTHING! So even when I had insurance at that time I still payed about a grand between the xrays and the mri's....Even after he saw that they showed nothing he still continued to give me my meds. He understood that without them I litteraly could not work. All doctors are different and it comes down to the Hippocratic Oath that all dr's supposedly are suppose to follow; to keep the patient out of pain by any means necessary....haha obviously because of the government that Oath hardly means anything anymore. Thanks by the way my appointment with the P.A. did go well....of course he was shocked as he was looking at me and reading my file as I knew he would be for my age. But he was very nice and I suggested the 4 things that people on here have brought to my attention and he was all ears for it. I mentioned the polymittosis, the myalgias ( WHICH APPARANTELY WAS ALREADY ON MY CHART!! SO I GUESS MY RHEUMATOLOGIST THOUGHT OF THAT ALREADY?! BAYOUB2 YOU WERE DEAD ON!!) Intractable pain which he said could be a possibility, and the sleep apnea he thought was very plausible given my backround with sleep and all the different medicines ive tried for it. In fact he wants me to do a sleep study which is what I suggested to my rheumatologist when I first started seeing him but he didn't think that was neccessary. I told the P.A. I def. want to have one done but I have to get inclucssive health federal first for my insurance, I also told him once I get that I plan on having some more mri's and blood work done. I'm not giving up. I am anxious to hear how your mint hill apt. goes and yes let's keep in touch, I'm not sure if I'm allowed to give you my email on this?? But we should exchange email address somehow and stay in touch better.
Posted 6/30/2011 2:54 PM (GMT 0)
YEAH !! I am so glad that ur visit with the PA went well 4 u ! It makes me happy 4 those of u who r doing well
& have doctors who will listen 2 u & give u what u need. I'm really nervous about my Drs. appt. next week. I don't
know if I can take another disappointment! By the way; I hope everyone on our forum has a safe & blessed 4th of
July week-end.My family is having their annual get together but it's n Virginia & I can't go due to the pain.Plus I don't
think I could handle the ride there & back.Sooooo..... we'll b at home. Again. Seems like that's all I do except for when
I have 2 take my daughter where she needs 2 go.But she gets her driver's license in August so she'll b able 2 drive to
where she has 2 go. Anyway; Happy 4th !!!!! :)
Posted 6/30/2011 3:54 PM (GMT 0)
Ouch, if you put your email address in your profile, only members of HealingWell can see it.  If you put it in your post, I'll be editing it out because anyone around the world could get it! 

 

FM Sufferer, I do have a suggestion for you.  Go into Fibro 101 and print out the journal and also you will see great guides, even some with faces, that help explain the pain you feel when doing things.  Start recording today in the journal what you do and then you can accurately record your pain next to that using the correct number from the pain chart.   Then take the journal along with a printed out sheet of the pain chart you used in to the doctor when you go next Wednesday.  DO NOT start asking for narcotics.  You have asked about narcotics on nearly all your posts and if you are doing this with doctors, they will think you are drug-seeking.  THEY want to make the decisions about what prescriptions to give you, so try to relax on that account.  Your exam, the journal, and the interview with the doctor will tell the story.  The doctor will then treat you the way he/she treats other patients with fibro.

 

I hope this helps.

 

Sherrine

Posted 6/30/2011 5:15 PM (GMT 0)
Dear OUCH-

Haha-well, I've been around the block a few times....old age brings wisdom. I am very excited you are getting a sleep study. It has answered some questions I had-my fatigue was so extreme, I did not bathe, brush hair etc. No, it was not depression.

They will check for sleep apnea, but also heart irregularities and PLMD (which is a bad case of restless legs) which I have in spades too. Most fmers have sleep disturbances, so a sleep study can rule out things .

I'm very glad the PA was so open to your suggestions. Most docs just hate it when you tell them what you think is wrong with you!! Keep posting and let us know about sleep study and labs.

Take care
Maggie
Posted 7/1/2011 3:26 AM (GMT 0)
Dear Sherrine,

Thanks for telling me that, I would of hated to post that and then who knows who would have gotten ahold of my email address!!

Dear Bayoub2,

Thank you for your continued support! I also am very excited the P.A. seemed to think the sleep study was very neccessary so I will bring that up to my rheumatologist at my next visit if it's not alread written in the files. Like I've said I've had horrible sleeping issues since I was a kid so I am almost positive this will find something out thankfully.

Also I have a what I think is very weird situation....the P.A. was going to electronically send my prescrption of #60 350mg soma to my pharmacy that day, well when I got off work to pick them off, they had told me they received nothing, so I was kind of frustrated. Well today I had to be at work by 11. So I called my rheumatologist office and told them this and she said she would have to check with the other dr. that works there which made me wonder if I would even get it? So I went to my pharmacy before work and they HAD sent it in thankfully....however when I got it I noticed it was in a Huge bottle I had never seen before and the quantity was 120 and there was 6 refills on it till the same time next year....however one thing I found interesting if someone maybe could explain, the directions said take 1 to 3 times daily as needed????? my previous prescriptions for the soma were only #60, no refills, and the directions said take 1 to 2 times daily as needed. If someone could please try explaining this for me??? Honestly I do like the new directions because I felt like I needed 3 a day on most days to be honest. But why the Huge increase on everything?
Posted 7/2/2011 5:22 PM (GMT 0)
Having a really bad day 2day! Took 2 tylenol with my Ultram. Didn't tooch the pain.It never has & I've been doing this
4 over 3 yrs. It's really hot here 2day n NC. And I had a fan blowing on me.Had 2 turn it off because it hurt! Go fiqure.
Anybody else have trouble with cold air hitting them? This stinks!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! .
Posted 7/2/2011 6:37 PM (GMT 0)
Dear OUCH

As far as the soma changes go, I know when my hubby's disc bulges, he sees doc and gets 30 hydros, 30 somas and anti-inflams. That would be a temporary or acute episode. The PA realizes this is a constant or chronic condition and saved you a lot of hassle. So, the PA is really on your side now.Yah!

Keep us posted

Maggie
Posted 7/5/2011 11:02 PM (GMT 0)
Greetings Everyone: I looked up the article I was talking about regarding Chronic Pain. You should b able 2
read it if u go 2 : NewsHealth.com. The article is about the Chronic Pain epidemic in this country & the fact
that it's costs total more than the cost of Heart disease does in the US. If u can't find the article; let me
know & maybe I can forward it 2 Sherrine and maybe she'll post it. We need all the info we can get 2 help
one another, right? Blessings 2 all ! :)
Posted 7/6/2011 2:22 AM (GMT 0)
Greeting everyone; Say a prayer 4 me.My doctors appt is tomorrow.I do hope all goes well.I am really stressed
out! I have a 15 yr. old who thinks we r the enemy most of the time; gas & everything keeps going up; our
finances r a mess due 2 a couple of really stupid financial moves my husband made(w/o asking me I might add)
and 2 top that all off, I had 2 go from being on his insurance at work to going on Medicare.Which means I also
have 2 have a supplement 2 cover what Medicare doesn't. I guess that's why my Fibro has been so bad lately.
I know stress makes it worse.I try not 2 worry but u know how it is. Hopefully this new doctor will b a Godsend!
Posted 7/6/2011 10:29 PM (GMT 0)
Greetings everyone! I promised 2 let u all know how my visit went with the new Dr. 2day. Well; IT WENT GREAT !!!!! I cannot
tell u how relaxing my visit was! She asked alot of questions about my physical health & how I was doing. And I told her. I told
her "everything!". How all the other doctors had treated me including my previous PCP. She never once made me feel like I was
a junkie looking 4 a fix. She treated me the way doctors r supposed 2 treat us. Like patients & not criminals! And she gave me
medicine that does help my pain. Hydrocodone. It's not the strongest u can get but I told her I'd rather start with the least
dose & increase if needed over time.And she was ok with that. She was the 5th doctor in less than 6 months! I think I have
finally found one I can trust. And I liked her. Thank goodness the search is over.So barring any problems(from my previous
PCP) I should b good.FYI: this Dr. is in Mint Hill, N.C. Take care all & evening! :)
Posted 7/8/2011 2:41 AM (GMT 0)
Late night note: I have had a headache all day & cannot get rid of it ! Any suggestions ? Thanks! :)
Posted 7/9/2011 8:54 AM (GMT 0)
they come and go...i had one for 11 days straight! Just pounding and throbbing it was horrible. But normally I just get them and they go away within a day or so....idk guess it comes with fms....blahhhhhh
Posted 7/9/2011 1:27 PM (GMT 0)
When I get a headache it is usually tension in my neck and shoulders. Try a bed buddy and put around your neck. It is a tube filled with rice. You put it in the microwave and then wrap it in a towel, and put around your neck. It relaxes the muscles with moist heat. Takes the headache away. Give it a try. I got mine at the Walmarts Pharmacy.

Hugs, Karen
Posted 7/9/2011 1:51 PM (GMT 0)
Glad to hear the new doctor is a good one! That sure helps things a lot, when you have a good relationship with your doc.
Posted 7/9/2011 8:00 PM (GMT 0)
I will def. try the bed buddy, it seems interesting.....I'm so confused though.....most people on this forum say that either tramadal or hydrocodone works for them?? It honest to god does not for me? I would have to take an exorbitant amount of hydrocodone to feel any relief and that would probably make me throw up. What does that mean? Like I said even the roxy 10's even at first were only helping a little? Am I some kind of freak? I can't help I am in agony all the time, my mom suggested a neurologist possibly? What exactyl do they do? All I know Is I'm tired of the kind of pain that prevents you from getting up and being active and living life like it's supposed to be lived.
Posted 7/9/2011 9:24 PM (GMT 0)
Some people just have less pain tolerance than others. I myself have a high pain tolerance. The hydro helps, but I am not pain free by any means. But if I didn't take them, I would be worse. It may just be that you need stronger meds than others. I know people who take oxycontin for fibro. And some take methadone, or morphine. We are all different. If my doctor were to ask if I would like something stronger, I would try it. But I don't want to ask for it.

Hugs, Karen
Posted 7/9/2011 10:07 PM (GMT 0)
Yea I completely understand.....the 4 a day roxy 10's aren't cutting it and like I said he wanted to put me on nucynta, a new drug kinda like hydrocodone and oxycodone with the roxys still, but I really don't know what happened with that lol some sort of mix up, they didn't have the form there and blah blah blah....He's a busy guy....But If he doesn't bring it up at my next appointment then I am and from what I heard It gives a lot of people horrible stomach issues....My stomach is horrible, I can not take any NSAIDS, tylonol, and most anti depressents mess my stomach up horribly. So I am going to bring this to his attention plus it's expensive and he knows I don't have insurance at the moment. But like I said I'm going to try and get some sort of long acting like opana er...I have only heard good things about it and hopefully he will leave me on my roxys for break through pain and maybe I will even be able to cut down on them....who knows...
Posted 7/11/2011 12:55 AM (GMT 0)
I am thankful that I finally found a Dr. that would give me pain meds.I am on the lowest dose of the Hydocodone u can
take & I had 2 just keep taking it every 4 hrs.till my headache eased up.Finally after 3 days; it has.I won't ask 4 anything
stronger because this Dr. & I have 2 get 2 know one another first.And I have just been kicked n the gut by someone I had
reconnected with after being out of touch 4 over 10 yrs.due 2 something she thought I intentionally did 2 her.Of course, it
involved money.I am sooooo hurt & angry I could scream!( This may take a minute 2 explain)Ten yrs. ago I sold one of those
older big screen tv's 2 this friend.She gave me $400 for it.I knew the picture was alittle dark (and I told her that b4 she paid
4 it)but I had no idea it needed a new picture tube.My husband was not working(at all) and I used the money 2 get my kids
Christmas & keep the heat on.We literally had no money at all.She accused me of scamming her, called me everything you can
think of, and dropped me like a hot potato! Didn't hear from her for over 10 yrs.until I set up my FB account.Well, I thought(and
boy was I wrong!)that she had changed.Things were going fine until the 4th of July when I told her I wouldn't b able 2 come 2
her cookout.She absolutely flipped on me! Wanted 2 know how could I do that 2 her after her precious husband had cooked all
that meat & her all the fixins 2 go with it? And 2 make things worse; she told her other friends she was canceling the cookout
because we weren't coming!! Now does thar make any sense 2 u? I sent her a FB message & asked her why did u do that? You
basically put the whole thing on me & made me look like a complete jerk.Who would do that 2 someone whose supposed 2 b a
friend? Sooooo, all this stress has sent my Fibor into overdrive!!! No wonder I've had a headache 4 over 3 days! Anyway; 2 make
a long story short; we r no longer friends(again).she sent me an e-mail & threw the tv thing up n my face again.That happened
over 20 yrs. ago! With friends like that, who needs enemies,right? So I've blocked her ph. number, taken her off of my FB page,
and out of my e-mail list.But the sad thing is: I really loved her & I am really,really hurt.Am I wrong 2 feel like this? I'd really
like your inputs. Thanks 4 listening Fibro friends! I needed 2 vent! :(
Posted 7/11/2011 6:09 AM (GMT 0)
 

Have any of you with bad pain tried cutting nightshades out of your diet?  They include white potatoes, tomatoes, all  peppers (except black pepper) and eggplant.  I get joint pain and burning eyes when I eat nightshades.  They contain solanine, which accumulates in the body and is neurotoxic to people. 

FM Sufferer--was your Lyme test done through IgeneX lab?  Their test is far more comprehensive than the mainstream labs.  You should also be tested for the co-infections and mycoplasma.  If you're in the Carolinas you might want to be checked for ciguatera and pfiesteria, as well.  They present with the same symptom set.

 

Posted 8/1/2011 1:20 AM (GMT 0)
Greetings FM Friends: Been awhile since I've posted.Haven't been feeling well.Lots & lots & lots of stress which has led to lots
& lots of pain.Sleeping alot.The pain in my hands & arms are back again ! UGH ! Hurts to use them; especially the hands.Sooo...
no computer much.The heat here in NC has been sooooo bad that I haven't even stepped out unless it couldn't be avoided.
Have another appt. with my pain Dr.Tuesday.Hope she will up my dosage since I started out on the lowest & at only twice a
day.My Fibro has just been really bad.Hopefully it will let up soon.Blessings to all !!!!!!!!
Posted 8/1/2011 3:50 AM (GMT 0)
You are not the only one that has had trouble with doctors not wanting to give out pain meds. I am right there with you. I am still on a mission to find a Dr. that even thinks FM is real. I am hoping the one I see on the 3rd of August will help me with something for my pain at least. I can not even stand a 3or 4 on the pain scale. I am going to ask for some Tylenol with codine and see what he says. I have taken that before with no problem. I am in so much pain right now it is unbelievable. I just might have to go to the ER soon to get taken care of.

HARA - week smile
Posted 8/6/2011 7:21 PM (GMT 0)
Having a "really" bad weekend! Husband is n a really,really bad mood ! The stress level is almost more than I can
handle! I don't know what to do.I am soooo tired of living in this explosive atmosphere.All I want is peace & a spouse
I can feel close to.All my husband is doing is making me withdraw further.But I can't make it with my daughter on my
own.If D.S.S.can't help..... I'm stuck. I hate it here! My Fibro pain has gone off the chart !Nothing I'm on is helping me.
and I am soooo tired, I don't even have the energy to fight with him.Can't sleep,eating myself to death, and on top of
all that:daughter got her license yesterday! Ugh ! Going 2 bed !!!!! :(
Posted 8/6/2011 9:39 PM (GMT 0)
How about having a truce...a "cease-fire."  Both of you agree to sit down and talk calmly, with no yelling or finger pointing, about what bothers each of you about the relationship and the good things about the relationship, too.  Yes, there are plenty of good things.  After all, you married each other for a reason!  No one is perfect.  You might be surprised at the things that bother him about you and he will be surprised at the things that bother you about him.  If you can each try to work on those, you could end up with a very loving marriage again.

 

When cool heads prevail, then you can accomplish more.  I love the saying that you can get more flies with honey than you can with vinegar.  It's true.  Both of you should compromise, have give and take.  Start respecting each other again.  It takes work but it really is well worth it.  Both of you could be happier and healthier, too.  I hope things can work out.  Staying angry and agitated like this is a killer for not only fibro but also your entire body as well as your marriage.  I'm sure he's the same way right now. 

 

Oh, and a "date night" works well.  My husband and I had a date weekend...every weekend.  We would go out to a nice restaurant and then pick up movies and head home.  Wonderful memories. 

 

Sherrine 

Posted 8/6/2011 10:42 PM (GMT 0)
I am sorry to hear about your problems with doctors. I had a similar situation and found a great doctor in another state. I know that the narcotics were working but I got off of them with Savella. The pain was still there ( a lot less though) so I was put on Tramadol. The combination works wonders. I did not know what else you had tried.

As far as finding a doctor, good luck. Teaching hospitals are usually a good place to start. One with a pain clinic is best.

Hope this helps...I wish you the best of luck.
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