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Posted 7/6/2011 11:28 PM (GMT 0)
Hi everyone, hope your all well, another question, has anyone ever had a buzzy kind of humming feeling in their hands or feet with their fibro?

Yesterday the side of my foot and palm of my hands which are both sore had a weird buzzing, humming feeling.....of course I panicked rang the dr who said sounds like anxiety related, but I do remember reading some people with fibro have this sensation.......thanks everyone have a good day smilewinkgrin
Posted 7/7/2011 12:12 AM (GMT 0)
Shanny, hello, don't think we've met.

Oh yes, everyday a different ball game! Unless it sticks around or gets really bothersome, I try to just ignore most of it. Sometimes, I can even laugh about it - sometimes.

Debbie
Posted 7/7/2011 12:39 AM (GMT 0)
Hi Debbie nice to meet you, I'm so glad you have this too, sorry...lol I thought I was seriously going bonkers today...it stopped buzzing for a while now it's back but only in my sore hand....god I hate fibro.....

Do you take any meds to make it go away or does it just settle down on it's own?

Thanks so much for replying, I'm not usually so crazy anxious but I get muscle twitches too with the fibro so between buzzing and twitching and the pain I'm a mess at the moment...best wishes to you.....shannon
Posted 7/7/2011 12:52 AM (GMT 0)
Shanny, I get that sometimes.  It's like I have a body part on a buzzer.  I also feel like my skin is wet or cold and it isn't.  Also, have you had the feeling like bugs are crawling on you or water is running down your leg?  Yep.  That happens with some of us...like me!

 

I really don't suffer much with anxiety anymore so I think mine is more of a fibro kind of thing.  I wouldn't think of taking medication for something like this.  It does go away for me.

 

Sherrine

Posted 7/7/2011 1:10 AM (GMT 0)
Hey Sherrine,

I get a weird feeling like I'm vibrating inside. Is this what you're describing? If so, mine goes away usually within a day (like my batteries finally went dead). Hope you're doing better.
Posted 7/7/2011 1:56 AM (GMT 0)
Hi sherrine, yes I have the bug feeling and the cold water feeling too, it's amazing what fibro does to us all isn't, thanks so much for the replies it has eased my mind, I think I need to do my relaxation tapes again and stock obsessing on every little thing...thanks again guys.....xxx
Posted 7/7/2011 3:09 AM (GMT 0)
mine started in my feet then my hands. I kept thinking it was my phone on vibrate and would reach for my cell but it wasn't ringing, it was just me....crazy feeling
Posted 7/7/2011 3:40 AM (GMT 0)
Yes husker gal, it's a weird feeling for sure oh the joy of fibro....
Posted 7/7/2011 8:36 AM (GMT 0)
Just got back from the drs she looked at me like I was a kook and asked me did I really feel it or am I just imagining it???.....she doesnt really know much about fibro I fear...oh well at least I have you guys for advice...thanks again for the reassurance....shannon
Posted 7/7/2011 12:01 PM (GMT 0)
I get the icy pins and needles sensation with the buzzing numby like feeling ....it's so hard to explain but I think I know where you are going with this.... yeah...it's an annoying one.
Posted 7/7/2011 2:35 PM (GMT 0)
The bottom of my right foot and my right "boob" get a faint buzz in the evenings when I am settling down for the day. It doesn't do it very long and its very mild so I haven't even thought to mention it to the doc.

I also noticed something else sorta "weird". I never feel my phone vibrate when it is on my person. I have missed several calls and been yelled at several times before I realized this.
Posted 7/7/2011 2:46 PM (GMT 0)
Don't have the "buzzing" feeling but i DO know the bug-crawling feeling Sherrine described. It's mosquito season over here so every time i get the feeling i am sure there is a mosquito settling in for the bite and i lash out to kill it, but offcourse there is never anything really there. So all i do is hit myself for no good reason haha. My bf looks at me like i've gone totally mad everytime i do this lol mind u sometimes i kinda feel like i'm a little bit mad :)
Posted 7/8/2011 3:21 AM (GMT 0)
 My buzzy feeling is in my head at night when I am trying to sleep.  I actually feel an internal shaking in my head.  It is weird and sometimes I get alittle panicky over it.  I keep thinking maybe it is a blood sugar thing or just anxiety but I don't like it.
Posted 7/8/2011 3:51 AM (GMT 0)
Wow I love you guys you make me feel semi normal, seriously I think my dr thinks I belong in the psych ward, buzzy hands?? She doesn't get fibro obviously, thanks so much everyone I'm sick in bed today with a migraine, the fun never ends with fibro does it.....hugs to you all.....shannon
Posted 7/8/2011 3:59 AM (GMT 0)
You are only as 'mad' as the rest of us. I get the same thing ALL THE TIME! Bugs crawling, muscle twitching, tingling, burning, buzzing, you name it. My right foot and right hand are the primary culprits for the tinging and buzzing. I'm still a firm believer that it is related to trigger points....not that I can find a doctor who agrees.

I usually shake, stretch, scratch, rub the areas or just scream. Sometimes I think the screaming helps the most. My family thinks I'm nuts anyway so one more outburst won't hurt my image. :)

Hang in there...you definitely aren't alone.
Posted 7/9/2011 2:25 AM (GMT 0)
Yes I agree I think it's totally related to trigger points but my dr thinks I'm anxious that's why I've got the buzzes, mine is only in a small spot near my palm is yours like that or your whole hand? I think I would go bonkers if my whole hand was buzzing......
Posted 7/9/2011 11:02 AM (GMT 0)
I have to wonder if fibromyalgia is just another peripheral neuropathy syndrome.  Everything all of you are mentioning is also neuropathy symptoms.  I get the buzzing in my feet, I call it my "cellphone vibrations" and wished whomever is calling would just leave a message and stop calling. tongue As of late, my new symptom is this strange surface stinging on my legs.  It doesn't matter if I am hot or cold, it happens.

I have been diagnosed with small fiber sensory polyneuropathy and see my neuro every 6 months.  As long as I take my 5000mcg of B12 daily, the symptoms stay very calm.  Forget my B12 or go without for a few days and everything increases.  I was told a few weeks ago to increase my B12 to 10,000mcg daily and see if all symptoms go away.  I have to ask my neuro about that first, I don't want to upset my boat. nono

Posted 7/9/2011 11:59 PM (GMT 0)
Deb25

thats what i think too..sfn.
i think if people are having these types of symptoms an emg/ncv and skin biopsy should be looked into.

I have sfn symptoms all over. my whole body buzzes and vibrates and all the shooting stabbing all over. not fun.
but i had all the test and still no answers.

its hard!
Posted 7/10/2011 12:19 AM (GMT 0)
EMG's actually only show large fiber neuropathies.  I have had several EMG's, including the needle type, full body.  My neuro diagnosed me from test he did, although the EMG's do not show large fiber involvement, which is a good thing.  I was diagnosed with carpal tunnel over 12 yrs ago, and that was my first sign of neuropathy.  I have no doubt that my neuro is correct, he's the best in his field and has never steered me wrong! wink
Posted 7/10/2011 5:44 PM (GMT 0)
Deb

How were u diagnosed of sfn. Do u have any other diagnosis.
Did they find underlying cause.
I am so desperate for answers. I have had this for 13 yrs
I have no answers. I have had muscle and skin biopsy and Emg and all normal.
My autoimmune been fine too.

Deb I have searches the Internet I don't see any one that has to my extent.
It's all over scal to feet. Inside my mouth. Tougue.
Sensory and motor.
Pins and needles buzzing vibrating sharp bee stings glass cutting razor blade like tearing burning fire. Some time like water dripping or patches of hot or cold.
Shooting is the worse when in toes and tips of fingers.
Shocks electrical like. And allodyina.
The I have cramps and spasms and severe twithig.
Cramps and spasms even in face and throat.
Muscle pull tight in Face and can stay tight for days.
Let's say my face starts vibrating he tight then pull then all sharp cuts and needles.
Spits shocks and twitches. This is all over all te time just fluctuating.

I can't undertake I am in so mug pain and no test picks it up.
I am so scared and lost. Deb what meda work for u.

My leg cramps make it hard to walk aduscle feel like they are torn.
Any help
Thanks
Posted 7/10/2011 6:15 PM (GMT 0)
Ok, first have you had your B12 level checked?  Also, you Vit D level?  Even your ferritin level can be an issue.  I was diagnosed beccause of my years of gluten intolerance and not knowing I had it.  It causes vitamin and mineral deficiencies, which in turn cause the neuropathy.  My neuro diagnosed me from elimination of other issues.  I had a brain MRI for MS, EMG's, and loads of blood work.  He does testing with pins, reflexes, watches you walk...he is very thorough.  I am never with him for less than 1/2 hour, sometimes 45 minutes...I just love this doc.

I too have had the cold spots, burning, buzzing, vibrations, pins and needles.  On some days, I can't stand clothes touching me, I call myself the "Princess and the Pea."  Small fiber is much harder to diagnose simply because there aren't really any good tests for it.

As long as I take my Vit B12 daily, I do pretty well.  I also have gluten ataxia, which if I get glutened, I lose my balance very easily.

Posted 7/10/2011 6:59 PM (GMT 0)
Deb did he ever do blood test for neuropathy. At Athena diagnostics they have special blood test for autoimmune neuropathy. They are called anti ganglioside and etc.. I haven't either yet.

I did have b12 with feritin. B12 was like 1000 and dot remember exact of ferritin but it was normal.
My d is like 9 so I am doing d3 drops.
I had gluten blood but it was normal soni ha stool test at Entrolab and it said gluten sensitivity and definite autoimmune reaction to gluten going on. But not exactly celiac disease.

Ok I just saw my b1 blood test done last year. It was 4.1 and normal range is 4.0 to 20.0 I think that's low but doc never said anything to me.

Other thing is I had 24 Hr urine test done and it was flagged as low.
But again doc says Dosent mean anything!! How can that be!!
My blood calcium always normal and So is potassium and magnesium.
My thyroids are normal too.

I can't understand te link to low calcium in urine?

Plus my sed rate is always elevated. Not super high.

Recent immunogloulins showed elevated Ige and iga.
But again doc Dosent know what to make of it.
As my ANA has been normal.

These are the only clues I have! No concrete answers
I had symptoms and then flu shot made them a million percent worse so neuro says looks like autoimmune.

What treatment are you doing deb. I don't have insurance right now other wise I wanted to try ivig.
Posted 7/10/2011 7:00 PM (GMT 0)
Deb did he ever do blood test for neuropathy. At Athena diagnostics they have special blood test for autoimmune neuropathy. They are called anti ganglioside and etc.. I haven't either yet.

I did have b12 with feritin. B12 was like 1000 and dot remember exact of ferritin but it was normal.
My d is like 9 so I am doing d3 drops.
I had gluten blood but it was normal soni ha stool test at Entrolab and it said gluten sensitivity and definite autoimmune reaction to gluten going on. But not exactly celiac disease.

Ok I just saw my b1 blood test done last year. It was 4.1 and normal range is 4.0 to 20.0 I think that's low but doc never said anything to me.

Other thing is I had 24 Hr urine test done and it was flagged as low.
But again doc says Dosent mean anything!! How can that be!!
My blood calcium always normal and So is potassium and magnesium.
My thyroids are normal too.

I can't understand te link to low calcium in urine?

Plus my sed rate is always elevated. Not super high.

Recent immunogloulins showed elevated Ige and iga.
But again doc Dosent know what to make of it.
As my ANA has been normal.

These are the only clues I have! No concrete answers
I had symptoms and then flu shot made them a million percent worse so neuro says looks like autoimmune.

What treatment are you doing deb. I don't have insurance right now other wise I wanted to try ivig.
Posted 7/10/2011 7:28 PM (GMT 0)
Yes, I have had the gangioside test done and it's always out of range, and my neuro does consider my neuropathy caused by an autoimmune disease.  I did a 24 hour urine test also, and they say my cortisol is ok...of course it was low or my PCP would not have wanted it tested to begin with.

Sometimes I have issues with blood work "normal ranges"...those ranges are normal for normal people, but what if you do not fit that normal zone? 

So, did you go gluten free?  Lots of people have great improvement when they go gluten free, and it has to be totally gluten free, not just a little.  It's not like diabetes where you can have a little sugar, absolutely no gluten.

I do not get flu shots.  My PCP said we will not worry about them until I am in my 60's or so.

Do you take B12 now?  A level of 1000, when taking B12 is just a reflection of what you take.  My B12 level was 1899 and my neuro said it's fine as long as it keeps me off of meds, which always make me very sick.

So, I take 5000mcg of B12, 5000IU of Vit D, and I walk every morning.  I also lost over 90# which helped so very much.

Posted 7/12/2011 10:22 AM (GMT 0)
Yep, get the buzzy feeling once in a blue moon in my legs and Sherrine, I'm getting the "wet feeling" on my leg/foot once in a while, too.
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