sick and tired of being sick and tired

hi.I am new.my name is anjuli.I am feeling many emotions. I have been trying to get a dx for five years now.prior to fibro and cfs dx I was super healthy. It was 5 yrs ago that my body went bonkers.leg pain in both legs was my first symptom followed by utter fatigue.then came gastro woes,all over pain,low sugar,anxiety. I am worried its more than fibro.I spend my days couchbound and in pain.I have seen many dre.any ideas would be great.thank you anjuli whose losing it

I use to think that I had other dx. too. It took many years to come to conclusion that it was fibromyalgia. I thought I had muscle diseases or lupus and many other ones. I think it's important to rule them all out. I have been frustrated this week because my fatigue and pain is bad. I am having to lay around myself. I understand what you are going through.

Dear Anjuli,

Unlike the previous posters, I am not satisfied that my diagnosis is fibro. I have also been diagnosed with PTSD, Chronic Sever Depression, Manic-Depression, Some Personality Disorder, Psycho Effective Disorder, Chemically Dependent, etc., etc., etc., Recently they are back to Fibro and Depression but "my shrink" says I can come talk with her but she does not see me as depressed and I have had three different psychiatrists and psychologists reject me for DBT because they have said I would add a lot to the group members but did not see how I would personally benefit from these groups. This is all from a medical community in Minnesota who balk at Multiple Chemical Sensitivity - I believe after talking with Docs at the NIH=National Insititue of Health that I have mastocystosis. I was just at Mayo and the spcialist there said that is impossible because it is so rare. I asked them then why my 10 year old son had melanoma - which I diagnosed first and they freaked when I insisted they take the mole off his head. They ate crow when they came back and said it was cancer. He is alive and well - thank goodness I dont take no for an answer.

I also diagnosed my moms chronic pancreatitis. Five years later a nd her only weighing in at 97 pds because she was afraid to eat they admitted they were wrong. I am no doctor but the treatment I have had from the medical community has robbed me of years, humiliated, degridated and one time almost even killed me because the doctor mixed the wrong anti depressants. Landed me with a heart attack and she claimed I tried to kill myself. Unlucky for her, my personal nurse who does not work for her practice had written her on 3 different occassions over 4 months questioning giving me these drugs together.

Keep fighting for yourself and if your gut says there is more, there probably is. Sadly, many doctors look for the easiest answer and the disease of the day is fibro. Docs and Rx companies make a lot of money these days off anti depressants and low and behold debression and fibro use these drugs as the drugs of choice.

Stay strong and trust your own instincts. Check your diet and other things such as perfumes, fragrances and other by products of oil in your food and environment that may be causing you problems. Thank goodness my family also does not believe that my problem is as simple as fibro. I have not been able to tie my own shoes for two years now without falling over because I have no more elasticity in my muscles. Funny thing was when I was on Interferon I felt better than I had felt in years. People on Interferon dont want to get out of bed. Those were the best 18 months of the last 13 years and they still want to say it was all psychological. Lets see - told I am going to die so I am happier and healthier than I had been in years. Finish chemo, told I am going to live so I decide a slow 9 year decline that has left me all but an invalid these days using a wheel chair and walker.

Sorry if I sound snide and sarcastic, I am just frustrated with a system that feeds to the drug companies and eascy diagnosis'. "our" fight to get fibro recognized as real has truly become a catch all and people continue to suffer because their doctors quit after the easy out.

I wish you the best and even though my post sounds bitter, I am hopeful that one day I will find a doctor who is willing to trek the long road with me and truly find out what is wrong with me. I have to. Last week I fell down the stairs and laid in the basement for two days before I got a signal on my stupid TMobile phone. Police had to break down my new door and get me off the floor. For me, "I have fallen and cant get up" is a reality that has happened way to many times. By the way, I am only 423 or 44. I cant remember anymore. LOL!!!

anjulip, I also have constant pain all over plus irritable bowel syndrome and migraines...I have been diagnosed with fibro (about 7 years ago), a process of ruling everthing else out. But I think the most bothersome is the chronic fatigue. I really have to force myself to do anything and after 4 pm the fibro fog and fatigue are particulary bad. Some say they have remissions but it seems to be constant with me. I feel so guilty for not keeping house better but every move is painful. A heating pad is a "have to have."

I to am new...I suffer from fibro..have had for 16 years. cfs,ibs,headaches, and hurt all over there is not a day that goes by that i do not hurt....I have had double knee replacements twice on both knees the only think i can do is swim...I am also so lucky to have a Dr. that believes in all of the above and has worked with me to try and find a med. that i can take...on top of all of this i also suffer from depression...I have been on the sofa for 3 days now...only thing that makes me get up and move is our 4 dogs...3 doxies and a brusell giffon mix... they have to be let out to potty and feed...so that helps a little bit.... 1st thing i would do is find a Dr. u can believe in...like some other members of this site i have a understanding family...my husband is a great guy he totally over everything....cooking, vaccuming, dusting, does the laundry, and grocery shopping...and never complains....he is my rock...maybe u can find a hobby that u can do on the sofa,,,i found quilting and x-stitching... sometimes my hands hurts so bad i can't do these things...but i look forward to days when i can quilt and x-stich....I also want to say I am so glad i found folks who have the same things i do and i can to talk to all of u...thanx...hope everyone has a good day...:)