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Posted 7/27/2011 10:18 AM (GMT 0)
I went for a sleep study last night and just got in. Luckily I don't have Sleep Apnea which I knew already but...The Tech said I do have Alpha Intrusion during my REM sleep. Do not know enough about this but Tech said he sees this in many Fibro patients. Explains why I'm so exhausted all the time! If anyone has any insight please let me know.
Posted 7/27/2011 1:50 PM (GMT 0)
I'm glad you had the study done, and hooray for no sleep apnea! I am waiting for my doctor to schedule a study for me. I'm nervous, but I need to know why I'm so exhausted as well.

It will be interesting to hear what they do for "Alpha Intrusion". I haven't heard of that before, but maybe I'm just not paying attention. Darn fog! Keep us posted.
Posted 7/27/2011 2:39 PM (GMT 0)
I was looking this morning for info but it looks like there isn't anything for it so it's finding medicine that will help me sleep. My problem is I'm so sensitive to meds and after 2/3 months I get immuned to them. I will NOT take Ambien or Zanax for sleep so we'll have to see. Between the Sleep Dr, my Prim and my Psych. I'm sure we'll figure something out. Fingers crossed! Not hopeful though. Good luck with your study. It wasn't bad. I just didn't like all the goop in my hair. I felt like Medusa with all the wires. I was nervous too but there really isn't anything to be nervous about. I knew I didn't have Sleep Apnea but the Sleep Dr. wanted to see what my Brain was doing. Apparently a lot! :)
Posted 7/27/2011 4:19 PM (GMT 0)
I know that people with fibro have a hard time getting into the REM sleep and that's when the body starts to heal itself.  Lack of sleep and not getting into the REM sleep can cause more pain.  Neat, huh?  mad

 

I don't take sleeping medications.  I put myself on a sleep schedule and go to bed the same time every night and get up around the same time every morning.  I never lay in my bed durning the day.  My body is now "trained" to know that when I go to bed I to to sleep.  I do keep a TV on when I first go to bed.  My husband got me in that habit.  But I'm asleep about 15 minutes later.

 

I do get up several times in the middle of the night but fall right back to sleep.  Sometimes I'll be asleep and then my eyes pop open for no reason!  LOL  But, then again, I go right back to sleep.  So you might want to try this.  I hope it works for you like it does for me.

 

Sherrine

Posted 7/27/2011 4:28 PM (GMT 0)
bubbaryn, have you tried Melatonin? It's a natural hormone that you can take in supplement form. I used to take .3 mg and it helped me with sleep quite a bit. Pills in the stores are usually between 1 mg and 5 mgs, but the studies for insomnia used .3 mg. You can get .3 mg by buying liquid melatonin - I use the Natrol brand - and using just a third of 1 mg dose. It might be worth trying.
Posted 7/27/2011 5:22 PM (GMT 0)
Thanks ladies for the replies. I can try the Melatonin I guess as long as it's not expensive.

Sher I do pretty much go to sleep around the same time and wake up the same time but doesn't help. :( It takes me about an hour to fall asleep from the depression/anxiety then I toss and turn all night. The only good thing is, I use to pee at night and at least I don't have to get up for that. :) When I do wake up from tossing I can go back to sleep usually right away but still toss and turn all night.

Fibro just gets more and more interesting. They better get more research going on this stuff before everyone has it!
Posted 7/27/2011 5:34 PM (GMT 0)
I get the liquid melatonin at Whole Foods and it's about $6 for a month and a half worth. It's a little hard to find locally for me, but you can order it off the internet too.
Posted 7/27/2011 10:53 PM (GMT 0)
At my sleep study I literally never fell asleep the entire night so not a lot to study! I take Zopiclone out of necessity. I have a strict sleep schedule and Melatonin, etc. do nothing for me. Due to my constant pain (herniated discks, etc. in addition to FMS) I find it so hard to get comfortable enough to fall and stay asleep. My doctor has just added Amitriptyline today. Hopefully that will help!
Posted 7/28/2011 1:55 AM (GMT 0)
It truly sucks what we have to go through. I can't remember a day where I had so much pep. I use to always want to be on the go and now I think, I have to get into the car. UGH! Between pain and fatigue is a vicious cycle. Fibro makes u feel like it's all in your head. I went 2 weeks with little pain and today was like BAM, "if you thought I was gone u're totally mistaken"! Why oh why do we have to go through this! I'm still trying to get a hold of all this. But I'm guessing we NEVER really do. One day at a time I guess!
Posted 7/28/2011 6:21 AM (GMT 0)
I have alpha intrusion too. I fall asleep and stay asleep most nights but I wake up unrefreshed. I appear to be sleeping but my brain doesn't cooperate.

I was worried after my sleep study because I thought I had a great night's sleep but they had to check if I was asleep because their machines said I wasn't.
Posted 7/28/2011 10:19 AM (GMT 0)
Isn't it amazing what those machines know? rolleyes I too fall right to sleep, get up several times a night and go right back to sleep, and wake up unrefreshed.  I also take 3mg.s of melatonin every night.
Posted 7/28/2011 4:05 PM (GMT 0)
I received this from the National Fibryomyalgia-Chronic Pain Association

"Sleep & FIbromyalgia" Webinar with Dr. Victor Rosenfeld Now Online

Sleep expert and researcher Dr. Victor Rosenfeld was our first "ask the Expert" guest on Tuesday, June 28. Dr. Rosenfeld spoke on "Sleep and Fibromyalgia" and answered questions from the participants ranging from causes of sleep disorders relating to fibromyalgia to treatment options during the 45-minute webinar. The webinar on "Sleep & Fibromyalgia" may be viewed on the NFMCPA's YouTube channel. Future webinar topics include yoga, nutrition, meditation, juvenile fibromyalgia, and genetics. NFMCPA's YouTube channel. Future webinar topics include yoga, nutrition, meditation, and genetics.

http://www.youtube.com/user/FMCPAWARE#p/u/3/o0g3Mvo7ypc

The webinar is uploaded in approx. 15-minute segments, so when you finish the first one you have to go to the right side of the page and look for the next segment (it picks up where the first one left off). It analyzes some sleep studies from fibro patients and shows the common intrusions to our sleep patterns and why we feel so unrefreshed upon waking.
Posted 7/28/2011 4:22 PM (GMT 0)
Thanks Crush!
Posted 7/28/2011 8:47 PM (GMT 0)
Do any of you remember having any kind of sleep disturbances in the past? All this 'sleep study' talk has reminded me of a time, in high school, when I would wake during REM sleep...that time when you are paralyzed. It happened so often that I became afraid to sleep, but overcame it at some point. I'm wondering if that has anything to do with me now. Interesting.
Posted 7/28/2011 8:48 PM (GMT 0)
Do any of you remember having any kind of sleep disturbances in the past? All this 'sleep study' talk has reminded me of a time, in high school, when I would wake during REM sleep...that time when you are paralyzed. It happened so often that I became afraid to sleep, but overcame it at some point. I'm wondering if that has anything to do with me now. Interesting.
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