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I had my sleep study last night

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Fibromyalgia
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Posted 8/29/2011 4:50 PM (GMT 0)
The sleep study was interesting. I had a very pleasant tech for it the room and bathroom were like a fancy hotel.
It was difficult to sleep with so many sensors attached to my body. The tech explained what each set of sensors would do as she put them on me. The sensors at the temples are for eye movement. There were about 8 sensors attached to my scalp. I had them near my shoulders and on my legs (the leg ones check for restless leg syndrome). A sensor was on a stretchy band that went around my chest above my breasts (that's for breathing and there's another sensor for the nose)
The thing for the nostrils was the most irritating. I woke up a few times during the night that I noticed but might not have noticed at home...probably noticed during the sleep study because of the stuff attached to me. One time I woke up with my left arm asleep, even though I was sleeping on my back (this is one of my weird symptoms of I-don't-know-what)

The bed was a Tempur Pedic. It was nice to try that out (and yes, even with a top of the line bed I still woke up this morning feeling like a truck ran over me, so I can't blame my bed for anything)

There was a camera in the room that the tech explained wasn't to film me, but so she could observe if I sat up or did anything in my sleep, then he would make a notation of it. I guess they have something like a night vision type viewer?

She said it will take 1-2 weeks to get results from my doctor.

She also said...and this is IMPORTANT TO NOTE if you even suspect any of your problems could be related to your sleep-- she said in her experience she's found that by the time people start suspecting their problem is due to poor sleep and they get checked out, they usually rank in the "Moderate" area of sleep disorders. So if you think you could be having sleep problems (and likely might be if you have muscle pain) then check into getting a sleep study done.

It didn't hurt, it was only uncomfortable sometimes, and heck it's only one night of my life.

I'll let you know what I find out.
Posted 8/29/2011 11:52 PM (GMT 0)
I'll be interested in hear what the results are.

My Rhmy has mentioned it to me a few times so I'm pretty sure it'll be on one of the to do lists at some point.

Sleep is something I don't get unless I use sleeping meds. I don't like taking them but we need sleep.

I try to not take them and I'm up off and on all night in pain, numbing or tingling, Oh and the twitching.

Hope it answers some questions for you.
Posted 8/30/2011 9:27 AM (GMT 0)
Look at my time stamp-insomnia...who me??? LOL

After 30 yrs of sleeping troubles, I now wear a sleep mask, take klonopin for PLMD and Seroquel to knock me out. BUT, any meds will alter the correct sequence and duration of sleep phases, so I am not sure some of us will ever get to total fatigue-free state. I STILL wake up with dread, knowing I have to drag my sorry old butt thru another day.

On the other hand, sleep mask is very diffivult to get used to, but my sleep does seem better and Klonopin has quieted my legs, so I hope you find some answers and snooze like a baby.

Maggie
Posted 8/30/2011 5:06 PM (GMT 0)
I just got my results from the Sleep Study Dr., even though I already knew. My tech told me when he was unhooking me what he saw. I didn't have the PLMD or RLS but what I did have were "Alpha Intrusions". So, here we go trying a different med, AGAIN! Does this ever stop for us? Hopefully you get answers with your sleep study!
Posted 8/30/2011 5:46 PM (GMT 0)
bubbaryn, I read about Alpha Intrusion. It's when the alpha brain waves intrude on the delta part of sleep, and apparently is very common in Fibromites. I kind of expect that diagnosis too
Posted 8/30/2011 5:50 PM (GMT 0)
bayoub2 I'm glad that is helping you even if somewhat...imagine what it would be like by now if you didn't have the mask! If better sleep will just help my mental processes, even that I would take. I feel very ditzy and forgetful these days and it causes me stress and relationship issues sometimes
Posted 8/31/2011 5:32 PM (GMT 0)
Having my c-pap machine has helped me very much. I had a sleep study done about 4 years ago. It takes a bit of time to get used to it, but now I don't sleep well without it anymore.
Posted 8/31/2011 10:55 PM (GMT 0)
applevenus - I hope the sleep study provides you with some answers.

My doctor sent out a referral for a sleep study a month ago and I'm waiting for them to call me back to make an appointment. In the meantime I'm trying out melatonin. Has anyone here had any success with it?
Posted 9/1/2011 1:09 AM (GMT 0)
applevenus I hope you get some answers I think you did alot better than I would have unless they allow you to have sleeping pills.

tara my hubby uses melatonin when he is having a hard time sleeping and it works for him.
Posted 9/1/2011 4:20 PM (GMT 0)
I had a sleep study done several months ago and I was worried about not being able to sleep so I took a sleeping pill and actually had one of my better nights sleep there. I called ahead and they said that it wouldn't really impact the study. The most important part is being able to get to sleep. Turns out that I do have moderate sleep apnea, 18 episodes an hour. I've been on CPAP ever since. I don't personally notice much of a difference, but I also am thinking that my sleepiness is due to adrenal fatigue and not my apnea. I am continuing to use the CPAP however, because it still isn't good for your body to stop breathing so many times a night. Even if I don't feel better from the treatment, lowering my risk of further health issues is still worth it to me. Good luck!
Posted 9/1/2011 6:33 PM (GMT 0)
I had one of these done 5 years ago and am going in for another next week.

They found that my brain waves kept going into a lighter stage of sleep due to "alpha intrusions" which is common in fibro.  You basically don't get into the deeper levels of sleep.  My test showed that my brain was technically awake hundreds of times through the night.  They labeled it chronic insomnia and I haven't found anything that helps.   They mentioned mild apnea for me as well.  I used the CPAP for 3 months I believe before I got annoyed that it wasn't helping my symptoms and stopped.

Posted 9/2/2011 3:24 AM (GMT 0)
Hey everyone,
I had my sleep study done a while ago now. I too have the 'Alpha Intrusions' which I hear is quite the feat for us Fibromites;p I woke up over 100 times throughout the test-night, so man does that not explain a lot?!

I was also told that I have sleep apnea, but funnily enough I was told this through my Rheumy who studied the sleep study notes, as opposed to the Doctor himself from the sleep study...huh??? My Rheumy said I better follow up with him about getting a CPAP machine, but now that I'm hearing the mixture of insomnia vs. apnea, I'm not sure I really want to. I've never been told I stop breathing through the night. I have been told, on occasion, that I snore...for ex. if I'm on my back, having allergy attacks, or am sick...and my hubby wakes me up!! *Usually it's the other way around, lol!!*.

Regardless, I hope and pray that they cure this darn disease. I'm so tired of being tired and in pain:( Don't get me wrong; my meds work QUITE well. However, it's after excessively stressful days that I notice my symptoms act up *yep, I have a stressful job*.

Cheers everyone;)
~V~
Posted 9/2/2011 5:24 PM (GMT 0)
According to the doctor in that video of a seminar at Stanford University, when they took a group of healthy people and disrupted their sleep several times a night, they had many of the same symptoms of Fibromyalgia, aches and pains all over the body, headaches. It does make sense if your brain and muscles are deprived of sleep and oxygen, they're going to cry out for help. Still waiting on my sleep study results.
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