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my rheumy doesnt believe in fibro

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Posted 8/29/2011 7:32 PM (GMT 0)
I was in for RA, my psychologisy is convinced, I told the rheumy that I suspected fibro. She says that its just another name for chronic pain. I asked her to run test to figure ot why I have the crippling fatigue and musce soreness. She says there is no test for fibro. I know that, let's run everything else it could be and see what pops. She says let's see what happens if you start lyerica. Instead of writng the script she sends a note to my psychiatrist to write it for her.
I can tell you right now she's not going to.
hate this.
Posted 8/29/2011 7:59 PM (GMT 0)
I hope you change DR's. I think your dr. needs to go back to school. I bet it was hard to listen and not get frustrated. There are many others DR's out there to help you. Good luck!
Posted 8/29/2011 8:05 PM (GMT 0)
Find a dr that listens to you because obviously this one doesn't. There are plenty other drs that will do that for you it can just be a matter of time before you find one that does. I was lucky to only need two drs, i hope you can get the same result.

Fiona
Posted 8/29/2011 8:28 PM (GMT 0)
I agree with both of your replys.
marilyn
Posted 8/29/2011 8:52 PM (GMT 0)
I'd start looking around too for a new rheumy. She should know it isn't uncommon to have both an autoimmune CTD and fibro.

Wishing you the best of luck. When calling around ask if the doctor treats fibromyalgia. Hope you can get answers soon.

Hugs, Robin
Posted 8/30/2011 12:16 AM (GMT 0)
Can we put the Rheumatologist on the psychiatric drugs?!?
Posted 8/31/2011 12:36 PM (GMT 0)
U can always tryp npopping something in her drinks llol
Posted 9/1/2011 2:41 AM (GMT 0)
 I agree. Hang in there and don't give up. But def switch dr's. With all the latest information any good rheum would at least have an open mind and hear you out.

hope for the best

yellwdaisy

Posted 9/1/2011 4:04 AM (GMT 0)
One more vote for finding a good doctor....one who's not afraid to treat you with respect and with the learning she got in med school. Sad to say that half of the doctors out there were in the bottom half of their graduating class. This gal must have held down the bottom spot quit handily...lol

Please do begin looking for a new doctor and medical team. If you need ideas, suggestions or encouragement, you sure know where to come for it all.

Chutz
Posted 9/1/2011 12:40 PM (GMT 0)
I would be concerned about a doctor who ignores current medical research, which is what she is doing. Also, if you have chronic pain and fatigue, it has to be cause by SOMETHING. It sounds like she is dismissing it as "all in your head."

Have you considered finding a new rheumy? You could start by calling around and asking them if they have experience treating fibro. At least that way, you would get someone who actually has knowledge of it and can give you a proper diagnosis.

Hugs - Austen
Posted 9/1/2011 9:04 PM (GMT 0)
One problem is that I live in central I'll and my insurance only covers two rheumys in an hour's drive all around. I've been seen by both. The other one wouldn't do anything and just saw me for a few moments every 6 months. No images, no pain management, no trying to figure out why my pain continued to increase and general swelling increased but the balloon sized jointed never happened.
this one at least lookes at what is going on, even if she wont give allowance for my other conditioned and see how they might tangle together. She startes on lyerica, so that might help, new even if she wont call it fibrous, maybe the painmanagement drive I see or my pcp will. My other option is to go 2 1/2 hours to Chicago for another rheumy. Not my idea of fun.
Posted 9/3/2011 1:49 AM (GMT 0)
Christina, I'm sorry you're having such a hard time with doctors. It really sounds like it might be worth the trip to Chicago though! I was just diagnosed yesterday, and given a care plan, and I don't have to go back for 6 months (my Rheum is about an hour from my house, and 40 minutes from my office). So if you only had to make the trip 2x's/year, that wouldn't be so bad.... and maybe you could make a mini vacation out of it, maybe even stay overnight?
Posted 9/4/2011 3:18 PM (GMT 0)
Christina, have you considered just going to a primary care doctor for help? I don't go to a rheumy. My doctor is my primary care doctor. He dx'd me and is very supportive and he is the first doctor that really listened to me about all my problems. Just a thought.
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