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has anyone heard of dercums disease?

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Fibromyalgia
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Posted 9/5/2011 6:35 AM (GMT 0)
hello to my fellow pain sufferers, I have been diagnosed with fibromyalgia for 15 years, but i have had worse symptoms lately with severe bone and muscle pain in my feet. I was wondering if anyone else has lumps beneath the surface of their skin throughout their entire body? very painful to the touch. I found this dercums disease and i was wondering if i have it? I hope im making sense, i am so tired right now. thanks for any replies.
Posted 9/5/2011 6:36 AM (GMT 0)
i forgot to say i also have the lumps im the bottom of my feet
Posted 9/5/2011 12:47 PM (GMT 0)
I have the lumps in my breast, neck, and other areas. I was tested for cancers and stuff but it was not.
Posted 9/5/2011 12:49 PM (GMT 0)
Here is a link I found about it. I hope this helps you.

http://dercumsociety.com/
Posted 9/5/2011 3:48 PM (GMT 0)
Hi. I don't have any answers for you on this but I do seem to recall that a member on the chronic pain board was looking into this very same disease. I'm sorry but I don't remember her screen name. Maybe you can post your question over there and she'll respond. I hope you get the answers you need very soon. Lee
Posted 9/6/2011 12:24 AM (GMT 0)
I have been having horrible pain in my feet also. It feels like the bones are broken. Then if I turn my foot the wrong way, I get a muscle spam. My pain is at evening time with my feet. I thought maybe it might be lack of calcium, so I am taking supplements. It does seem better at times. I take ibuprofen and it helps a lot. I don't have insurance, so I am trying to stay away from DR's until my Medicare kicks in. If you find out what causes your feet pain let me know.
Posted 9/6/2011 6:42 PM (GMT 0)
Hi I dont know if it's the same thing but i know that a lot of people with fibro me for one suffer from knots in the muscles and can be felt clearly when pressed they can be in any muscle in the body and really need to be massaged out to bring any kind of relief the knots or lumps can be come very painful if not stretched out and eased i know i feel as if i am in constant painful cramp My Hubby says he can feel these knots as he tries to massage them out !!

As for my feet i have suffered for at least 15yrs with what some call heel spurs (plantar faschities)

This can be a very painfull problem if not treated correctly even trying to stand can be painful I know this maybe nothing like what you have But i hope it helps and you feel better soon HUGS

                              love bluebell2 x

Posted 9/7/2011 7:47 PM (GMT 0)
@lilaly

I have Dercum's Disease. I was diagnosed with Fibro in 2000. Now I have these horrible lumps that hurt so bad! There is only one doctor that does any research on this and she is in San Diego, CA. You should go to mdjunction.com and do a
search for Dercum's. There is lots of information there and links that lead to more. I'm so sorry you have this! It is a rare disease and it's horrible!

-Captiva (first time posting here)
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