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So tired I want to cry

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Posted 9/28/2011 3:55 AM (GMT 0)
I am in that spot again I am not sleeping and am so tired I just want to sit down and cry. Which I will not do as I am at my volenteer job at the moment so I have decided it is time to go home. My headache is so badnit will not be long and I will be sick from it.

At least the women who runs the Museum understands my DD is in charge now so she rang her father to come and pick me up.

Time to have a nice dark room and no phone or anything to wake me if I get some sleep.

I hate this I really really bhate this I try not to let the lack of sleep get to me but then it seems to build up to the point where I go to bed and pass out for about 12 hours.

Almost like a comma they tell me as no one can wake me.

Look out bed here I come.

Kathy

FMS, CFS,IBS, MIGRAINE, MENAPAUSE AND HEAPS OF OTHERS I JUST CAN'T THINK RIGHT NOW.

Posted 9/28/2011 4:53 AM (GMT 0)
I think I would give up my volunteer job if your that tired. You probably don't know how to say no or slow down. I hope you can rest tonight. Do you work outside the home also?
Posted 9/28/2011 3:03 PM (GMT 0)
I'm so sorry. I find that sometimes a good cry relieves the pain in the muscles a lot. Just let it go, have a good decent cry if you want to. Maybe take a nice bubble bath or a bath with epsom salts in it, and just try to relax and give yourself some volunteer time for awhile. You deserve it!
Posted 9/28/2011 3:39 PM (GMT 0)
Hi Kathy,

I am sorry you are feeling so bad. I agree with the others. Some nice quiet time would do you good. I take adderall for fatigue, have you ever thought of that? It keeps me going throughout the day.

Best wishes my friend.

Hugs, Karen
Posted 9/28/2011 11:22 PM (GMT 0)
Hang in there Kathy, Honestly the only thing that helps my Fatigue is sleeping. Which I cannot do until I get like you. I just pass out everyonce in a while and sleep for a whole day. Im in the process of going on disability and really scared but I just cant tolerate the pain and fatigue and do my job anymore. I used Savella for 2 years and it really helped the faigue, pain and IBS but it gave me really bad headaches couldnt take the full dose. It also caused anger issues which I didnt know till work wrote me up and told me they thought it was the meds. Just wanted you to know you are not alone. I should not be on here, it is killing my soulders and arms but I just needed to talk to others with Fibro. feeling pretty useless lately. It has been a bad SUMMER for everyone I know with Fibro. Hope you get some GOOD sleep.
Posted 9/30/2011 7:03 AM (GMT 0)
I've learned to give in to the sleep and not get up until I feel completely rested. Then, it takes about 2 days for me to get on a normal schedule again. My husband said it reminded him of jet lag. Also, when I go through these long periods of sleep, I get concerned that I am undernourished and maybe dehydrated. So, on the good days, I really try to give my body some tlc. If you can stay home and sleep while your are in this faze, just go for it. I hope this helps you. Anne
Posted 9/30/2011 7:04 AM (GMT 0)
I've learned to give in to the sleep and not get up until I feel completely rested. Then, it takes about 2 days for me to get on a normal schedule again. My husband said it reminded him of jet lag. Also, when I go through these long periods of sleep, I get concerned that I am undernourished and maybe dehydrated. So, on the good days, I really try to give my body some tlc. If you can stay home and sleep while your are in this faze, just go for it. I hope this helps you. Anne
Posted 9/30/2011 10:58 AM (GMT 0)
I get the same way, minus the migraine, after I've worked too many days in a row. If I'm able to find work that staggers the days, I find I'm much more energetic and it gives my body a chance to recoup;) Perhaps you can try that with your volunteer days and if you're working part/full time:)

It really does sound like you're pushing yourself a little too hard, and that for us can be discouraging and disastrous!!! Please be a little selfish and say no sometimes or say 'I need additional breaks'. It's been hard for me because some of the people I work with can be intimidating when it comes to my condition, but I put on my backbone and say whatever needs to be said;)

Good luck:D
Posted 9/30/2011 7:55 PM (GMT 0)
Kathy I hope you have been able to sleep, I get like that as well. I find myself in tears when we have family functions because I try to please everyone and that can be a challenge. Is there anyway you can shorten your shifts or perhaps have a spot to sit and relax for a few minutes.
Posted 10/1/2011 12:58 AM (GMT 0)
Thank you everyone, I had a days sleep and feel much better, my sleep patten has gone back to 8 hours again so for the next two weeks I will be fine. As for takeing any drugs to help. Well as my GP tells me I am allergic to most of the drugs I would need to take so at present all I am on is Endep which is surpose to help me sleep and ease the pain, I have been on it for so many years I do not know if it helps or not.
Kathy
Posted 10/1/2011 2:14 AM (GMT 0)
So glad you found some reprieve. It is unreal how insomnia can cause such horrid problems! I often have those nights, too, of desperately trying to sleep but cannot due to pain. I cherish sleep so much that I practically weep with joy when I finally do succumb.

Hopefully you will have many restorative nights ahead!
Posted 10/2/2011 3:27 AM (GMT 0)
If sleeping is that much of a problem for you, that you rack up that kind of sleep deficit and fatigue, maybe your doc could put you on Trazodone. It's an antidepressant, non-habit-forming, but it's been a lifesaver for me. If it knocks you flat, just lower the dosage until you find what works for you.

Unless you're allergic to antidepressants, it's something you should look into. :)
Posted 10/2/2011 1:15 PM (GMT 0)
The same thing happens to me. Just can't get a good sleep, and still keeping a regular day-time schedule. I've learned to take benedryl by the second or third night in. Sometimes it helps, other times it just leaves me more tired. Sometimes the headache lasts longer then the insomnia...a month or so longer. The only relief from that was once, when going for an MRI, the doc gave me valium. I do not want to keep that drug around the house.
Posted 10/2/2011 6:20 PM (GMT 0)
Since sleep disorders are common in the fibro family we can definitely empathize with you. I used to battle the migraines a lot, too, but that has become more manageable for me. I know when I do get them all I want is that same dark room as you and to be left alone. I am so happy to hear you were able to get some sleep.

My insomnia has been quite elevated lately and with the sleep deprivation comes irritability and I don't like that at all. Let's hope we all get a good night's sleep tonight. In the meantime, I hope you're feeling better.

Hugs,
Vickie
Posted 10/2/2011 6:39 PM (GMT 0)
I hope you mean Fibro Hugs smilewinkgrin I seen someone last night that havent seen for a while and she huged me YEOWWWW! I love hugs but it brought tears to my eyes. Again I am thinking if I am on pain meds I can hug without pain. They are starting to sound better and better. Are there any that dont make you tired? The only prescription I have tried is Tramadol. It should not be taken with so many things it is not a good choice. Maybe when I have time I will start a Fibrop med topic. Everyone can list pros and cons of what they have taken. I have spent to much time on here this week but was homebound for days. Gotta get busy. Take care all.
Posted 10/4/2011 1:25 PM (GMT 0)
Trazadone helps me sleep.
Posted 10/5/2011 1:22 AM (GMT 0)
Trazadone has no effect on me, none of the meds help me sleep.
I hate people hugging me most of my friends ask me before they hug me, something I have found is if I know they are about to hug me I can control the level of pain it causes.
I know that makes no sense but it works.
I slept for 8 wonderful hours the night before last and 7 hours last night.
Kathy
Posted 10/5/2011 9:54 AM (GMT 0)
Hi Kathy, sorry to hear that your sleeping has been off. I'm also going through a rough patch right now so i can relate to how you are feeling. I hope u continue sleeping 7-8 hours like u managed last nights, hope it keeps up!

Fiona
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