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Fibromyalgia
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Posted 10/27/2011 1:22 AM (GMT 0)
I'm so sick of taking pills, all at different times o boy! i take synthroid before i eat, ciprelex after i eat and antibiotic for a new UTI, (1 two hrs after ciprlex and 1 two hours before bed.) then wellbutrin right before bed...it seems like all my doctor does is treat symptoms but not try and figure it out, and when he is interested in the symptoms together he always asks me what I think it is....he's the one that took 7 years of medical school... I have electric shock like pains that seem like neuropathic pains, Hashimoto's, Fibromyalgia, and the blood tests detected another autoimmune. I'm always tired, and my muscles aside from the electric shocks are sore/throbbing all over. since I've been started on the wellbutrin I rarely have eletric shock pains but when they do come they're bad. and Now Im having tightness and stabbing pain in my chest so bad I almost couldnt breathe, I went to the ER and they couldn't find anything. I felt like my heart would explode... :( a week before that I had what felt like a thunderbolt stabbing pain in my back I could hardly move, when my head leaned forward it hurt worse...I have tested positive for ANA,ENA, and have low iron and low potassium

The doctors are dumbfounded and so I'm going to see the doctor tomorrow at 1 but before that I'm wondering if any of you have any idea? tests he should run? what it might be? anything?
Posted 10/27/2011 8:26 AM (GMT 0)
I know that I get really bad chest pains like you describe - they told me it was most likely my fibro - the muscles in my chest wall spasming and causing me sharp pain. It seems the most likely explanation. I have a lot of stuff going on too and get sick of taking pills - always feel like there is another diagnosis coming and there usually is - for your morale I'm not sure what to tell you since I'm not sure what to tell myself sometimes other then to try to smile for what you do have going for you - its what I try to do. Sometimes I get bad back pains kinda like that too and I attribute them to fibro as well - as for the rest of what you describe - I have no idea. My main advice is if you aren't happy with the way your doc is treating you - just giving you more pills, keep looking for a doc until you find one that treats you the way you want to be. I think that's the one thing that I've learned pretty well since all this stuff has started. Just cause you get a degree doesn't mean you'll treat my illnesses the way I want. I don't want to go to the doc and just have them drug me up. Even if you go through a dozen doctors keep going til you find one that will really talk to you the way you want them to. I hope they figure things out!
Posted 10/27/2011 10:40 AM (GMT 0)
Hi avi2707,

Sorry to hear about your health issues. Is your doctor a rheumatologist? I see one. She's very knowledgeable about fibromyalgia. I think doctors overprescribe meds. What I would do is google your meds along with the words side effects and see if what you're experiencing is side effects from your medications. My rheumatologist told me that people with fibromyalgia are medication sensitive. I know I am.

The other thing that I would suggest is for you to see a good chiropractor who also understands fibromyalgia. I've been seeing mine off and on for years and he does help me in a big way. A couple months ago I was experiencing a sharp chest pain that was so bad it was hard to breathe. Thinking it might be heart attact symptoms I went to the doctor's and they did an EKG and prescribed an inhaler for my asthma. Inhalers have never helped me. I went to my chiropractor the next day and told him about my continuing chest pain, he checked me and said I had a rib in my chest that was out of alignment. Sure enough, he adjusted me in that area and the pain went away. Plus my breathing became easier. I recalled later I had lifted my 3 lb. weights in a different way (across my chest) before the pain came on.

All the best to you.
Posted 10/27/2011 11:01 AM (GMT 0)
Hi, Avi, and welcome!  A lot of what you are describing comes with fibromyalgia.  I am assuming that you have gone through a lot of testing to rule out other illnesses that have many of the same symptoms as fibro.  If so, then accept the diagnosis of fibro.

 

Now, they don't know what causes fibro so there is no particular medication to take to cure us.  All the doctors can do is give medication that helps ease the pain and symptoms...masking them but not curing them.  I think this is what is happening and it's not your doctor's fault. 

 

Become pro-active with your health.  Read everything you can and search the Internet.  Knowledge is power.  I'm in the process of trying to get my doctor to understand why I'm going to be trying some alternative things.  I agree with the members above that medication is overprescribed...in my humble opinion.  I hate taking medications but I have to for some of my illnesses.  But there are certain meds for fibro that I won't take.  I'm a stubborn old cuss!  I have an appointment today with my doctor to discuss other alternative things I found on line that I want to try but I also want to make sure they don't interact with the medications I do take.  That's always important to do.

 

I've used ibuprofen with food for 24 years to help with the pain but developed a bleeding ulcer so I can't take that anymore.  I also use extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 supplements for the pain and fatigue.  I do gentle stretching exercises, a have a daily gentle exercise (I walk daily and sometimes swim) and I have gentle massages once a month.  I wish I could have them more than once but can't afford them.  Chiropractics?  That caused me great pain.  I've read quite a few sites that tell you that this isn't suggested for fibromyalgia and some sites do BUT we do have a couple of members who do use it.  So, I guess it's up to  you.  I did try accupuncture and all it did was empty my wallet but it could work for you.  We are all so different.  What works for one doesn't necessarily work for another.  We have to hunt to see what help us.

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good links to start with are called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  You will also find the gentle stretching exercises and links about malic acid/magnesium supplements and vitamin D3 and how these work in your body in Fibro 101.  It's a good resource to use.

 

I'm looking forward to getting to know you better.  I hope you have a good doctor's appointment today, too.  Don't hesitate to ask us questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 10/27/2011 11:02 AM (GMT 0)
Hi Avi, like you, I hate all the meds, and it's far worst when your doc just appears to be pushing more without any really good explanation for why, and your symptoms persist or gets worse.

Prior too my Fibro DX, I was constantly in and out of the ER and doctor's office. I was experiencing all sorts of crazy symptoms, and was given all sorts of crazy diagnosis and meds by some docs, but didn't take most of the meds. Some of your symptoms are familiar, but, perhaps you should demand to see a specialist( Rheumatologist or Neurologist) who could better dx your symptoms. In order to DX Fibro, docs will rule out many other possible causes of your symptoms, and if they're satisfied with a Fibro dx, you will be treated for your symptoms at this time. There is no miracle drug for Fibro, and it's difficult to treat because many of us experience many of the same symptoms, but also many different symptoms that may exacerbate our fibro symptoms. Many of us feel every little pain that that non-fibro sufferers would not normally feel without a true cause.

Start documenting your symptoms on a daily basis, and request to be seen by a specialist. Also, dig into your family history for some possible answers to you symptoms. Hope you start to feel better soon.

Good Luck!
Posted 10/27/2011 2:11 PM (GMT 0)
Do you have trouble sleeping? Feel unrefreshed? Welbutrin has stimulant -like properties and is almost always taken in the am-just a thought. I get the chest pains, they are crippling and scary and hard to breath...I know now they are spasms..

Take care
Maggie
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