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Posted 11/10/2011 12:34 AM (GMT 0)
i am wondering if anyone can tell me if this sounds like fibromyalgia.  first of all, i have pain, sometimes severe, in my ankels, knees, hips, shoulders, wrists, neck and jaw.  i am always tired and have a very hard time staying asleep.  and i also have some memory problems.

  i started seeing a rhumeatoloigist a couple of years ago due to severe pain associated with soriotic arthritis.  come to find out i did not have soriotic arthritis, just herniated discs in my lower back.  had surgery in july of this year and still had pain.  then had an epideral in august.  oh, by the way the rhumeatoloigist said something about rhumeatoid arthritis.  i also have soriosis that i take Enbrel injections for.

  i have gone through physical therepy for my back surgery but had to stop cause the pain just got worse all over my body.  it almost feels like i have been in a bad car wreck,  the pain gets worse with any activity.

  any help would be greatly appreciated.  any questions just ask.  thanks, Brad

Posted 11/10/2011 2:07 AM (GMT 0)
dear iuecbra....i was dx with fibro 5yrs ago and I also ache in most of the places u mentioned, not the jaw or neck. I also was very tired and could not get a goo night sleep always disruptive. I had 2 disc surgeries pryor to all this other aching. Has your rhumeatologist done any testing? My pain also gets worse with any activity...this is very hard for me to take as i was always very active. Ask your rhumeatologist to test you and then she can get u on the proper meds..they do not completely take the pain away but it is much more tolerable. Hope this helps abit. Keep in touch.

Amy


fibro,chronic pain,mild depression and nerve pain
Posted 11/10/2011 2:07 AM (GMT 0)
dear iuecbra....i was dx with fibro 5yrs ago and I also ache in most of the places u mentioned, not the jaw or neck. I also was very tired and could not get a goo night sleep always disruptive. I had 2 disc surgeries pryor to all this other aching. Has your rhumeatologist done any testing? My pain also gets worse with any activity...this is very hard for me to take as i was always very active. Ask your rhumeatologist to test you and then she can get u on the proper meds..they do not completely take the pain away but it is much more tolerable. Hope this helps abit. Keep in touch.

Amy


fibro,chronic pain,mild depression and nerve pain
Posted 11/10/2011 7:38 AM (GMT 0)
Welcome iuecbra- fibro symptoms can fall under a lot of other diagnosis. What you described does sound like it might be fibro, but make sure you get a proper diagnosis. The pain and fatigue are usually on the top of people's fibro list. Sounds like you are doing some homework on fibro, so take what you learned to the Dr's. You will learn a great deal here.
Posted 11/10/2011 2:12 PM (GMT 0)
Make sure you're trying to stay as active as possible. I've been doing prescribed stretches twice a day since my injury. If I didn't I'd be hurting a lot more.

Good luck to you.
Posted 11/10/2011 2:21 PM (GMT 0)
when i eat the pain in the back of my neck gets so bad that i have to rest from chewing. i have had shooting pains in my left shin, hips and ankels especially when i lay down in bed. before finding out about fibro i thought that i may suffer from low tetesterone so i bought some over the counter supplements. worked for a few days but that is about it. the one thing that worries me is that the Enbrel i take makes my body take longer to heal. even a small scratch can take as long as 6 weeks to completely heal and disappear. so i guess i need to see my rhumetoloigist about this.
Posted 11/10/2011 2:25 PM (GMT 0)
iuecbrad,

I use to get severe neck pain as if a hachet was in the back of my neck. My chiropractor helped that issue but I still have to be careful. I was in a bad car wreck years ago. You can talk to chiropractors on the phone about your issues and/or go in for a free consultation.

Good luck to you.
Posted 11/10/2011 3:01 PM (GMT 0)
iuecbrad,

I used to get the shooting pains in my legs like that before the dr. got some of my meds straightened out. I still get them when in a flare. The best thing I've found that works for me is to get under a heated blanket and put a pillow under my knees I also take a muscle relaxer. I don't know if you have access to any but if not some ibprofen may help.

I have the same problem with wounds taking longer to heal. I don't know if this is common but I do know that my mom also has fibro and she is the same way.
Posted 11/10/2011 3:38 PM (GMT 0)
Hello and Welcome

Page 3 or 4.  List of symptom of fibro.  It will answer alot of ?'s about you, that you just did't understand.  Trust me I know things ache that shouldnt ache, mind comes and goes, sleep is non existent(fatigue even if you sleep for hours).  I feel your pain and confusion when they can't tell you exactly what is wrong with you. Try and enjoy your day.  Welcome again smilewinkgrin

Posted 11/10/2011 4:11 PM (GMT 0)
Hi, Brad, and welcome!  Yes,  you could have fibro but there are other illnesses that have those symptoms and these have to be ruled out first.  Your doctor should run you through a battery of tests to rule them out before a diagnosis of fibro is given.

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good links to start with are Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  You just might "see" yourself there.

 

Try moist heat for your neck and shoulders.  Many here have a Bed Buddy.  These can be found at Walgreen's and other places or you can make one by taking a tube sock, filling it 2/3's full of raw long grain rice, and tying a knot at the end.  Pop this in the microwave and it will give off moist heat due to the moisture in the rice.

 

Gentle massages might help with your neck, too.  Feel at the base of your skull.  I develop two knots on each side of my neck there and if I massage them and press on them to release the knot, it helps me.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

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