HealingWell
Search Close Search
☰

Vitamin D levels

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/6/2012 6:58 PM (GMT 0)
Well, I got my blood tests back and my vitamin D levels are low. Normal is 30-100, mine are 16.8. So my Dr is having me take 10,000mg of D3 for now. And will test again in a month.
Posted 1/6/2012 7:22 PM (GMT 0)
That's not unsusal, FibroWolf.  Many have low vitamin D levels and that will cause more pain and fatigue, too, so you might start feeling better when you get back in a more normal range. 

 

Even "normal" people can have low D levels because we wear sunscreen when out in the sun or we might live in a place without a lot of sunlight.  I live in Florida and still was low in D!  There is a link devoted to Vitamin D in Fibro 101. 

 

I take 5,500 IU a day.

 

I hope you start feeling better soon.

 

Sherrine

Posted 1/6/2012 8:08 PM (GMT 0)
that doesn't suprise me my levels were only 18 I don't know what they are now I am getting a physical again the eleventh
Posted 1/6/2012 11:16 PM (GMT 0)
nana68,
What did they do for you to raise your level?
Posted 1/7/2012 2:20 AM (GMT 0)
Just remember to re check your vitamin D levels. I was taking 50,000 units at one time for several months. My Dr. forgot to tell me to re check it and I didn't know to. Next thing I knew I had a kidney stone and my vitamin D level was 4 times the level they should of been. My kidney Dr. figured that out. A hard and expensive lession learned. I can tell a big difference with my Vitamin D level normal, especiallky with the depression and pain.
Posted 1/7/2012 7:08 AM (GMT 0)
Same here all. On a scale of 0-150 or 200 (can't remember), I was initially sitting at 47, then it went up to 49, currently it's at 52. I take ~4-5000iu/day and still think it needs to be upped:s

My husband and I were going to take a road-trip to South Carolina, Florida, Nevada and out to California for an entire month, and basically 'camp' wherever we could to help my levels *sigh*. However, a new bill was added on to our existing ones, and we had to ditch our road-trip for this winter *oh woe is me;p*. We're hoping to try again next year because this body LOVES the sunshine:D

Here's hoping that 2012 is a better year for all of us and our Vitamin D levels, LOL!
Posted 1/7/2012 4:54 PM (GMT 0)
ten thousand units per week is what they gave me but I was also eating alot of dairy.
Posted 1/7/2012 11:09 PM (GMT 0)
Mine was just below the low range level and I started taking 5,000 units daily. Just got retested and it's in the upper 1/3 of the normal level so I'm on track. I now take 5,000 about 3x/week.
Posted 1/8/2012 12:40 AM (GMT 0)
My doctor mentioned to me that low vitamin d levels are common even with people who don't have fibro in the northern part of the country (who wants to be outside in 20 degree weather) I take d3 suppliments, go to the tanning bed once a week (yes I know its bad but I always feel so much better after just 10 minutes) and try to get outside whenever I can.
Posted 1/8/2012 2:20 AM (GMT 0)
I posted about a study I read about on how to calculate what you need to add based on your vitamin D level.  It was something like 100 units D for every 10 you are low.

My level was about like yours.  I take 2000 units twice a day unless I'm working in the sun.  then I skip the afternoon dose. 

Some doctors have patients taking 5000 units or 10,000 until the blood level comes up.  I would follow doctor's orders.  It's usually for a short term or not daily dosing, then the amount goes down.

It has been shown, according to that study, that 10,000 units a day over a long time can lead to toxicity, as was mentioned by ak angel.

I got my husband to start taking 2000 units of D most days.  He used to get large brown spots on his legs, iron deposits left from bruising.  In a couple of weeks the spots went away!

According to other reports, although I haven't read any scientific studies, Vitamin K, boron, zinc and magnesium are also needed in order to use D. 

Posted 1/10/2012 8:53 PM (GMT 0)
So, I have been taking 10,000 mg D3 every day since Friday and my pain has decreased significantly!

I am also on Savella, started that about a month ago. I am starting to have periods of time where I am sweating, and dont like that at all. Still taking oxycodone, which also works better since starting the D3, I need half as much.

I have been researching low vit. D and even migraines are linked to low vit. D. I wonder if I should just be on the D3 and not the Savella.

Im hoping for the best and that I will have an easy road out of pain hell. But realisticly, this could just be one of those times where it is a lull in the pain and just a coincidence for the timing.
Posted 1/10/2012 9:23 PM (GMT 0)
When My D was first tested, I was at 12. It took almost two years to normalize it. I was on prescription strength, 50,000 units a week and the Dr upped it to 150,000 a week, I know, sounds unbelievable, but she couldn't get my D to normalize (this was over a period of two years). They thought I had a problem with malabsorption and so I had a colonscopy and endoscopy and everything was fine. In the meantime, I weaned off of several prescription medications. I have no idea if that was the problem or what, all I know is it finally rose to an acceptable level, and now I take OTC 2,000 a day and it's been fine for over a year...
✚ New Topic ✚ Reply