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Update... I dont have fibro but...

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Posted 1/12/2012 2:59 PM (GMT 0)
instead they are positive I have either lupus or MS. Right now fibro doesnt sound so bad.

Apparently my ANA panel that was 1:640 in August jumped to 1:5300 (or something close) in december. So, now after they pieced all of my symptoms together they are leaning towards MS.

Back on effexor even though it makes me nauseated, trying ambien although i sat wide awake after taking 10 mg last night. Have 3 MRI's scheduled and a spinal tap.

I guess i just want to tell all of you to get your ANA checked, I know many already do, as it sometimes takes time for it to pop up and show its ugly little head.

I will still be in here reading and adding my no cents worth!! Because in the end, I was diagnosed with fibro and still believe to some extent that I have it with whatever else that is in me.
Posted 1/12/2012 3:03 PM (GMT 0)
my ANA has never been positive,, always less then 1-80,, maybe they dont look hard enough,, I dont know how I can be so sick and never have a fever,, my arms lock up,, trouble walking,, salivary glands are rotting away,, and no one can help me,, I am so desperate,, I wake up and stand at tehsink trying to clear that goo away,, it all drains in the morning,fingers numb,, verything a mess, I truely feel like i;m dying a slow painfull death, i hope you find answers,, never come to pittsburgh looking for any,, you will end up dead,,
Posted 1/12/2012 4:01 PM (GMT 0)
Angela,

Not what you wanted to hear! :( Well, you're not keeping it bottled up inside, and that's good. You haven't lost your sense of humor, either! We are all here for you, whatever "it" turns out to be, so keep us informed. I hope the drugs' bad effects start wearing off soon.

Thanks for the ANA warning. I'm not actually sure if I've ever had that checked...problably, will have to go back and look at records. Very important.

When are those procedures scheduled?

Debbie
Posted 1/12/2012 4:52 PM (GMT 0)
My ANA has been positive twice and negative twice. Have had positives for 3 other auto-immune markers but then negative too... my drs say to just wait, that at some point they will stay positive and we will have more info or they will stay negative... have direct relatives with many auto-immune issues...

Have you read the great book: The Autoimmune Connection: Essential Information for Women on Diagnosis, Treatment, and Getting on with Your Life - by Rita Baron-Faust and Jill P. Buyon, M.D. This book has so much info and there is also a chapter on fibromyalgia... it covers groups/clusters of auto-immune diseases to watch for, etc.... highly recommended....
Posted 1/12/2012 5:16 PM (GMT 0)
No matter what it is...I found that you live with it all the same way...one day at a time. I have fibro with an overlap of autoimmune diseases.

Live life and enjoy...that is what it is all about :) Hang on to your positive attitude and you will be OK.

Hugs, Robin
Posted 1/12/2012 7:45 PM (GMT 0)
I'm sorry to hear this but at least you are getting to the bottom of the problem.  There are good medications that can keep this under control, if you have MS.  That's a real blessing, too!

 

Robin is absolutely correct.  We are very adaptable.  No matter what life throws at us, we can work around it and still have a good, enjoyable life in spite of all the issues.  You will too. 

 

Even though you might have MS, keep posting here.  We have many of the same illnesses and we all know you, too!  The fibro forum isn't just for fibro...it's for anyone that needs a helping hand or a shoulder to cry on. 

 

Let us know what you do find out because we really do care about you. 

 

Sherrine

Posted 1/13/2012 5:57 AM (GMT 0)
I agree with Sherrine. The fibro family has long, strong, loving arms and we're ready to wrap them around whomever needs the support. Hugs are headed your way!
Posted 1/13/2012 9:53 AM (GMT 0)
I hope you Find your diagnosis. We are here to support you no matter what your diagnosis is. Sending hugs to you. Let us know.
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