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Posted 1/17/2012 10:11 PM (GMT 0)
I was diagnosed with fibro in 2004. I have moved to a new city and trying to find a dr who will listen is not easy. My dr finally said yesterday if savella, lyrica, and cymbalta didn't work then there is nothing else we can do. After telling him I can't sleep and the pain is out of control I need something more than 2mg of tizandine and melaxicam he said well let's try savella again and it will help u sleep (NOT). Anyways he is going to send me to a pain doctor so we will see how that goes. So I said well I don't mind trying it again but I know savella takes a while to get into your system and who knows when I can get into the pain dr so what do I do until then. His response was well savella will work. I felt like he wasn't even listening to me and it was very frustrating. So that's when I came home and looked for a forum to vent wink Thanks for listening to me vent. It does help to know others are going thru the same thing and what they do to help.
Posted 1/17/2012 10:39 PM (GMT 0)
Hi Chelle- welcome :)
It's so frustrating trying to find Dr's who understand. It's easy for them to say things like that when they aren't the one dealing with it.
I'm glad you found this forum. i just joined a few months ago and I love it!
It's been really great having people who understand in ways a Dr can't.
I wish I had more advice for you, but I'm currently playing the whole Dr game myself :/ Long story.... but you get it :)
Hopefully coming here at least helps you by talking to people who understand.
I wish you the best!
Posted 1/17/2012 11:10 PM (GMT 0)
Hi, Chelle. Welcome! Check out "Fibro 101," at the top of the thread list. There are lots of things you can do to help turn the pain down (not off - unfortunately!) Some will help you and some won't, because no two bodies are the same.

Did you have a good doctor before you moved?

And when is your appt with a pain doctor?

Debbie
Posted 1/17/2012 11:20 PM (GMT 0)
Hi Chelle,

I'm new here too and just learning the ropes, but I want to give you a big welcome. I have no suggestions for pain as that is not a significant problem for me generally.

I hope you find a good doctor soon.
Posted 1/17/2012 11:33 PM (GMT 0)
Thanks for the welcome!!!Unfortunately the best doctors ive dealt with was at Scott and White hospital when I went there last year. They really listened to me. However they don't continue being your doctor they let your local Dr take over after they have seen you. I don't know when I meet with the pain management Dr. They will make an appointment and let me know.when it is. I did look up Dr in my area and there is a fibro Dr about 2hours away. If I have to drive to find a great Dr I will. Even my husband said after the Dr appointment I think that Dr is scared to give u medicine. I do know that God is in control sometimes its just hard to keep that in mind. I'm just praying that God will help me find the right Dr for me.
Posted 1/18/2012 12:25 AM (GMT 0)
New doctor-patient interactions are tough. I am sure some doctors fear that they are dealing with an addict, especially if you know a lot of names of meds and tell the doctor what you want or need. That probably raises a red flag.
I went through that when I was trying to get a med to stop the vomiting with migraines, and nothing was working. They didn't give me what had worked before and were trying meds that I knew were not strong enough as my vomiting issues are severe, and I've had many years of experience with them!
On another note, my youngest son is a research and development chemist at a big pharma and he won't take so much as an aspirin for a pulled muscle or a headache. All meds have side-effects that are sometimes worse than the problem they are intended to treat. And of course, there are the mega lawsuits, one right after another, which is why big pharma is in trouble and looking for innovative solutions in genetics and stem cells.
Posted 1/18/2012 12:36 AM (GMT 0)
hi Chelle! I just wanted to welcome you to the forum.
I wish for you a speedy appointment to the pain doc and that you find something that will help you. I find it so frustrating... I've recently gone to the doctor too for relief and there just isn't anything out there that will help or that I want to try at this point. I used to believe when I was younger that if you went to the doctor, they made it all better. What a wake up call.
Posted 1/18/2012 1:33 PM (GMT 0)
Hi, Chelle, and welcome!  I'm so glad you found us and joined the family.  You have gotten wonderful responses from everyone so I really don't have much to add.  THAT is a rarity!  tongue

I use malic acid/magnesium supplements, vitamin D3 supplements, and natural product called Curamin, and extra strength Tylenol to help with pain and fatigue.  I also take 2.5 mg of Vicodin to help take the edge off the pain, too, when it's really bad.  Debbie directed you to Fibro 101...the second thread on the forum..and you should read that because there is a ton of info about fibro in there.  There are links about the malic acid and vitamin D and how they work in the body, too. 

 

You do need to keep moving with fibro.  If you sit or lay too much, you will be stiff as a board and have more pain.  I do gentle stretching exercises (on Fibro 101), I walk daily as my gentle exercise (swimming and yoga are other good exercises for fibro), and I pace myself.  All of this helps me be in control of the pain.

 

The pain specialist will be able to help you.  Many doctors are hesitant to prescribe heavier medications.  You just might find, if you try malic acid/magnesium and vitamin D3, that you don't need a pain doctor.  Quite a few members have gotten good results with these supplements.  Your doctor can check your vitamin D levels with blood work.  I was very low and I live in sunny Florida!

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 1/22/2012 3:46 AM (GMT 0)
Well I called my Dr and asked for him to refer me to the fibro Dr. They said that they would and then later left me a message needing to talk to me about the referral. I called them back twice and they didn't return my call. Anyway I got a new patient packet from a different pain Management clinic. The only thing is I tried to go to this clinic months.ago and they rejected me. That was their words "we have rejected you and let me get your records out of the rejection file." Long story short they lost my records. I informed them that I would be returning back to their clinic tomorrow and they better have my records. The next day they found them. Anyways they acted real fishy the whole time. So this is my dilemma I don't want to go to them when they rejected me months ago. So I'm calling my Dr Monday and ask if he will refer me to the fibro Dr.
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