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How do you get over the fear of fibro??

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Posted 1/23/2012 10:34 PM (GMT 0)
This disease does so many things, every time i get a new weirdness, I get panicked and scared is it fibro is it not, do I need medical care... is this the end...

My fibro does not give me constant pain. I get weird skin sensations, hot flashes, cold feet, things like that. So when something else strange happens I get really scared. Its hard for me to even except fibro as I red the book they told me to read and she said you will relate and I do not. A little but not a lot so its hard for me to let go of them missing something. Fibro and what else.... I can accept the diagnosis but I feel like something else might be happening too...
Posted 1/23/2012 11:06 PM (GMT 0)
I wish I knew that answer
I have chronic vertigo and am all alone with my little dog
and I am terrified of it.....
mine comes from menieres and neck problems
along with fibro....
Posted 1/23/2012 11:37 PM (GMT 0)
I understand how you are feeling. I felt the same exact way when I was diagnosed almost 10 years ago. There are still times when I question if I need to seek medical attention or if this is just another symptom from the fibro. Hang in there. Things will get easier. The more knowledge you have the better.
Posted 1/23/2012 11:38 PM (GMT 0)
Yes, Fibro comes with so many related issues. It's hard not to hide under the bed sometimes when the 'what next' feeling becomes overwhelming. I try to stay in the present moment and count the things I do have like a warm bed, a roof over my head and good food. Still somewhere there is fear about the future lurking about.

I keep going back to the present moment. One day at a time, sometimes one hour at a time. wink
Posted 1/23/2012 11:44 PM (GMT 0)
I stay in the moment too. The "what ifs" will drive you crazy. Stay in the moment. Don't let the anxiety ge3t the best of you. If something is really bothersome, do talk to the doctor. There is always the possiblilty that there is something else going on. But once I get use to a symptom, I generally try to over look it. It isn't always easy though.

All you can really do is take one day at a time. That is the lesson I learned from fibro. Because that is all I oculd do. Keep trying. Don't give up.

Hugs, Karen
Posted 1/24/2012 4:49 AM (GMT 0)
I constantly question myself is this new symptom fibro or something else too. I blame everything on fibro as I am becoming more and more crippled. But what if a symptom isn't fibro and I let it go like a heart attack, stroke or whatever. Today I tried to go shopping with my husband and it was freezing out with snow on the ground and I could barely make it across the parking lot to get a cart to push and hold on to. I had been doing better but I spend three days in bed with a horrible cold, sore throat and today I can hardly walk so I guess I will have to take something for pain tonight. Anyway, there are days when I do let the fear of getting worse overwhelm me and then I have to talk to myself and take it one day at a time. I hate this illness but I believe their is a plan for my life and for whatever reason I have to accept life as it is at this moment.
Posted 1/24/2012 4:23 PM (GMT 0)
I have to agree with Karen...the  "what ifs" will drive you crazy. You just can't spend time thinking about "those things." Unfortunately, with fibro comes anxiety for many. A lot of positive self talk helps when you start worrying. If you are overwhelmed...talk to your doc.

Taking one day at a time does work and remember..."Don't borrow trouble." yeah

Hugs, Robin smilewinkgrin

Posted 1/24/2012 5:27 PM (GMT 0)
My fiancee labels me the google queen. Everytime something new is going on I type in the symptom and fibro and everytime there is someone else with fibro suffering with the same thing (ex last night I had a non stop urge to urinate) I have learned to give it a few days and then if it doesn't go away to bring it up to my doctor.

As everyone else has mentioned you can't let anxiety get the best of you.
Posted 1/24/2012 8:34 PM (GMT 0)
Anxiety...pure and simple, in my estimation.  Try not to focus on how you feel.  Instead focus on having a good day, accomplishing your goals for the day, etc.  I think you will find many of these symptoms will fade away when you are busy. 

 

I suffered with anxiety but have now learned to recognize it.  FEAR!  We don't have anything to be afraid of.  Fibro isn't terminal...just frustrating and painful.  Check out the scripture I put in my signature.  This has helped me a lot over the years.

 

Sherrine

Posted 1/25/2012 2:27 PM (GMT 0)
I can definately relate to the fear. It is so hard to try to think ahead and plan any future. The "what ifs" like to reach out and grab you close then. "what if" I can't do that... "what if" I get worse by then... ????? I would like to do a short 18 month training program and finding a job, since my toddler will be old enough for grandma to handle by then... but it is scaring me to death. I can't get thru all my laundry and chores... how can I leave the house each day and put forth more energy???

Then I realize, someone... somewhere... is doing the exact same thing that I am right now.. and they have stronger issues to deal with. It makes me take a deep breath and decide that others are dealing with far more than me, and getting on with life at the same time... that helps pull my head out of the fear some.
Posted 1/25/2012 7:55 PM (GMT 0)
I too suffer with the anxiety. We have to just take it one day at a time..it might be a good day...hip hip hurrayy!!! enjoy it, get things accomplished, maybe even feel like me again..and then...here comes tomorrow..in bed..or barely putzin around the house..

I'm tired of worrying about this...what I've learned from my experiences is just what has already been posted.. try not to think about the what ifs, focus on the good things, the blessings..turn to your faith or something to get your mind off of it.. easier said than done, trust me I know...I am just recently coming out of a huge pity party..but there were two key words there..coming out...I made it...and you will too..

this is our battle...and we will win!!! we encourage each other, pray for each other, validate what we are going through...

I love this forum, you all remind me that I'm not crazy and I will survive this..and you will tooooo!

Jerrie
Posted 1/25/2012 9:03 PM (GMT 0)
Its hard to not feel fear when our bodies are doing what they please andnot what we want them to do, I have screamed at teh top of myluncgs when I do something that causes painanywhere on my body,, I was trying again today to put some tile down,, I saw blood on the tile,,blood on my shirt, and realized I had cut my finger again with a razor knife and didnt feel it, I try to forget these things,, but there happening over and over again, I have a hard time pushing the button down to get shaving cream out of the can, and shaving is a adventure,, lot of cuts from hands that dont work,
I do have small fiber neuropathy, but have also been told I have fibro,, and somotoform disorder,, so where dones one end and anotehr begins,,
if things pass for you,, then be happy,, if not,,then try writing down all the negatives,, read tehm and then burn them
Posted 1/25/2012 11:10 PM (GMT 0)
Kay....I like many of the others know exactly what you are going through. I have not much to add as so many members have giving you wonderful advice. Best advice I have read and I truely agree with is don't let the what ifs drive you crazy take one day at a time. Take care of you have a nice bubble bath light some candles grab a good book, try and relax.

Take care, Amy
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