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Posted 1/26/2012 6:24 PM (GMT 0)
Hi all. I haven't been here in a while, but I always know that when my fibro really causes me to struggle I have a place to go where people understand.

I seem to be going through a very awful time of extreme tiredness. I can't seem to get anything accomplished. I sleep all night, and take naps during the day. I know pain is something we always have to deal with, but do others here have a lot of trouble with being tired all the time? My husband asks me what I do all day, and I just get the bare minimum done to keep the house in order. This is really starting to get to me - like my life is passing me by.
Posted 1/26/2012 7:03 PM (GMT 0)
I take prescription sleep medication. otherwise I do not sleep well, move around a lot, and twist and turn, and wake up and doze. I then am tired and low-energy all day.

With the sleeping pill, I sleep well, usually. This enables me to do what I need to do, with a lot of planning and breaks. I do not usually take naps, due to time issues as well wanting to try to solidify my sleeping schedule. But I do rest periodically.
Posted 1/26/2012 7:22 PM (GMT 0)
Hi Myjoy! good to see you but sorry that you are feeling ehausted.

Fibromites have to be especially aware of maintaining a good diet or make sure we are getting the proper nutrients we need. We're prone to stress and stress will put a drain on our body. I take a good multi-vitamin along with B-12 and D3. You might be deficient in the nutrients you need maintain energy.

Stress can change our metabolism and really affect how we feel. Personally, I know my fatigue level will increase, no matter how much sleep I get when I'm feeling stressed.

Exercise, an added walk during the day will sometimes boost my energy.
Hope you can get your energy level up...our diet is so important and we need all the help we can get :)

Hugs, Robin
Posted 1/26/2012 8:05 PM (GMT 0)
Just curious if you've had your iron levels checked lately. I always suffer from fatigue with my fibro, but I went through a period where I could hardly drag myself out of bed or off the couch. It turned out that I was pretty anemic. After a time period with iron supplements, I was feeling somewhat better (still fatigued, but better).
Posted 1/27/2012 12:38 PM (GMT 0)
I agree with Austen.  I became extremely exhausted this summer and it turned out that I was quite anemic, too.  Iron supplement took care of that for me.

 

Sherrine

Posted 1/27/2012 2:41 PM (GMT 0)
Hi there,

Many people don't like to take stimulants, but I take vyvanse and it keeps me out of bed. Just wanted to share that information with you.

Hugs, Karen
Posted 1/27/2012 3:05 PM (GMT 0)
myjoy,

I went through that crashing fatigue for about 3 years. One day, it just departed. I have no idea whence it came or whence it departed ;)

Seriously, there might be something in your environment you are reacting to.
Check indoor heating. Could there be outgassing? Cooking source. (Gas? Any leaking?)
Check home for mold.
We lived in a condo that had low grading outside and always smelled moldy.
I was so sick the whole time we lived there over 2 years and didn't start to feel better until 6 months after we left there.
Mold is sinister cause of illness, and I do think Fibromites, who are sensitive to so many things, react badly to mold.

(I cannot even EAT any fermented foods and foods derived from molds without issues.)

Dust allergy -- even outdoor allergies can cause extreme fatigue.

There is an overlap between Fibro and CFIDS.
You could also have some viral reactivation thing going on.
Have you been over to the CFIDS forum?
Posted 1/27/2012 4:35 PM (GMT 0)
when your body is constantly fighting pain something has to give and that usually is the immune system, were a finely tuned machine,, and once one of the parts starts to mess up,, it just snowballs downhill from tehre I wish I had more to offer but for me if I dont talk myself down at least 100 times a day i;ll sit and remember everything thats going on and its not pretty, I quit asking God why, I never got a answer ,, and since I didnt get a answer from teh medical community, well what are we to do, except to live as best we can
Posted 1/30/2012 6:01 PM (GMT 0)
Thanks, everyone, for your ideas. I've lived in 3 different homes in 5yrs, so I don't think it's anything in my house. I have struggled with this the whole time I've had fibro. I am having some blood work done in March, so we will see if anything shows up. Thanks for listening.
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