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Posted 3/16/2012 7:57 PM (GMT 0)
Being on medications for fibro, has always made me feel worse. I t may be due to my IBS. As my doctor puts it, my body cannot tolerate it! And I seem to have the same problem with vitamins. I have had 6 colon polyps removed within 2 years, and meds never sit well in my stomach. Same thing with tablet form vitamins, but I can tolerate liquid form vitamins. Any suggestions on what vitamins will help in relieving fibro pain and fatigue?? Thank you for your input... :-)
Posted 3/16/2012 9:11 PM (GMT 0)
lexus, do you have anything more going on than just IBS? (not that that is not enough ;) I have celiac disease, and have to be on a gluten free diet and have a few other food sensitvities.)

My husband has many food issues. He can't have anything with a corn product and preservatives and high salicylates make him very ill.) You probably would have better luck finding the vitamins and supplements at a local health food store. (I have to be so careful not to have gluten and the other things my husband can't have.)

If you have a certain food you have to avoid, it is possible that it is used as a binder in your Rx medications.
Posted 3/16/2012 10:29 PM (GMT 0)
IBS and gerd that I was told about. My blood tests were all normal. I have had several colonoscopies and upper endoscopies...both with biopsies. How is celiac disease determined? I do, have food senitivities. I cannot tolerate certain foods...no dairy for sure, and no eggs or cheese. there are probably more that I am not aware of???? I did bring this to the attention of my gastro, and she said.....ohhh...hmmm??? Strange. What that means... not quite sure. I have also had tiny stones removed from my gallbladder. I have had impacted stool issues within the past 2 years. I'm always constipated...taking miralax and metamucil.
Posted 3/16/2012 10:36 PM (GMT 0)
Lexus, celiac disease can be tested via blood.......confirmed with biopsies. The problem is that the test are not always accurate. ;( Why is that so often the case anymore????

You can also be gluten sensitive without having full celiac disease. (you can't eat wheat, barley or rye.)

Grains need to be guaranteed gluten free ( such as oats and corn meals) because they use the same millstones to grind as on the wheat, barley or rye.

Are you sure that the medications you are concerned with including all vitamins contain non of those food allergies that you listed?

Reading into the bowel issues you mentioned, you might want to investigate celiac disease. Many drs. still look at celiac disease as rare and it is not. 1 out of 133 people have it.
Posted 3/16/2012 11:41 PM (GMT 0)
Can Celiac disease cause fibromyalgia symptoms? I know it can defintely cause nauseau. But the aching body???? But I always seem to get even more nauseus after eating...maybe because i am eating something I should not be eating. . Chinese food will have me feeling like i am suffering from a hangover the next day. I rarely ever drink, but if i do have a few beers...it takes me 2 days to recover. Do u deal with any of these symptoms? I also have anxiety, and sometimes... i feel that it stems from my stomach issues, but from what i have heard... stomach isues cause the anxiety. By the way, you have been super helpful. I appreciate your input and advice so very much!!! Thnx! :)
Posted 3/17/2012 12:49 AM (GMT 0)
Lexus, gluten can give you a foggy brain, it can give you a lot of the same as fibro symptoms. Many with celiac also have fibro.

Chinese soy can either be made from corn or from wheat. (I used to get so sick at my stomach sometimes at certain Chinese food places........now I know it was wheat based soy sauce and the noodles)

I used to get so sick off of an ice cream cone in the summer, I thought that it was the dairy, it was the cone. ;(

You might want to look it up on the web. You might see yourself in the description. (remember you can be a gluten sensitive and not have full blown celiac. They present the same, yet are 2 different things.)
Posted 3/17/2012 11:48 AM (GMT 0)
Hi,

I heard from my rheumatologist that people with fibro are generally sensitive to medications. I know I am. I take Buried Treasure liquid supplements. They're more expensive so I buy them from a website that sells supplements.

Good luck to you.

Posted 3/17/2012 12:05 PM (GMT 0)
I use malic acid/magnesium supplements and vitamin D3 supplements for pain and fatigue.  I get these at Puritan.com and I'm quite sure none have gluten, etc. in them.  You can enlarge the label on the site and see exactly what is in them.

 

I also use a product called Curamin.  This really does help with pain.  It has won awards for the best pain reliever in alternative medication.  It has no gluten, wheat, etc. in it but it does have soy.

Sherrine 

Posted 3/17/2012 1:49 PM (GMT 0)
I did look up Celiaac disease on the web, and yes many of the symptoms are similar to fibromyalgia. I also searced are colo9n polyps common in patients with Celiac disease? And ....they are. My gastro was shocked that at the age of 38 that I have had 6 colon polyps remoived. She says it is hereditary, but nobody in my fmily has a history of colon polyps. I have already started to cut certan things out of my diet, such as wheat bread...my favorite, cereals, pastas, milk, cheese, eggs.I have an appointment with my gastro next week...... so i should aask her for the blood test? She never even mentioned Celiac to me, and I have never really heard too much about it. Another question...Has cutting gluten out of your diet helped u minimally or tremendously?
Posted 3/17/2012 4:24 PM (GMT 0)
Going on a gluten free diet has helped me so much. I no longer have the horrible stomach aches that make you think you are going to pass out in the bathroom. I do not feel like I am going to throw up after I eat. As to the fibro, I have no idea if it helps or not because I was diagnosed with fibro after having gone gluten free.

I have discussed celiac with all of my extended family members because it is hereditary. Everyone in my family have horrible belly aches. Other than my own children and my husband, no one has gone gluten free. They just know that isn't their trouble. ;(

Your gastro dr. could run all of the tests for you. (don't be surprised if you meet with a road block. Not every dr is open to looking for celiac. Many are still under the impression that is is rare. Many drs will even say you can eat a little gluten because livng totally gluten free is too difficult. You can't cheat when gluten free........it isn't like someone with diabetes saying, I can adjust my insulin and they 'cheat' a little. It is an all or nothing lifestyle.)
Posted 3/17/2012 4:32 PM (GMT 0)
Sherrine, I saw Curamin mentioned on the Dr. Oz show as a pain reliever. How does it work for you? Do you take every day? as needed for pain relief? Did you notice any side effects? My youngest daughter is on medications that she is not allowed to take any over the counter pain meds and she has horrible knee pain that we can't find any relief for. Thank you in advance for the information you can provide. (the over the counter pain meds can cause liver damage or internal bleeding according to the medication warning labels on her meds.)
Posted 3/17/2012 6:18 PM (GMT 0)
Thank you for yuor advice, Mrsppmrxky and all the others who have responded...very appreciated! :)
Posted 3/19/2012 6:42 AM (GMT 0)
Hello. I'm hypersensitive to almost all Meds and vitamins anymore. I also have horrible digestive issues ; GERD, Ibs, etc. it was so bad I had a fundoplication procedure last dec. it hadn't helPed anything. I did take gluten out of my diet but I don't stay as strict ad I should. I always feel bloated, stomach burning, nausea, etc. GI DR is puzzled. Don't know what to do either !
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