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Posted 3/30/2012 3:54 AM (GMT 0)
Does anyone have pain in their armpit area?  I have it not just in the armpit itself, but then down the inside of my arm about two-thirds of the way to my elbow, then also from my armpit down to the sides of my breasts.  It's a burning, swollen feeling.  Just wondering if anyone else experiences anything like this.

 

Posted 3/30/2012 4:41 AM (GMT 0)
kimliz, I have had pain in my armpits, and down the inside of my arms. I think it might have been my lymph nodes hurting ? ....but for no good reason.... I mean for FM :(

Haven't had exactly that for many years though, fortunately !

Hope yours gets better soon.

Fish

Posted 3/30/2012 10:20 AM (GMT 0)
Is there a rash? Almost sounds like shingles. When I had shingles that was the area that was affected.
Posted 3/30/2012 1:46 PM (GMT 0)

Thanks to all who replied!

I've heard that some people who've ended up with fibro started out with some kind of infection or illness, and about five months ago, most of the lymph nodes in my body became very swollen.

I went to my regular doctor, who ran all kinds of blood tests, and sent me for a mammogram and an ultrasound of my left armpit, which was where the swelling started.  Those tests showed a swollen lymph node in my armpit consistent with my body fighting off an infection, but nothing that looked like cancer.

Over the course of the next few months, the lymph node swelling remained, but I started getting random pains all over my body, and my ribs and breastbone area were sore a lot.  I eventually saw the rheumatologist that I'd been seeing for years for rheumatoid arthritis, and told her I thought I might have fibro, and she wanted to start me on gabapentin.

Not being sure of a diagnosis, I didn't want to cloud the issue by beginning a new medication, so I declined the prescription for now.  On some days, my symptoms are minimal, but other days, (like yesterday and today) they are present with a vengence.

My rheumy then set me up with monthly blood tests (CBC and CMP) which so far, have all been normal, despite lymph node swelling that waxes and wanes (but no hard lumps or streaking).  I know that some people with fibro also have Chronic Fatigue Syndrome, which involves lymph node swelling, but although I have fatigue, it doesn't seem to be to the level I've heard described with CFS.

I know it's not shingles, as this has been going on for months, and no sores in sight, and also because the pain is (at times) over my entire body.  On days like today my body feels bruised, sunburned (even my face), and swollen, with tingling in my extremities.

My next appointment with my rheumy is in mid-April, and she told me if my lymph nodes were still swollen, she would order a CT scan of my armpit area.  (I was alarmed when I first had the lymph node swelling, as I take Enbrel for RA, and it lists lymphoma as a side effect, but other than the lymph node swelling, I don't have any of the symptoms of that, and the blood tests have come back negative, thankfully.)

Well, didn't mean to ramble on, but sometimes it's hard to explain without going into some detail, and I thank you if you made it to the end of this post!  :-)

Has anyone else had their fibro experience begin with some kind of illness/infection/lymph node swelling?

Posted 3/31/2012 8:10 PM (GMT 0)
Hi Kimliz,

I recall having this years ago and what seemed to help me was making sure I washed off my deoderant. Try not wearing deoderant for a time if you can or changing deoderants. We fibromites are so sensitive.

Good luck to you.
Posted 3/31/2012 10:26 PM (GMT 0)
Thanks for replying, almostmedfree...that's a good idea, and I'll see if I can find a more "gentle" deoderant. 

When I went to my PCP after my lymph nodes first became swollen, she told me that she had a patient whose lymph nodes became swollen every time she colored her hair!  I think sometimes we just don't think about all the chemicals we're dabbing on our bodies, from soaps and lotions to make-up and perfumes.

Thanks again for the idea...I never even thought of anything like that!

 

Posted 4/1/2012 10:38 AM (GMT 0)
You're welcome, kimliz59.

Just to let you know for years I've been using Degree and I haven't had a problem. I always bathe at night and wash it off. I think our armpits need that time to breathe.

Good luck to you. I hope it works.
Posted 4/1/2012 1:40 PM (GMT 0)
Thanks for the brand recommendation...maybe I'll give Degree a try.  I've never looked to see if there's any kind of hypoallergenic deoderant, but will check that out too, the next time I shop.

Even though I'm going to give this a try (I'm desperate at this point!), I've had lymph swelling all over my body...my neck, cheeks, down my legs, my groin, and my armpit.  My rheumy told me that with the extent of my lymph involvement, it's something systemic, not something with an origin in one place.

I'm looking forward to my next appointment with her, and hopefully getting the CT scan, and maybe even a lymph node biopsy--after five plus months, I'm ready to find out what I'm dealing with!  In the meantime, I'm going to try to use all hypoallergenic products and see if it helps.  Thanks again for giving me the idea to go in this direction!

Posted 11/24/2012 2:55 PM (GMT 0)
Hi,

I hope the posters would not mind me rehashing the talking points in this thread, despite the length of time that passed, but I've been also concurrently experiencing fibromyalgia and lymph node swelling. Whichever came first is muddled by the fact that it all started with what was purportedly bronchitis (i get them almost yearly). I discovered after 2 months of bronchitis that my lymph node in the armpit was swollen, this became apparent through the clenching pains In said area that radiate to my arm and left side of breast. The pain in my arm seemed characteristic of arthritis also, but there was pain in the left side of my chest and left side of my sternum.

I was told the cartilages in my left ribs were swollen (costochondritis), and was palpably so when my breast bone seemed a tad bigger and felt terribly tender. Viral infection had to do with it and apparently fibromyalgia - which at some point had affected generally the left side of my body, hips, neck, ribs, arm, shoulder, back muscles, and oddly, at times i felt it in my face too, like a growing zit. My muscles are bumpy everywhere, mostly at the back and hips -- spindle-like, ropy lumps there and in between my ribs, also fibro, which had now remarkably decreased in size after losing a bit of weight.

My fibromyalgia after 5 months has responded very well to pain meds, and now I only have to take ibuprofen before going to sleep. I scarcely feel any pain, except my arthritic arm or probably from the ongoing swelling of my armpit lymph? It's been like this for 14 weeks, and generally my lymp nodes are still fighting whatever nasty, residual bug I had caught because they're mildly swollen too in my lower abdomen and thighs.

Perhaps there's nothing so bizarre about getting swollen lymph nodes and fibromyalgia at the same time (kimliz?). I'd like to hear what u think. Thnks.
Posted 11/26/2012 3:10 AM (GMT 0)
Hi JHunie23,

I certainly didn't mind that you visited this old thread...I have yet to be "officially" diagnosed with fibro, and I've been having lymph node swelling for over a year now.

I already see a rheumatologist for rheumatoid arthritis, and she told me she doesn't think my problem is fibro, but she doesn't know what it is, either.  She told me at my last appointment that whatever I have doesn't seem to be "progressive", so she's just going to treat the symptoms.  (She's never even done the pressure point test that I've heard so much about--it's so frustrating!) 

She gave me a prescription for gabapentin, but I haven't taken any of it yet, and my appointment has been over a month ago.  I don't like medicating symptoms when I don't know what the problem is!

Although this all started out with all-over lymph node swelling, they did an ultrasound of the nodes in my left armpit, because it was the most painful spot, and because they were worried about breast cancer.

My mammogram came back fine, but the ultrasound showed four swollen nodes.  A follow-up ultrasound done about six months later showed that I was down to one swollen node in that location, but if my sensations are any indication, I seem to be in a holding pattern.

I get worse if I'm stressed or tired, and my worst pain is in my underarms and down about eight inches (left side worse), and the outer side of each breast, and sometimes the whole breast.  I also get less-severe pain at the sides of my waist and (oddly) the lower portion of my butt-cheeks.  Other parts of my body (my calves are the worst, but I also feel it other places) have the sensation of being swollen, although they look normal.

You mentioned that you have costochondritis, and I've had that before to, as it's common in people with RA.    I don't have any of the ropy, bumpy feeling that you wrote about, but I think I've heard others with fibro talk about that.  Have you been diagnosed with fibro then?

I've asked here about if others had swollen lymph nodes as part of their fibro, but I never get many positive responses.  I was on another site, though, and there were several people who mentioned swollen lymph nodes.

I, too, have had sensations in my face (cheeks), and on the backs of my hands, but that's only when I'm at my worst.

I wondered about chronic fatigue syndrome, as swollen lymph nodes are a common symptom there, but I just don't have most of the other symptoms associated with that.  I am fatigued a lot, but it doesn't seem to be to the degree that sufferers of CFS are.

Well, thanks for sharing some of your story, and now you know some of mine.  If you do ever find out about a connection between swollen lymph nodes and fibro (or anything else!), please let me know what you've learned--thanks, and good luck to you.  I hope you feel better soon!  :-)

Posted 11/30/2012 8:41 PM (GMT 0)
Dear Kimliz 59,

Your symptoms sound so much like mine. I was diagnosed in February 2012. My symptoms mostly are fatigue and pain in my urderarms, and groin area. Nobody in my family understands what I am going through. They think I am over reacting. The pain under my arms is also down the side of my ribcage. You mention pain in the groin area. I have pain in this area usually everyday. My pain is mostly on the top of my pubic bone mostly to the right. It's so uncomfortable that sometimes it is hard to wear panties. I have felt and also got my husband to fill around on this area and I cant feel any lymph nodes. Also, I cant feel any lymph nodes on my underarms and breast bone. I am driving myself crazy, always feleling around these areas to feel for lymph nodes but cant feel anything. Sometimes I cant even wear a bra because it just aches. I know I am rambling on and on! Just so tired of this all. My doctor ran blood test on me and everything came back normal(cbc, arthitis, Lupus). Sometimes I wonder if I have some kind of cancer. I trust my doctor just very anxious.

Posted 12/1/2012 5:11 AM (GMT 0)
Hi, Confused~

Our pain does seem similar.  Have you ever had a doctor check any of your lymph nodes?  Oddly, neither my regular doctor or my rheumatologist could feel my lymph nodes when they were at their worst, over a year ago, but I could sure feel it, and the area I had the ultrasound on (left armpit) did show four swollen nodes, so I have proof that it's not "all in my head".

I get pain down the sides of my ribcage, too--a burning sensation.  I know what you mean about not wearing a bra, too--my worst pain is in the area of my bra, and I'm a busty gal, so that covers a fair amount of real estate! smilewinkgrin   I even wondered if I could be having some kind of allergic reaction to my bra, but that wouldn't explain groin lymph nodes swollen, or a swollen feeling in my calves...it's a mystery! 

I had blood tests for about eight months (CBC and CMP), but nothing ever showed up.  I was so freaked out when it first happened, as I take a couple of drugs for rheumatoid arthritis that list lymphoma as a possible side effect--I thought sure that I had some kind of cancer.  I was just beside myself with fear, and I still wonder about it.

I still can't believe that my rheumatologist basically shrugs and writes me a prescription without trying to find out what's going on.  If it wasn't so hard for me to find a rheumy in the rural area I live in, I'd love to fire her, and tell her why!

I don't mind if you "ramble on"--I understand completely.  It's so frightening, and you know something is wrong, but nothing shows up on the tests.  Has your doctor ever felt any swollen lymph nodes on you?  Like I said, mine didn't, but they showed up in the one ultrasound I had...maybe you should ask your doctor for an ultrasound of your worst area, just to see?

Regardless, keep in touch and let me know how you're doing--take care!

 

Posted 12/1/2012 5:50 AM (GMT 0)
Hi kimliz,

Glad to hear from u kim. I also hope you're getting better. Most members of my family work in the medical field, not me however, and they objectively resolved it based on my symptoms as fibro, and they think diagnostic exms would be futile (my sister had it too). In my case I don't know if u can call that a diagnosis. Looking back I believe my fibro was deeply rooted on psychological conditions: anxiety (going out makes me anxious), panic attacks (can't sleep alone at AM for fear that someone is going to rob the house or that kind of feeling), ongoing depression and terrible insomnia (hence my delayed sleep cycle extending to AM). And I won't bore u with a rigmarole of other tragic traumas I have had. I heard there's a strong link between those mental maladies and fibro, not to mention that costochondritis seems part and parcel of fibromyalgia, but yeah I agree with u that whatever link exists between fibro and lymph swelling is tenuous.

I'll just try not to worry myself about my body's inexplicable tics, for the act of worrying had birthed me these conditions in the first place. I too get acute pain in my left side when I'm stressed and not well rested, usually at the end of the day. But it's too sporadic now I can't make out a pattern of its occurences. My armpit pain is the most prevalent, if I do a lot of lifting, washing the dishes for instance. I have pain also under my buttocks, sometimes around the groin, But generally on the posterior side of my legs, even laterally. I attribute those to my sleeping position at night, as for some reason my feet won't mingle together, the other leg must fold the opposite side (magnesium deficient?). I hate wearing socks! And so the next morning that splayed, if not contorted, leg is sore because of poor circulation.

I don't know if I've been helpful. I get an impression from above that you're faring well with your meds, would like to hear more about that. I haven't been prescribed anything for my lymph swelling. I don't know why. Take care.


Hi confused at 31

I also feel a dull pain -- i'm not sure if the degree of which can be called pain, perhaps a discomfort, a ghost of a sore spot? -- in my pubic area, at the left bony side. I am male by the way. Like you I don't feel any nodes down there, but I was told it could simply be a bone spur. Try to look that up. This area is where bones rub against each other or something. Because of my leg pains (the part that touches the rim of the seat is most painful) I've developed this mannerisms of laying one thigh/leg above the other (ironic that they can't do so at night) and so the tightness in the groin has led to that. Hope that helps.
Posted 12/1/2012 4:33 PM (GMT 0)
This message is to you Kimliz59,

I too have had pain in my left armpit and along side my breast. I also feel pain in my shoulder & in my chest & back. My muscles ache me in my upper left, then will move in the top muscle with tingling sensations & a burning sensation in the arm, underarm, and in the top part of my hand then maybe in a finger then it goes away. It will then switch to my right, but in the shoulder and upper right muscles only. It's not bad, but it's annoying! It's in the back of my neck at times and my face feels funny, with this itchy sometimes funny feeling, under my chin and sometimes my tongue feels funny...and at times my throat will itch. I aslo have been told I have costochandritis! I haven't had much sleep from worrying and waking up feeling under my arm, which feels like it's swollen. I have had panic attacks and I find myself crying and feeling sad alot! With my breast exam due this month, I'm scared.....along with all the things I have been feeling....guess I'm scaring myself sick too! I do take the ibuprofen & fexofenadine tablets. I'm so tried...I have went to the doctors at least several times in the last past 2 or 3 weeks.....I have no one to turn to! I try to explain what I'm feeling, but the doctor said I'm ok, that my heart & lungs sound good and they don't feel any lumps.....I'm like OMG!!! I think I have fibro....but my doctors said he don't think so! My rib cage is tender in spots to touch, I'm ready to start screaming and I may not be able to stop!!! Do u feel me......  :-( ?

Posted 12/2/2012 6:38 AM (GMT 0)

jhuny23,

I have a lot of anxiety, too, and I started having panic attacks right after the lymph node swelling started, especially when the docs couldn't figure out what it was.  The attacks have kind of calmed down now that this has been going on for over a year, but my anxiety is still high.

Somehow I must've given you the wrong idea about meds...I've never been prescribed anything for the lymph swelling.  My rheumie wanted me to take gabapentin to help with my pain, although she won't diagnose me with fibro.  That's what irritates me--she's ready to give me medication for symptoms when she hasn't even diagnosed me with anything yet!  mad   

You take care, too, and keep posting!  :-)

Hi trallyn,

I DO feel you...our symptoms sound so similar!  I've been dealing with this for over a year, but after a couple of months, the symptoms plateaued--they are better than they were at the beginning, but most definitely still with me.  Actually, over the summer the symptoms got somewhat better, but since the beginning of October (the same month it all started a year ago), it's been worse again, although not nearly as bad as when it all started--I'm just not sure what to chalk that up to. 

I've tried and tried to think of what I'm doing differently now that the weather is cooler, but all I can come up with is using the heated mattress pad on my bed.  So for the last two weeks, I've turned it on before I go to bed, and then shut it off once I climb in.  This has made no difference, so I'm stumped.  Whatever this is, it's sure hard to figure out!

And when my lymph nodes were at their worst, neither my regular doc, nor my gynocologist, nor my rheumie could feel that they were swollen. Then the ultrasound backed up what I was feeling, and I had to wonder what kind of doctors I've been seeing!!  shocked

It is just all very terrifying and it's amazing that in this day and age, they can't figure this stuff out!  And it's infuriating that our doctors don't take us seriously!  I know what you mean about scaring yourself sick, but this is real, and it's not right, and we just want to know what it is!!

I hope your mammo goes well (mine did!)...please post on this thread and let me know what you find out.  I wish you well, fellow mystery condition sufferer!   wink   

Posted 12/2/2012 6:55 PM (GMT 0)
hI Deepwell,

   You are True your name.... :-) !! I was crying as I read your comment....I want to thank you for taking the time to answer & share with me!! As I fight back the tears now....u know when there is something wrong with you....U feel it right? I'm trying so hard to get thru this and I've turned to "God" in prayer & healing!! It felt good to know someone can feel your pain, and can kind of help you know that you are not alone!! I know when something not right, because, it's not normal for you to feel certain things......I take my Ibuprofen, my pressure pill & my vitamin D3 5000IU, and keep it moving! I'm going see my doctor this week now with confidence, knowing what to tell him....and thank U some much for listening and knowing that you have to walk a mile in a persons shoes to know where they've been.... :-)

Kimliz59

   Thank u as well.....I know now that you too have walked in my shoes....it's so hard to understand what's going on with you when that person can't understand what u are feeling! I go for my mammo this week, and thank you for wanting to know how I am! I too have came back with normal mam's every year.....but, keep praying for me thru this one :-) !! I truly think Kimliz59 that I have the fibro symptoms.....and I do feel the swelling in the left underarm...in front, in the middle of the underarm & in the upper corner of the underarm with the shoulder pain......I'm falling apart right now....but thanx so much! :-)  

Post Edited (trallyn) : 12/2/2012 6:52:39 PM (GMT-7)

Posted 12/3/2012 1:56 AM (GMT 0)
That was so sweet....thank u....I needed that :-)!!! I'll go read fibro 101 right now thanx.........
Posted 12/3/2012 6:01 AM (GMT 0)
Hi trallin,

I just wanted to be clear regarding how my doctor found that my lymph nodes were swollen...in addition to the "regular" mammo, she had to order an axillary ultrasound to look specifically at my armpit lymph nodes.  Again, this is not done in a regular mammo, so if you want it, ask your doctor to order the extra test.

Best of luck to you--keep me posted!!  :-)

 

Posted 12/3/2012 9:02 PM (GMT 0)

KimLiz,

 

You are experiencing EXACTLY what we have tried to get to the bottom of for months.  My first complaint was it felt like I was wearing a strapless bra that was much too tight and tighter yet where it would fit into the armpit area.  I woke up one morning last winter with a huge swelling in the fleshy area right in front of the pit going towards the breast and unable to move my arm from elbow to shoulder. ER, Neuro, Ortho........no one could come up with an answer.  Fast forward a few months to now it feels as though there are 3 violin or guitar strings in that area, both sides of the chest, and someone is reaching in and either plucking them or trying to just pull them out through the skin. They (all doctors) look at me as though I am making all of this up.

 

Another morning I woke up to the pain and my right bicep swollen to the size of a personal watermelon. I ignored it for 5 days because I was tired of the "crazy look" from the doctors. I finally took a photo of the arm and sent it to the doctor and received a phone call in a few hours with a "GET IN HERE NOW".  He was shocked when I told him it had been days, still couldn't move the arm well.  Next thing, I am off having an MRI, took the films immediately over to the Ortho. He does hands on test for TOS (Thoracic Outlet Syndrome) and freaks when he can't find a pulse on the left side. Told him no one had ever found one my entire life.....now sent back ASAP to imaging to have Ultrasound of that side only to find the Brachial artery is damaged, more than likely since birth. STILL NO ANSWER. 

 

Next move it to send me to a teaching hospital (USC) and to see the chief of Thoracic Surgery.  He examines me, looks at all the tests, admires my Popeyeish bicep and states, "I have no idea what you have but it's not TOS". Great, another doctor who doesn't know.   Now off to the Neurosurgeon for my cervical spine issues and he goes, "Oh it's probably from your neck".  I do not know about you, but "Probably" doesn't cut it with me. If we can land men on the moon when I was a child, this should not be rocket science! rolleyes

 

To this date, between neurosurgeon, neurologist, internist, orthopedist, rheumatologist, chiropractor, PT and anyone else who will listen……..there is no answer.  What I have learned to do is ice when the pain begins; for me this short circuits the length and strength of the pain’s duration.  I also have learned to humble myself and ask for help in lifting and reaching.  Good luck on your journey to an answer and please do share with us when they find one for you.  

Posted 12/3/2012 10:21 PM (GMT 0)
Yrsilly,

Thanks for sharing your story, and for the tip about the ice!  The fear of having something wrong that even vastly educated people can't figure out, coupled with the pain and fatigue is just exhausting.

Added to this we have to deal with some of these educated people looking at us like they doubt what we're telling them to the point we begin to question ourselves, and it's just an experience that I wouldn't wish on anyone.  rolleyes

At my last visit, my rheumatologist related a story to me about another patient who had "traveling pain", and she said to me "what am I supposed to do with that?" meaning that she had nothing to work with when it came to figuring out what was wrong with this woman.

Anyway, it then becomes apparent that she is placing me in that same category, which I do not understand.  MY pain is in the same places over and over.  I have swollen lymph nodes, which to me should erase any doubt from my doctor's mind that this is mental, so why is she willing to "give up" and just prescribe gabapentin for my pain, without looking any further into my symptoms?!

I'm a person who takes time to process events/conversations, and after I went home and thought about all of this, I was furious!  I'd love to fire her, and tell her why, but I live in a rural area, and she's the only rheumie close to me.  (I have rheumatoid arthritis, so I have to continue to see her for that.)  In addition, her husband is my endocrinologist, which where I live are even scarcer than rheumatologists, and I just feel stuck dealing with these incompetents!  (I don't like my rheumie's husband any more than I like her--they're both automatons that never convey any kind of warmth, understanding, or compassion.)

Do you continue to have trouble with the bicep swelling, then?  I've never experienced this, and I feel for you.  I hope you keep in touch as well, as I would love to hear about it if you get answers, even if they're not answers that would help me.  Best of luck to you!!

 

Posted 12/3/2012 10:26 PM (GMT 0)
No answers yet on the bicept swelling but am having an MRI for the cervical spine tomorrow. Perhaps another disc pressing on the spinal cord is the reason. Hopefully I will have an answer soon. Take care!
Posted 12/4/2012 12:05 AM (GMT 0)
Yrsilly,

Good luck--hope you get answers very soon.  Keep me posted!

 

Posted 1/1/2013 6:46 AM (GMT 0)
I'm new to this forum, stumbled across it on Google when I was searching 'armpit soreness'. I don't have Fibromyalgia, I do have MS - diagnosed in 2003. At the end of September of 2012, I was bit by something on the bridge of my nose, close to my left eye. It got pretty red, made my left eye swell underneath and my glands were swollen too. Doctor said it was a black widow bite! Right around that same time, I started feeling a sore feeling under my left arm. No swelling that I could see. I was put on some heavy duty antibiotics for a couple of weeks. The bite healed up, but my health began to fall apart. The armpit pain is still around, I also have pain in my left arm (mainly in the elbow area). Soreness also radiates to the side of my left breast at times. I also have soreness in my collar bones, front of my neck and chest, as well as my abdomen. Last couple of weeks, soreness is now in my groin/pelvic area! Last few days, soreness is in my left calf. I'm beside myself, not to mention frustrated! I don't think what is going on with me is MS related. I have been to my primary doctor, urgent care doctor and my neurologist since I've been feeling like this. I've had blood work done, chest x-ray, EKG - nothing abnormal. Last week, had an EEG and brain and spine MRI with/without contrast. I will get the results on January 10th when I see my neuro again. Do my symptoms sound like they could be from fibromyalgia? Thanks for reading. I hope someone will since this thread has been inactive for a while.
Posted 1/1/2013 5:16 PM (GMT 0)
Kimliz, I used to get that severely, for weeks, or months at a time. Can't really remember when I had it last, but it seems like it was at least a few years, before the start of my back-to-health, Fibro-arse-kicking journey, 3 years ago......

Best wishes with yours. That $#!z sucks ! :(

Peace,
Fish
Posted 1/2/2013 2:26 AM (GMT 0)
Thanks for the reply, Deepwell. I'm really not sure if the spider bite caused my other problems or if its coincidental. I wouldn't think it would still be in my system three months later. When I mentioned it to my doctor last time I saw him, he didn't seem too concerned that the bite could be causing me problems. I guess I'll wait and see what the MRI results bring and go from there. I just want answers. Thanks again for the reply. :-)
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