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Fibromyalgia
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Posted 4/13/2012 6:23 PM (GMT 0)
I've never posted to a forum before...I'm a little nervous. I was diagnosed in December 2011 with fibro, so I'm very new to all this. I've been through many tests in the last few months just to rule out other things. All tests came back negative. After reading lots of posts on this site, I'm very thankful to have doctors who believe in this as a real illness. Before I was diagnosed, my husband and I planned a cruise with friends. We'll have about a 5 hour drive to the port and then several days on the ship. I'm worried that I'll crash and ruin everybody's time. Everyone going knows about my diagnosis, but only a couple of them have been around me on bad days. Does anyone have travel tips?
Posted 4/13/2012 7:13 PM (GMT 0)
I still manage to travel and not fall completely apart. Granted it is

different than the way I used to travel, before FM I could take off

at the drop of a hat and go and go.

Now I need to plan when to go and have to know where I will be

staying. I try to stay in one place at least 3-4 days, get up late,

rest during the day and make it an early evening.

I've also purchased a nice looking vest with at least four

pockets. One for money & credit cards, one for my phone, one for meds

& snacks and one for glasses & maps. This ways I don't have to

wear anything around my neck, which hurts my neck and shoulders,

and because everything is on my body I don't leave anything laying

around.

I do find it is hard to travel with anyone besides family because being

attentive to others during the day wears me to a frazzle.

Have a nice time, escape to your room as often as need be, don't worry

about the others and take care of yourself. (Easier said than done)

Sharon

Posted 4/14/2012 3:02 AM (GMT 0)
Hi All,

I was just about to start a post about traveling! In a week I will going to New York City to see a spine surgeon. My brother will be driving and my mom will be coming too. I am in MA, so about 5 hour drive. Should I get out of the car to stretch my legs a few times? I have restless Legs during sleep alot, but haven't driven in a car that long in a long time. Any tips or suggestions welcomed.


Thanks,
Jen
Posted 4/14/2012 3:13 AM (GMT 0)
I just came back from a cruise and I got to tell you I was nervous. I wasn't sure if I could do it and I was worried I Hinder my husband fun. I would let your company know for sure. I did really well on the trip. The only thing I couldn't stay up late and party. I was in bed by 10 pm. My husband understood. I did take some sleep meds with me. I did dress up once and when out to the fine dining. I know others stay up and party most of the night. I rested when we were in the ship sitting around the pool area in the sun. Actually I think I was less tired from the cruise then a land vacation. When we docked we went on some simple trips. If you don't mind your friends staying out all night without you, then I would call it a night early like I did. I did get sick to my stomach once, but the winds picked up. Make sure you bring Dramamine because the ship cost is expensive. Don't take anything with much value to it. Don't leave things on the beach unintended. Mu husband bought a water proof holder that he could keep his cell phone in and other things you take on the beach. I am not sure if you are going to the beach. If you drink, be careful with your meds mixing with booze. My whole trip I never had a bad day, but I got my sleep. Go have fun, you will love it!!
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