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Posted 7/10/2012 8:31 PM (GMT 0)
Day 2 of my new found friends and I am complaining already..  cry

 

Had a horrific day yesterday with the fibro fairy just kicking my butt.  With sore fingers, an aching back, and a monsterous headache, I found you guys!  tongue

 

Called my rhumatologist today because I don't think I can wait another few months for my follow up visit, especially since I had the feeling that being run over my a semi would make me feel better after the pain that I have been enduring recently.  Appointment got bumped up to 2:30 tomorrow. 

 

Sitting here at work now, not wanting to do a whole lot, fingers still sore and fibrofog setting in.  Deadening tired?  YUP!  Good lord I hope I can make the hour commute home.  Seriously contemplating just going to bed when I get home.  I would ask if that is a horrible thing for me to do, but I know you guys have been there too.  It makes me feel like a horrible mom and just useless.  mad    How do you deal with your feelings when you start to feel like this?

 

Hope all is well with you guys today... Hubbs is making a roast!  Excited about that, don't know if it's because I won't have to grasp anything to cook with or if it sounds yummy.  lol. 

 

hugs! 

 

-Amy

 

Posted 7/10/2012 10:25 PM (GMT 0)
You are by no means a bad mom t happens tons of us. Have begun to keep things in freezer that are simple for bad days! And on good days cook a little more so we can do left overs or simple freezer stuff on bad days! I got laundry done and put away today and totally ready to do the happy dance I got that much done :-). Even though tomorrow my body may ground me for it. And of course took a muscle relaxer to help this am!

Enjoy your yummy roast :-)
Posted 7/11/2012 12:13 AM (GMT 0)
Amy, first of all, a gentle cyber hug to you. Thanks for posting how you're feeling. I am looking forward to reading the posts from others. I too feel really bad/guilty/sad because I can't do what I'd like, just need to go home and go to bed, spend no time w/ the family - it really upsets me. I cry myself to sleep. They give me hugs & kisses & say they understand, tho, so I'm blessed. Lately hubby has been rolling his eyes, but I suppose I would too if I were him.

Good luck w/ your appointment!!! Keep us posted.
Meg
Posted 7/11/2012 12:52 AM (GMT 0)
I hear you - it is a horrible feeling to not be able to manage your household the way you'd like, and to be able to give 110% as a parent. It can really get you down some days. As someone mentioned above, I have learned to lower the high expectations I set for myself and in the last few months have felt good if I can cook one of those lame frozen PF Chang or Bertolli meals in a bag or pick up dinner at Pollo Tropical or Boston Market. We eat out or get To Go far more than I'd like to, but it's gotten to the point that if I can get a reasonably healthy meal in my husband and little one, I feel like I did my job.

Also, I think if you feel like you need to go home and go to bed, your body will thank you and you'll feel better tomorrow. I'm sure if you do this once in a while, your family will understand? I think I'm noticing a pattern of feeling a little better during those really bad pain/fatigue weeks if I go to bed early.

Good luck!
Posted 7/11/2012 1:37 PM (GMT 0)
I love you guys! Thank you so much for the motivation and the helping words. I feel so blessed to have found you guys!
Posted 7/11/2012 1:58 PM (GMT 0)
Between the pain and the fogs it's good to know some hubby's can be thoughtful. I started laundry on Monday morning it's still not all done, I have my grandsons here "helping" me for a couple of months, unfortunately the little one really does not get it grandma just can not to that but the 10 yr old seems to, at least he helps more. Lol, all any of us can do is our best it seems that we are harder on us than others are. Take care rest, let others do things for you.
Posted 7/11/2012 6:57 PM (GMT 0)
Well, you are at the doctor's office right now.  I hope you get some help there.  Once you get the pain under control, you can have a full and enjoyable life in spite of this illness.

 

Going home and taking a half hour nap or just rest isn't bad.  After all, you have worked all day long.  I don't know the ages of your children but I sure had my kids helping.  They can do a lot to help you and it would only take them a few minutes a day.  After all, families should work together and help one another.  You don't have to do everything yourself!  Golly, my kids were doing laundry by the time they were ten years old.  It's not that difficult.  If they can reach the knobs to the machine, they can do it!  turn    They can fill a dishwasher, set a table, run a dust cloth over the furniture and the older ones...including your largest child (your hubby)...can run the vacuum.  I always cooked the meals.  When I make casseroles, I double the recipe so one goes in the freezer.  That helps on those really bad days.  Those vacuum sealers are great for this.

 

So, be easy on yourself.  Pace yourself.  You will make it.  We all have good ideas and suggestions for you, too.  Now, stop worrying and go and enjoy your family...after your nap.  smilewinkgrin

 

Sherrine

Posted 7/11/2012 8:54 PM (GMT 0)
UPDATE: Just got home after a fun filled Rhumy appointment. Doubling my Lyrica dosage to 150mg and adding Tramadol (spelling?) for good measure. Had more blood work done, checking my vitamin levels as well as some other "weirdness" (dr. terms.. lol) I guess we'll see how things go. I go back to see her in 6 weeks.. Nap time! :)
Posted 7/12/2012 12:20 AM (GMT 0)
Awesome !!!!!! Hopefully it helps :-)
Posted 7/12/2012 12:35 AM (GMT 0)
Hopefully the increase will help you. I laughed when you said some other tests because I can not read my doctors handwriting so when he orders other tests that's what they are, lol. I tried cymbalta and it worked very well for awhile then added Lyrica to the mix and I did not well at all. If drugs work take them it's better than not being able to function. The tramadol worked as well so hopefully will for you too.
Posted 7/12/2012 12:55 AM (GMT 0)
I often worry that others think I'm "lazy," and I want to be a good example to my kids, but on my bad days I feel like I just exist. Then again my family keeps me moving, so although it sometimes seems like torture, it really is better for me than lying down getting stiff and depressed while feeling muscles spasm and ping!
Posted 7/12/2012 1:28 AM (GMT 0)
I think it is only natural that people who suffer from chronic pain are going to have days where they feel overwhelmed emotionally.

Dealing with pain 24/7 can cause emotions like anger and sadness to surface. When we are first dx'ed it is natural to go through a grieving process...we all do it at our own pace. Our feelings are real and we can't deny them...there are still days I have a good cry and feel better for it.

Personally, when I focus on my pain, I feel worse...the need to distract it gets me doing something I enjoy.

It does take work to feel better...if I don't invest the time to do gentle stretching, relaxation therapy using moist heat and walking, I'm paying for it.

Writing in a journal is an emotional release for me, also writing, poetry.

Amy, we do understand...and we are here for you1

Hugs, Robin
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