HAVING A BAD FLARE!!!!!

I have been going through this for about 3 weeks, I have had cfs and fibro since 2001 and i have NEVER felt this bad!!!!! Iam taking opana er and then 4 hours later hydrocodone 10/350 but only helping for a short time, so tired but cant sleep, havent been to bed since 8am yesterday!!! Any suggestions???? TINA FIBRO, CFS, HYPOTHYROID, DDD, ARTHRITIS, DEPRESSION, BAD DEPRESSION RIGHT NOW!!!!! LOVE ALL YOU GUYS TINA

Dustinhunny, no muscle relaxers, for some reason all of them make me feel really strange and then i start to panic, bummer huh? Where are you in fl? I live in orlando, i could sure use a good fibro dr, think mine is getting tired of me which makes life difficult. I have alot of wierd reactions to some meds, have no idea why, and alot of the meds used for cfs and fibro do not work on me, so i can see why she gets frustrated! She sent me to a pain clinic and i have been going there for over a year, i asked that dr when she was going to start addressing my symptoms that i dont want to be on pain meds the rest of my life and she said that i would be due to my dx. All i know is i go there every month at 40.00 and my meds from there is 75.00 every month then i go to my pcp every 3 months at 20.00 and my meds from there is 72.00 and nothing is working or has ever worked, its like i woke up one am in 2001 feeling this way and have never felt good or normal since. THANKS FOR LISTENING!!!!!!!! TINA PS. JUST about REALLY OVER THIS, NO ONE CAN HELP!!!!!

BG....So is the only medication you are on is the opiates of Opana and Hydrocodone?

Not that some people can't be helped a bit by this, but most Rheumatologists do not prescribe really strong narcotics to treat Fibro pain. And it could be the dosages you are on now are having a real sedating effect on you and adding to your fatigue.

It's usually used in conjunction with a nerve pain/Fibro medication like Savella, Lyrica, Neurontin, or Cymbalta. And then as Sherrine and other mentioned....a muscle relaxer is extremely helpful...There is Flexeril, Robaxin, Skelaxin, Soma or Baclofen.

Are you saying you have tried every single one of these medicines?

It sounds more like an anxiety attack that you are having then an allergic reaction to the medications as anxiety is not a side effect of a muscle relaxer as it's the complete opposite effect on the brain.

As well as some side effects will go away after a few weeks. Did you try each of these meds for a full few weeks to a month?

Not trying to say that you shouldn't be on the meds you are on at all...I'm just trying to say that treatment for Fibro is about a comprehensive approach using every modality one can. The opiates themselves are only "dulling" the pain all over and aren't meant to help with any muscle or nerve pain which is prominent with Fibro.

And as you are saying...even the opiates you are using are not working for you. This is why we are trying to recommend talking with your Rheumatologist to look at all the other options.

Are you also on medication for your depression? This is where many get success with Cymbalta as that can help with nerve pain as well as depression.

How about an exercise plan? Has your Dr. put together a plan for you that includes this, yoga/stretching, massage, acupuncture, or aqua therapy? How about eating healthy?

I switched to eating all Organic 2 years ago and this alone has made a huge difference in my energy levels. Getting out all the toxins from preservatives, artificial colors and additives has also aided my digestion.

Another thing that I take is one Ambien at night. This was prescribed to me after my last cervical fusion..And it was like a miracle to me to finally get to stage 4 sleep. Of course there are many natural ways to enhance sleep and only moved to a prescription after everything else is being done but didn't work. I sleep with all different pillows to align my spine, I sleep in a cool room, and every single light off. As well as I shut off the computer and tv about a half an hour before I fall asleep and listen to a book (set on timer) on my phone. So it is so soothing to lay in the dark and have a story being told to me! But this helps get my body/brain ready for sleep.

Just trying to put out some thoughts/suggestions...

Post Edited (Snowbunny21) : 8/6/2012 10:18:18 AM (GMT-6)

Hi guys, thanks for the suggestions!!!! Snowbunny, baby iam not trying to be difficult and i love your response, if you could bare with me a min and i will try to explain, long story gonna try to cut it down some!! I have always been an energetic person ALL MY LIFE, in 1999 my husband and i sold everything we owned and bought a 40ft boat and moved on to it, our dream, i was 40yo,we moved to daytona and i worked as a nurse in winter park quite a drive, we were always doing things never sat home, breeding, showing and raising english bulldogs, we were really having a wonderful life. In 2000 we took our boat, me, my husband and 2 bull dogs, from daytona to Key West, what a wonderful adventure, we lived on the hook and had 2 dingys that we went to shore on. My husband got a job with the city of key west and because i was a nurse a vet down there hired me, i soon went back to school full time to become a vet tech and worked full time as well, after that continued on and became a vet dental tech. about this time my husband started with renal disease and could no longer work and before he could get ssi he had to be out of work for 1 yr so in order to pay the bills i got 2 partyime jobs, 1fulltime and 2 parttime, i did this for a year, that was nothing for me i had energy to burn!!!! At the end of 2001i had a great day took my shower and went to bed, when i woke up the next morning i was so weak and sweating, felt like i had a bug, this continued for 3 days with no relief so i went to dr, no bug but i did have elevated EBT, 1500, no mono just high titer. Since that morning in 2001 i have never been the same, symptoms continued to get worse, in so much pain, could not even hold my head up and continued to sweat. First dx reumatoid arthritis and was placed on oxycodone 10/650 and i was happy to have them!!! I need to tell you that the dr tried ibuprofen first and i had a reaction to it, my face became so swollen i couldnt even open my eyes, was rushed to ER and was told never to take again, iam a very good nurse, but when it comes to me or my family i forget it all, LOL. Since then along with the oxy i have been on everything out there, i have also had every test known to man with very little results. In 2006 my husbands health declined so we sold the boat and moved back home to orl and 3 months later my husband passed away and at that point i was placed on cymbalta for depression not fibro, not dx yet. Still on oxy every 6 hours. It took 3 months after his passing before i could even get off the couch but i found a pcp and went through all the testing again even tho i had my records, dx -fibro and cfs not reum, WOW over the years i have asked to be taken off oxy and be placed on something that is non narcotic and not one single dr would do it, they just kept adding meds and nothing worked, you name it i have been on it, even tho i take a high dose if oxy i am very sensitive to meds, i can look at a xanax a sleep for days, muscle relaxers knock me flat and then i freak out cause i feel like iam sinking, i hate that feeling, i have taken all those relaxers but robaxin, am scared. I do not have a reumatologist only pcp and now over the past year and a half pain clinic dr, who is getting me off oxy slowly but not really doing anything else. After all the testing i was dx with -fibro, CFS, ddd, hypothyroid, depression, high tri and chol, iam a mess!!!! Had to be taken off cymbalta and tylenol due to elevated liver enz, they are now normal. I feel that after all these years i am worse now then before, i feel like after all the testing and meds i have been on i have never found a dr that can help me or even cares, its like they get tired of me complaining and nothing working. I really dont want to feel this way for the rest of my life, iam hurting so bad right now i just want to scream and am so tired i dont even feel like getting in the shower, when iam like this i go days with no shower, i know that sounds bad but i dont have the energy.sometimes i feel so bad when i go to bed at night that i pray for god to forgive my sins cause i just know iam gonna die in my sleep!!!! As far as diet goes i have done it all too and for years, vegan, organic, veg you name it. Can you help me, i swear to you iam not doing well!!!!! MEDS -CITALIPRAM 20MG DAILY -FOR DEPRESSION, LEVOTHYROXINE 0.1MG DAILY, LIOTHYRONINE 25MCG DAILY - BOTH FOR THYROID, NUVIGIL 250 MG DAILY - FOR alertNESS, OPANA ER 10 MG EVERY 12 HOURS -PAIN, HYDROCIDONE 10/325 TWICE A DAY - PAIN, PANTOPRAZOLE 40 MG DAILY - HEART BURN. THATS IT, ENOUGH RIGHT??