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remission to full flare up of symptoms

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Posted 10/18/2012 8:39 PM (GMT 0)
sad  

Hello: I was dx'd with fms about a year.

When first dx'd it was horrible.

Pain symptoms and all associated symtpoms were in full force.

after several months, i started a modified excersise program and elemenating some stress my symptoms seem to decrease over time.

i felt like i was almost healed even thought there is no cure for this. It seemed like remmision!

Now its back full force, not just the pain, but all the associated symptoms as well.

I feel like i had taken control over this and now  i feel i have none, like i have to start over again.

Im going on my second year with fms, just wanted to hear from some fms veterens to see how normal this is. :-)

Posted 10/18/2012 10:32 PM (GMT 0)
Sorry to hear your pain is back in full force...the change in weather could be the culprit. Soon as it becomes cooler, I notice that I'm hurting more, especially with cold damp weather. Fibro pain does wax and wane...I've never felt that it was in remission though.

Soaking in the tub brings me some relief, along with daily exercise. I take Savella daily and muscle relaxers as needed. I make sure to take Vitamin D3 on a daily basis and Vitamin B12 along with a good multi vitamin.

Hoping you find pain relief soon!

Hugs, Robin
Posted 10/18/2012 11:01 PM (GMT 0)
Hi there,

Robin is right, fibromyalgia symptoms wax and wane. So we go back and forth with it. I guess I should say be thankful for the time you weren't hurting. I think that is the best that we can do. Be thankful for the good days and push through the bad. Or go to bed. lol...

I hope that you feel better soon.

Hugs, Karen
Posted 10/18/2012 11:08 PM (GMT 0)

Thank you for your responce.

I was thinking since fall is here that it may play a role in the way i feel. were i'm from its still pretty warm still but it is slowly starting to cool down in the early morinings and evenings.

I guess i can expect  and am experiencing that my fms will change over periods of time but i will continue do what i can to manage it.

Thank that was helpful :-)

Posted 10/19/2012 2:06 AM (GMT 0)
I have been worse with the cold damp weather we have been having for the last month. Yesterday was nice and I didn't hurt as much. But with the changes we have been having, I have been in lots of pain. I am use to it though. Have been for awhile.

I hope that you feel better soon.

Hugs, Karen
Posted 10/19/2012 6:56 AM (GMT 0)

Yeah, it tricked me too. I have been Dx almost a year. Right after I lost my job, I was told there would be "no getting better" skull and then months later I was almost my old self turn   Lasted for a good while and then ... nono slam. I had to admit that I HAVE THIS. That I have to listen to my body, and learn not to challenge my abilities as I used to. I am still working on this. It can also be very emotional. The frustration, anger, sadness; they are all a natural part of the fibro process for me (im still ticked off about being limited and needing others to help with what I used to do on my own mad . I learned all that I could about fibro, but the literature never prepared me for the emotional toll and energy that it causes and takes. confused  

 I hope that you have a good dr (mine is learning), and support (I look here) through this. Hoping that you feel better soon...

Posted 10/19/2012 4:50 PM (GMT 0)

Thank you all so much!

great forum! very helpfull!

I do have a good neruologist who listens to me and understands

To simplyus, Your post is exactly what I ment when i posted this thread, like you im learning and accepting too.

thanks again!! :-)

Posted 10/19/2012 5:01 PM (GMT 0)
So sorry. I know you are bummed.
Posted 10/19/2012 11:10 PM (GMT 0)
I'm wondering if you don't also have some kind of infection that rears its ugly head from time to time.

Have you been checked for Lyme and any of its co-infections?

Good luck in finding out the cause of this come back.
Posted 10/19/2012 11:35 PM (GMT 0)
The weather change sets my pain off. I live in Alaska and we are already in winter temps. Sept. it snowed and my hips starting first. I was going to get injections, but changed my mine do to the bad batch of steriods. I rather hurt! Maybe once the change, your pain might settle down. I bought a nice warm space heater this year. As I am on the computer it helps relax my muscles. Appreciate the good days and just try to lay low on the rough days.
Posted 10/22/2012 9:29 PM (GMT 0)
To woolrow:

I saw a rheumatologist last year. He did all kinds of labs to check inflammation in the body, lupus, rheumatoid arthritis etc..

I mentioed lyme disease but he doesnt think i would have that as i had no tick bites and where im from the tics dont ususally carry lyme.

all labs and imaging studies showed nothing.

its getting colder where im from so like others mentioned im starting to believe the weather plays some role.

thank you all again :-)

 

Posted 10/22/2012 11:00 PM (GMT 0)
I am blaming the weather changes, too. This has been an extremely bad Fall for my fibro.

Hope things are better, soon, jc77. Isn't it strange that we can have all those tests done and nothing shows up! I guess that's fibro, though.
Posted 10/23/2012 5:22 PM (GMT 0)

That is very strange.

with the teqnology we have today you would think we could find just about anything. I'm sure in time we will have more answers.

fall used to be my favorite season, i guess it still is in some ways. :-)

Posted 10/23/2012 6:48 PM (GMT 0)
Hi jc. I'm not insisting that I think you have Lyme but just for your general knowledge, I've been doing a lot of research on it.

Some things I have discovered is that most docs are abysmally ignorant about Lyme and that one of the first responses you will get is something like 'there are no Lyme ticks in your area'. I have read that Lyme is actually in all 50 states and that it is not just ticks that carry it. Some spiders do as well.
Here is one link about Lyme:

http://www.truthaboutlymedisease.com/

This article discusses overlapping symptoms.

http://www.personalconsult.com/articles/cfsandfibromyalgia.html

To truly get to the bottom of whether you might have it, they say to find a LLMD in your area. LLMD, meaning Lyme Literate, a doctor who is willing to test you and who knows how to read the results properly.

I'd just hate to think anyone might suffer from a disease that is curable or at least to some extent fixable.

Best of luck.
Posted 10/23/2012 8:43 PM (GMT 0)
thank you, i will look into that. :-)
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