HealingWell
Search Close Search
☰

How Often Do You Do This ??

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/3/2013 4:48 PM (GMT 0)

In trying to recover I was wondering how often and how much time people

spend on these things:

Thinking about What Do about The Condition

Reading about It

Talking about It

Doing Research

Being On Support Forums

Looking For Anything That Will Help

Thanks for reading and responding !!

Posted 1/3/2013 5:00 PM (GMT 0)
I have pretty much done all that, so I just try to take one day at a time. It is easier for me that way...

Hugs, Karen
Posted 1/3/2013 5:24 PM (GMT 0)
Touching base on the forum reminds me...I'm not alone.

I research all my conditions from time to time to see if there are any new treatment options.

Family and friends are aware of my conditions so there is no need to discuss it...I've learned to ask for help when needed.

My symptoms make me aware of my conditions but I do not dwell on how I'm feeling. I'm better off doing what I can to distract myself by doing things I enjoy.

Like Karen said "I just try to take it one day at a time."

You find what works for you through trial and error and you just " keep on Keep'n on."

Hugs, Robin
Posted 1/3/2013 6:14 PM (GMT 0)
It depends on a lot of factors. First being can I kick the kid on the computer off without raising a big fuss?
Lately, I've been around the forums a lot but that's to try and return all the help and compassion I received when I first came here. Right now I am researching ways to handle severe bloating.
I don't really discuss it with family. I've always felt that other people have enough on their plate without me adding on so I tend to just keep it myself. Unless its bloating that has everyone accusing me of hiding a pregnancy. Like there could be a secret in this house!
I am used to ignoring certain pains so I can go on til something like what I call a mega flare happens, all my stuff having a great hooplah. They must enjoy each others company because they do gang up on me at least once a month. My dr always says lower your stress. Ha! He needs to raise 2 kids under 10, a moody husband, dumpster diving kitty that eats everything, an ex husband who still blames me for ruining his life years after the divorce, and certain family that seem to like to test my tolerance. He should be giving me awards for not having mega flares everyday.
Posted 1/3/2013 6:17 PM (GMT 0)
I agree with "just try to take it one day at a time."

Like any health condition, it is easy to become obsessed with it, but we still have our lives to live. I would hate to grow old, then look back and think I didn't do much beyond thinking, reading, talking, etc. about my fibromyalgia. Plus, when we do other things, we usually get our minds off our pain. I think it's important to get down to the business of living, the best we can.
Posted 1/3/2013 9:04 PM (GMT 0)
I just take it minute by minute and enjoy the good times.
Posted 1/3/2013 10:51 PM (GMT 0)
My answer: Constantly.

I also believe in appreciating 'the moment'. It's just that a lot of my moments are spent researching this condition.
Posted 1/4/2013 4:40 PM (GMT 0)
Good Morning Everyone! I was going to start a new thread until I came across this one. Basically because my thoughts/question was the same. I read the forums, too, because they continually remind me that others are suffering as I am. Also because sometimes they may have tried something that worked and that may work for me. I have slacked off (New Years Resolution #3) talking to others about my condition...unless they ask out right why I can't or won't do something I'm not bringing it up. I try to ignore the pain, work around it, until it starts getting in the way of life. The symptoms of RA seem to be giving me more fits than fibro, right now, so I am doing more research on that. My main New Years Resolution is like you said Robin, I just "Keep on Keepin' on!"

Have a great Day everyone!

Posted 1/4/2013 5:24 PM (GMT 0)
My philosophy is very similar to Luvsminis. I have a myriad of health issues, and at least 2 or 3 are "flaring" at any given time. I could spend all day reading, thinking, and talking about them, and it would consume me.

I just try to take it day by day too. If something is REALLY bothering me or is new, I might look it up, otherwise I just try to live my life and not focus on any health problems, other than trying to make healthier choices when I'm physically and emotionally able.

The only fibro related activity I do is pop in here once or twice a day. Sometimes I will look up a recommended article, but mostly I just like the people and support. :-)
Posted 1/9/2013 7:37 AM (GMT 0)
I spent every waking moment doing all these when I got DX with Crohn's. Now that Fibro is on the table, I feel like I am starting over again and dont know if I can do all that again. Haha
Posted 1/9/2013 9:40 PM (GMT 0)
I did that for a few months straight. It def. didn't help. I look things up from time to time (specific questions or just stumbling around), and spend the rest of my computer time looking up things that are fun, interesting, and completely unrelated.
Posted 1/9/2013 11:00 PM (GMT 0)
It varies...when I had a ruptured disc, I couldn't do much besides sit or stand, and I was looking for advice, so of course I spent a lot more time on the forum. It's good to give back when I can, but not so good to get bogged down in needless worry. So it's always a fine line.

I still like coming here to share, and give and receive support.  I feel like we really are a kind of family!   yeah   We understand eachother in a way that others can't. 

What about you, James?

Debbie

Posted 1/14/2013 11:11 PM (GMT 0)
@Angelic Victory be sure to have that bloating checked out. It can be a sign of ovarian cancer.
Posted 1/15/2013 2:56 AM (GMT 0)
Thinking about What Do about The Condition:
Not a lot. I’ve been diagnosed for 14 years… What is is, what will be will be. I allow extra time for things like completing study, and I try very hard to work within my limits (I fail. I’m on a 5 week holiday from work, and I STILL over did it into a flare. Now I have to go back to work sick.)
I find that if I think too hard about it I get depressed.


Reading about It:
When I have a flare I tend to seek out other people’s stories just so I can have something to relate to.


Talking about It:
I don’t. At all. I HATE talking about it, I will go to absurd lengths not to.
The only person on this planet I feel even slightly ok talking to about Fibro is my partner. And even then he’ll notice I’m not well WAYYYY before I say anything.
(My mum’s favourite line was “Why can’t you just try NOT to need pain killers?” it’s left me with issues.)



Doing Research
I go through bursts of researching. I’m in the middle of one at the moment; the last one was well over a year ago.
Generally it’s when a flare has REALLY hit hard, or when I’ve noticed a new symptom.


Being On Support Forums
On and off. There’s no real pattern to it. On the days when I feel the need for a bit of support, or just the knowledge that I’m not on my own I head to the forums.
Unless I’m having a really crabby day when I just hate everyone. Then I go look at cats instead.


Looking For Anything That Will Help
Every flare I have. It’s very rare I find something I haven’t tried now, but when I do I jump on it (unless it’s too expensive, or sets off my “this is bulldust,” alarm).
My doctor has said that I’ve been sick longer than he’s been practicing medicine (there’s a happy thought) so I’m going to be the one who know more about my body. He’s said that he’s happy for me to take the lead in my treatment, and to just check with him before I swallow any tablets, natural or not.
✚ New Topic ✚ Reply