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Hida scan results 27%! Houston we have answers to our problems!

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Posted 1/10/2013 12:28 AM (GMT 0)
Had my HIDA scan and abdominal CT scan. The only thing I know is my HIDA scan results are 27% which is abnormal. And she mentioned it took a LONG time for my gallbladder to fill. Now I sit and wait for my GI to call me with the official results and his plan of action.

I've been eating VERY low fat since I've suspected my gallbladder. And NO meat. Every time I try to eat meat... BAD!!! I tried 3 small bites (SMALL) of Wendy's chili which i didnt think was too fatty and threw up. It was mostly broth. I miss meat! I miss food!!!
Posted 1/10/2013 12:30 AM (GMT 0)
I sure hope you get your answers soon. It would be great if the doctors can take care of that problem and you can eat again. I'll keep that in my prayers.

Sherrine
Posted 1/10/2013 1:13 AM (GMT 0)
It is possible for the gallbladder to calm down if you stop eating high fat foods, as least temporally. I know this from my own experience.

If you search for 'gallbladder cleanse', you will find lots of info on natural treatments. I'm not saying you should not pursue this with your doc, just that if the situation is not too extreme, you may be able to avoid surgery.
Posted 1/10/2013 4:03 AM (GMT 0)
My mom just had her gall bladder removed today. They said her's was functioning at 10%. She had her's removed laproscopic. She has 3 little cuts on her stomach and one in her belly button. She's resting comfortable in her bed at home.

I found out that any score below 40% usually means you need your gall bladder taken out.

Posted 1/10/2013 12:32 PM (GMT 0)
Thanks, Joy!
That's helpful news that he'll actually do something about it. I know my family Dr will if my GI doesn't want to. Cuz right now I've gone low fat, been taking Prilosec, and sleeping elevated and nothing has helped. What I can eat isn't much. I'm getting tired of eating saltines and pretzels! :-)!
Posted 1/10/2013 2:09 PM (GMT 0)
I hope he calls soon. If not, call him. You ought not to have to live with these symptoms.
Posted 1/10/2013 3:53 PM (GMT 0)
Just wanted to add that I have quite a few friends who also had their gallbladder removed and they are doing wonderfully with zero pain now.

As mentioned, it's done laparoscopically where you go in the morning and then home by afternoon. They only needed a week or two of pain meds and some easy rest and back to normal!

The only thing will be to where the "gas" pain can travel up into the shoulders for a few days afterwards as that is what they use to blow up the area inside the small incisions to see everything. So your Dr. will tell you how to handle this with walking around..

I hope they make a decision soon and if it's surgery...schedule it and be done!
Posted 1/10/2013 9:25 PM (GMT 0)
OMG!! Drs office just called. Wasn't even to discuss results. It was just to let me know they called the phenagan in for me because I can't even drink water without it. I said, "mam, I was hoping you had my results for me." She did. Despite the decreases ejection time, he signed off on my scans and said "not significant!" They weren't even going to call me. No mention of a follow up. I almost cried on the phone and said, "okay, I can't even touch the leanest meat without throwing up. I can't drink water without phenagan. And now my poo is clay colored (sorry TMI), what do I do?!?" She said she'll give him the note. Gee thanks a million. I feel like I just ran full force into a brick wall. SOOOOO frustrating. :-(
Posted 1/10/2013 10:08 PM (GMT 0)
I would certainly try to speak directly with the Dr. on where they plan to go from here...

Just reading up on it but are you on any medications? Do you take anything for the pain?

They say that with the scans not being 100% reliable as there are many things that can alter it from being overweight, having diabetes, pregnancy, cirrhosis, celiac disease, and then various medications including opiates.

And silly question...but could you be pregnant and was that ruled out? Although I guess I'm not sure if you are male or female from the screen name..LOL...

Anyway...you certainly need to get to the bottom of what is going on and hope this Dr. keeps trying or you find another GI or Internist and go from there!

Gosh it's frustrating not to have answers:(
Posted 1/10/2013 10:43 PM (GMT 0)
Kind of sounds like pancreatitis to me, but I don't know all of your symptoms or if the doctor had already ruled that out.
Posted 1/10/2013 11:19 PM (GMT 0)
With all those symptoms, of course you're frustrated!! Doctors can be so insensitive at times....

I don't really understand the percentages they go by - my gallbladder was called "nonfunctioning," but they didn't give me a number, so can't give you any suggestions. Hang in there! They'll have to give you a plan of action eventually.

Debbie
Posted 1/10/2013 11:41 PM (GMT 0)
The gallbladder was my Dr's first line of sight for my issues, the HIDA scans are the worst. I truly hope you find out soon.
Posted 1/11/2013 1:57 AM (GMT 0)
My mom's primary totally ignored her symptoms for two years. He just gave her some antacids. After two trips to the ER for stomach pains and throwing up someone mentioned a different doctor to see. She went to him and he ordered hida scan and ordered her surgery right away.

Maybe you need to talk to your primary about seeing someone else.
Posted 1/11/2013 2:05 AM (GMT 0)
Did the dcotor examine you or is s/he only going on test results? Contact the office again. Tomorrow. Vomiting is not normal.
Posted 1/11/2013 3:03 AM (GMT 0)
Funny you should mention it, but no one has physically examined me. Just by test results. No blood work even. I'm baffled. Do they think I'm lying about all this? They did an abdominal CT w/ contrast too, and I was told it didn't show anything significant. Wouldn't that have shown pancreatitis? I'd think someone should be running some labs.

As for meds, I've only been taking the daily stuff that I have to take. Savella, YAZ, ambien, soma. I had to stop all my pain meds and vitamins cuz I couldn't take it anymore.

Pregnancy would have to be a miracle. That's all I'm saying about that :-).

My family Dr (God bless him) told me even before I saw the GI that if he wouldn't do anything about it, to come back to him and he'd ((family dr) would take action. I'm still just baffled by all this. They are going to make me think I'm crazy!!
Posted 1/11/2013 12:40 PM (GMT 0)
You need to see a doctor! When my gall bladder failed, I was in the ER.
Posted 1/11/2013 1:42 PM (GMT 0)
Been to 5 Drs in the last month. That didn't seem to make a difference.
Posted 1/11/2013 10:58 PM (GMT 0)
Maybe instead of chili you should try bits of plain white meat chicken and see if you can keep that down. I wouldn't think Chili is the best thing to eat with stomach problems.

My husband is recuperating from a bad bout of diverticulitis and he started slowing re-introducing solids into his diet after much pain and nausea with everything very bland. White meat chicken, very soft was the first solid that he seemed to tolerate pretty well. Maybe save the chili for when you've kicked this thing completely.

Wow, you are in a mess, so sorry you're having to deal with this. Maybe it's time for another opinion. Have you been to a gastroenterologist for this?
Posted 1/11/2013 11:09 PM (GMT 0)
Yep, GI won't do anything. The chili was more of a test but it was low fat and it was 3 half bites. More like tastes. I didnt just sit down and chow a bowl of chili. Even white meat chicken doesn't stay down (or in). The only food with any significant protein that doesn't completely disagree with me is cottage cheese (low fat). Been eating small bowls of that with fruit. Getting tired of eating that. But, I'm over 20lbs down since dec 4th. Gotta try to eat something.


My GI's "solution" is to send me for IV hydration and phenagan. My family Dr laughed at that and said "how often does he plan to do that? That's a temporary fix if I've ever heard of one." No kidding.

I'm scheduled to see a surgeon on January 30th. A mere 19 more days of waiting! I have a name to another one. But of course I can't call till Monday. I hate the weekends anymore!
Posted 1/12/2013 12:01 AM (GMT 0)
You have really been through the wringer! I am so sorry about this. 20 lbs is a lot.

Hugs, Debbie
Posted 1/12/2013 12:20 AM (GMT 0)
Please start making protein shakes as well as there is a drink called VitaCoco which has a lot of potassium and good electrolytes. It is coconut water and doesn't have the high sugar like in Gatorade which can make someone more nauseous. Mix the VitaCoco with water and take small sip every 15 minutes.

But you need to keep very well hydrated as people can live without food for a long time but there can be dangerous consequences with an imbalance in electrolytes.
Posted 1/12/2013 2:00 AM (GMT 0)
I'm finding several posts of folks who have had terrible headaches as well. I've had headaches and "IBS" for 4 years now. I'm beginning to wonder if this wasn't when my gallbladder started failing. I can now look back and think of several occasions that were probably gallbladder attacks but no one ever thought to look there. With the exception that the last (probably) attack, I had a gallbladder ultrasound and was told back then that it was completely normal. I didn't find out until my appt with the GI on tuesday that I had polyps found on that ultrasound. Having polyps can cause symptoms too. Physicians are amazing. I wonder if they screne your insurance first to see who's will pay the best. Then go from there. I am finding countless posts of folks with Ef %'s way higher (higher being better) than mine and they had their's out lickety split. Or my aunt had a scan. She had no symptoms but had polyps. They took hers out. Seriously?? Am I a schmuck??
Posted 1/12/2013 3:29 AM (GMT 0)
Nope, Red, just have a doctor whose's a schmuck!

I think you need to see a doctor or ER ASAP. We found out that my mother's gallbladder was causing bowel blockages with her. She would throw up constantly when it happened. One time they hospitalized her and pumped her stomach for 3 days to relieve the pressure on the blockage.
Posted 1/12/2013 5:11 AM (GMT 0)
When my gallbladder was causing me issues I was extremely nauseated. Drs kept blaming all my pain, which was very intense at night, on csection related since I'd just had my daughter. The pain was so intense much worse than labor.
It took 5 months for a dr to run a liver panel and even then she sent me home initially. She called and said I needed to get to an er immediately because my liver was beginning to fail. I went to the er and they did an ultrasound that showed my gallbladder had many stones and a few stones had blocked off my common bile duct which was causing damage to my liver. I had my gallbladder the next morning laparoscopically. I was in the hospital for 3 days so they could make sure my liver would be ok.
My point is if your pcp is willing to help, then ask for some blood work. He should be able to do that and he could order an ultrasound.
I wish you good luck.
Posted 1/12/2013 2:42 PM (GMT 0)
I'm definitely asking for blood work. Gotta wait for another weekend though. Weekends suck when you are sick all the time!

I see that the surgeons are often the ones who order tests when others won't. Just glad my family Dr agreed to send me to a surgeon.
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