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Fibromyalgia
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Posted 1/13/2013 7:33 PM (GMT 0)
Hi there I am a 36 year old female. Okay so my rhum doc reluctantly diagnosed me with fibro two days ago. I have a lot of the symptoms. Migraines and I do have chronic neck pain and sharp pain and aches in my hips and lower back. I never would have described my pains as all over as aches though. Others too but that's a long list. I do have a bruise like feeling in the trigger points. Most of them I didn't even noticed that they hurt until he touched them. I have read a lot of the posts here and I am not sure I have fibro. I'm confused and if this is fibro will it just get worse and this is just the beginning stages. Any questions, thoughts ,advise or direction is greatly appreciated. Thanks for taking the time!
Posted 1/13/2013 7:56 PM (GMT 0)
Hi, Leelu, and welcome!

You know, it's so hard to answer your questions definitively because Fibro varies so much from person to person. You say you've been reading posts here - did you happen to notice "Fibro 101," at the top of the list of threads? That could probably help some.

Some of my symptoms have gotten much worse, but then I'm 20 years older than when I was diagnosed (I was your age.) But then, others are better....and I've learned to laugh at some, whereas in the beginning I couldn't. Heck, I didn't even know there was such a thing as Fibro back then.

Hope you keep and posting and reading - we are a kind of family here, and do eachother a lot of good.

Debbie
Posted 1/13/2013 8:19 PM (GMT 0)
Hi Debbie thanks for answering. I did read the 101 including the long list. I do have a good majority of them. I'm just thought that the main defining symptom was an all over ache. I don't really feel achy. I'm not even sure what I'm feeling anymore. I keep analyzing every sore spot on my body. I guess I am freaking out a little right now.
Posted 1/13/2013 9:30 PM (GMT 0)
Leelu,

Did your Dr. prescribe any medication for you? How is your Dr. treating your Fibro?
Posted 1/13/2013 9:55 PM (GMT 0)
Yeah he took me off Prozac and gave me Cymbalta. Today was my third dose. I also take Celebrex for lung inflammation. Recently started midrin and limbitrol for migraine. Ritalin for ADD. I feel so full of chemicals right now! He sent me to a neurologist for the migraines and now wants me to see a physiatrist to asses my joint issues. He has pretty much ruled out auto immune disorders and isn't 100% that I have fibro. He just can't seem to fit me into any other category.
Posted 1/13/2013 10:15 PM (GMT 0)
Hi Leelu, welcome to the forum!

There are no specific lab tests for fibro. Fibro has many symptoms that mimic a lot of other medical conditions...so it is not uncommon for a rheumy to run bloodwork to rule out any autoimmune connective tissue disease. A tenderpoint exam is done, ususually pain is bi-lateral and ubove and below the waist. We are all differant though and like Debbie mentioned our symptoms can differ.

Differant things can trigger the intensity of pain...cold damp weather, stress or overdoing may cause a flare. Pacing yourself, getting some daily exercise and taking time to relax helps.

When it comes to meds...we are all differant in what works for us. For my fibro I take Savella, it is a SNRI and I also use muscle relaxers when needed. I also take supplements of Vitamin D3 and Vitamin B-12 and take a good multi-vitamin.

Soaking in a tub, taking a shower and using moist heat heating pads also help with pain relief. I do meditation, deep breathing and visulization on a daily basis to help with stress and pain.

I don't know if I'd call fibro progressive...as you age there is a natural decline that you experiance...if you have other conditions it does have an effect on your well being. On this forum you will see the phrase....one day at a time...that is the easiest way to live...also believing you can still have a great life.

Glad you have joined us...keep posting...we care :)

Hugs, Robin
Posted 1/13/2013 11:21 PM (GMT 0)
Thanks for the responses. I do love the name crazy kitty lol. I do have the bi lateral tender spots above and below the waist. I just feel kinda lost right now and confused. So it's nice to know there are others who don't think I am crazy or a hypochondriac. Honestly I am just annoyed with the whole thing.
Posted 1/14/2013 5:15 PM (GMT 0)
Well, I don't blame you a bit! It IS annoying. You just want to live your life and all this stuff keeps taking center stage. I never had true all-over pain, either. But it seems a lot of people don't, it's just widespread enough for them to use that term, I guess...

You said you're taking Midrin for your migraines. It was like a wonder drug for me for almost 20 years, and then suddenly it was taken off the market in the US, I think last year... (You must live elsewhere? If not, maybe it's back? That would make me very happy!)

I am taking a bunch of chemicals too, right now, and though I need to for pain, I sure don't like it! I'm always trying to whittle them down...hang in there!

Debbie

Posted 1/15/2013 3:04 AM (GMT 0)
Yeah it's back on the market. I live in Texas but I assume its national. When I first googled it I saw lots of people complaining that their miracle drug had been taken away. I also feel stupid. It never occurred to me until this morning that wearing a bra doesn't have to be painful. It's just another nuisance that you put up with. I have never known anything different. Sigh lots to learn. Thanks again.
Posted 1/16/2013 5:34 PM (GMT 0)
Leelu,
Have you ever taken a fluoroquinolone drug in the past? This would include Cipro, Levaquin, or Avelox? I'm seeing similarities in your pains to mine.
Holli
Posted 1/16/2013 8:11 PM (GMT 0)
Hi Leelu,
I seen where you wrote about your bra hurting. I also have that problem sometimes. I have learn that them tees( the ones teens use to get the layer look, that cling to you)with the support build in them are good to wear with a big shirt. I'm smal there so it works great, it might not work for a someone bigger .
Posted 1/20/2013 9:10 PM (GMT 0)
Holli I have never taken any of those particular drugs. Did they work well for you?

Mrs. Unique I have dd and have to wear an underwire. It sucks. I do use the built it bras at home but then I feel smoshed. Lol I am going to break down and spend the 60 bucks on a Spanks bra. They are soooo comfortable.
Posted 1/21/2013 1:41 AM (GMT 0)
Cipro and the others are antibiotics that some say may have contributed to muscle pain. I've taken them, I don't know what to think of them
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