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sensitive hearing with fibromyalgia

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Posted 3/26/2013 12:42 AM (GMT 0)
Hi Karina here from Tasmania, just a quick question i have fibromyalgia diagnosed over 7 years ago, i have extremely sensitive hearing sometimes, like its very hard to tolerate loud noises or they seem loud to me and unexpected noise make me jump through the roof like my nerves are on high alert.
Just wondering if anyone else has this same symptom with hearing?
cheers
Karina wink
Posted 3/26/2013 12:52 AM (GMT 0)
Yes! I startle easily at loud and sometimes not-so-loud noises. I always hope I'm alone in the room when it happens, because sometimes I literally almost jump out of my chair. smhair


Loud, constant noises bug me, too--especially the radio, TV, YouTube turned up too loud, etc.. I find I have to keep turning the sound down or I start getting distracted by the noise.

Posted 3/26/2013 1:09 AM (GMT 0)
I carry ear plugs in my purse.

This is one of the symptoms that really lets me know I am near a flare.
Posted 3/26/2013 1:22 AM (GMT 0)
Hi, Karina, and welcome! Yes, many with fibro are sensitive to sounds. I'm hearing impaired from another illness yet the TV commercials are soooo loud to me. We also can be sensitive to light and touch, too.

Be sure to read Fibro 101...the first thread on the forum. There are links to good information about fibro and you can learn more there. I've had fibro for decades and I am still learning more about it. Good starting links for you would be Symptoms and A Thorough Explanation of Fibromyalgia. You might see other things that you didn't realize was caused by fibro. All the links are good so do check them out.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 3/26/2013 4:03 AM (GMT 0)
Hi, Karina. Nice to meet you.

Yes, I'm the same way - unfortunately. A night and day difference from how I used to be. Like Sherrine, I don't hear very well at all, and yet the sensitivity is there....the worst of both ;(

Do you also have a hearing loss?

It started with my first pregnancy, 30 years ago. I was at a New Year's Eve party and the music was so loud I had to go into the bedroom with all the coats and crawl under them! It didn't seem to bother anyone else, though....that seemed kind of weird, but I figured maybe it was just being pregnant.

Another time I had to leave a concert in tears because my ears hurt so badly. Again, it was just me. Movies can be really bad - I've had to use earplugs many times.

And then there's the dogs - before, I loved it when they'd howl with the sirens and come right up to me (we even used to laugh when they'd wake us in the middle of the night! Ah, youth!) Now I cover my ears and grit my teeth until they stop.

Debbie
Posted 3/26/2013 3:32 PM (GMT 0)
My mam's hearing is really sensitive to noises, sometimes you can just be talking and to my mother it feels like your shouting, my mothers get worse as the day is going on. I myself have never had this with my fibromyalgia, but i think that's because my meniers has effected my hearing .

Noise canceling headphone are great because if your watching tv or listening to music then you have it set to just the right level for you.

Posted 3/27/2013 6:54 AM (GMT 0)
Sometimes I can tolerate loud music, but at other times, I feel as if I'm being physically assaulted by it! Most of the time, in my car, I put the music in the back seat instead of in the front. That helps a lot. Bass sounds drive me crazy.
Posted 3/27/2013 11:32 AM (GMT 0)
I do still go to outdoor concerts/music venues for jazz, creole, and even sometimes rock. I take earplugs to use when I need. that way I can enjoy the music and the event without feeling assaulted

Frankly, the only really bad time I had in recent years was an outdoor venue that allowed smoking. People drank, they smoked, my senses got assaulted and even the ear plugs couldn't save me.
Posted 3/27/2013 3:40 PM (GMT 0)
Kids screaming and some one playing drums  people smoking the smell makes me heave, when you are next to some one who smokes and can smell it on them smhair

 also when you pass a cafe and you can smell bacon etc

Posted 3/28/2013 4:03 PM (GMT 0)
I feel like my hearing has decreased and have to turn up the TV or music to hear it. Also, as my Fibro gets worse, I constantly have a loud buzzing in my ears and once in a while a loud ringing. I have been to many ear doctors in the past and they just told me I had a little fluid. Nothing else wrong.
Posted 3/28/2013 8:09 PM (GMT 0)
Yes!  We can be very sensitive to stimulation (sound, smell, touch).

I can't stand many noises they go right through me, and many levels of sound.

Constant hums that other people don't even hear drive me batty.  TV & music if it gets to a certain level it just is very intollerable.

Ear plugs are great for night time when the sounds go right through me and wake me up.

You are not alone!

Posted 3/29/2013 1:54 AM (GMT 0)
I have this too. I cannot even tolerate the sound of a pop can being set down on a table or countertop. I am actually glad to have seen this thread because I wasn't sure if I was alone or not.
Posted 3/29/2013 5:28 AM (GMT 0)
I can't eat off of stoneware plates because the sound of the silverware scraping it sets my teeth on edge.
Posted 3/31/2013 12:57 AM (GMT 0)
I can't wear earplugs because my ears are so sensitive it feels like someone is sticking a knife in my ears.

I have a hard time sleeping unless I have a low steady hum like a fan on.

Someones teeth scrapeing on silverware.

I have to keep turning the tv down through the day because it feels like it is just getting louder and louder.

Can not have the radio on in the car at all, especially when driving

These people who drive around with the rap music and all you can hear is base. Oh lord that gives me a headache and my heart will actually slow down and beat with the beat of the base. That is such a weird feeling that you can't even imagine unless you've had it happen.

Jump at the slightest noise

I have to have the bedroom totally dark because I swear it feels like I don't have eyelids.
Posted 3/26/2016 12:02 AM (GMT 0)
Hi Karina-

I signed up here just for you.
You are not alone!!!!
All of the posters who told stories of over sensitive hearing, I share similar "discomforts" (that is how I spell pain)
I even had a hearing test (when the TMJ dysfunction plagued me) where the doctor said I have dog hearing.

If any of you have ANY ear symptoms you MUST see an Ear-Nose-Throat Specialist. Regular doctors will misdiagnose you. A large percent of fibro folks have TMJ dysfunctions. It is a complex joint. Both dental and medical doctors must work together to help you.

There is an organization Noise Free America (dot org)that we all should look into. They promote the fact that we should have the right to live in peace and quiet. Today's world is harmful to young developing ears. We need to speak up if not for ourselves, but the children who don't know their hearing is being taken away from them.
Posted 3/26/2016 12:22 AM (GMT 0)
Definitely sensitive to loud noise! And it gets much worse with a flare up! This is a very common symptom with fibro...

Socially i find i can adapt to it most the time, but maybe not in a flare up.

Lj
Posted 3/31/2016 5:27 PM (GMT 0)
Yes. I can relate! I have a large family and everyone talks over everyone. There are a few family members who talk much louder than the rest. I can hardly take it. I thought it was just me being over sensitive but have been reading about Fibro and loud noises. I even keep the TV at a minimum. I hate noise and loud people. lol
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