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Posted 5/11/2013 9:58 PM (GMT 0)
I am new to this forum and am so happy to find it! I was diagnosed about 20 years ago with Fibro and was really bad for several years. Then it seemed to have went in to "remission" for about 14 years. In February of this year I got a Flu / bronchitis/ strep bug. In bed literally for 12 days I ended up on Z-Pak and had to go to doc 2 days in a row and was given a steroid shot, I have had the worst time trying to get over this.

Severe digestive, muscle, weakness and what seems to be breathing problems. I also had Pleurisy 2 weeks after I started to feel better from the bug I caught:( Anyway I have been having a lot of trouble with my floaters and flashing lights in my eyes...it worse when I get upset or anxious. I have been having a lot of "allergy" sensitivities to almost anything I smell. Some days its hardly noticeable and others just light normal smells just overwhelm me! I wake up with panic feelings through the night and do not sleep well at all. Had a lot of throat/swallowing problems. I could keep writing about my symptoms but it all seems overwhelming to me just writing it :( Does anyone else have any of these problems?

I am not taking anything al all right now and haven't since mid-March as I seemed so sensitive to everything I was afraid to try anything. I lost 15 lbs. due to inability to eat and lack of appetite. My appetite is better now but intestines are so troubled!

I will give a little background of my life the past few years. I faced a very stressful situation for 5 years when my daughter married and moved 6 hours away and wa not coping very well with the change and they lost their business and then 2 1/2 years ago the moved here and have been living with us. They have 3 children 5,3 and 1. While we all get along very well I think it has been a lot more on me than I realize. I was so "focused" on how to help them get out of the debt and keep things on an even plain for our home and now that things are more "settled" ...(.they are almost completely out of debt and my son-in-law has a good job now and they are looking this summer to be able to get a house) I feel like I am falling apart! I also have a business that I own and have owned for 13 years.

I guess I am just wondering if ALL this could be why I am so bad physically now?

The first time I was diagnosed with FM was 2 1/2 years after my father was killed in a auto accident it seems to all be re-playing.

Feeling Desperate for help!!

Reading your posts have comforted my fears thank you all!

 

Posted 5/11/2013 10:15 PM (GMT 0)
Sound like the stress has got you in a major flare.
Maybe once they move out and things calm down you'll start feeling better.
Meanwhile start taking some "me" time. If you can go on a week's vacation. If not then find a way to just get away for a weekend or a day trip. Try to find time to focus on caring for yourself.
Posted 5/11/2013 10:16 PM (GMT 0)
Hi debsoap,

Welcome, it's nice to meet you and have you here with us. So sorry to hear of all the troubles you've gone through and you're currently going through.

I've had fibro for several years and I have had some of the symptoms you're going through. You'll get a lot more help from others in here so I'll share what I have in common with you first.

I heard fibro and multiple chemical sensitivity can be associated with each other. I do have MCS and I am sensitive to certain smells. Try not to be around strong chemicals.

Concerning sleeping, sleeping pills didn't work well for me and I was very groggy the next day so I take sleep supplements, tylenol and benedryl for my allergies.

Have you been to a eye doctor lately?

My digestive issues happen if I don't eat healthy. Make sure you're drinking enough water too.

Throat/swallowing I had this issue when I was around a cat. I also had a gastronologist do a esophogus expansion because of my swallowing issues.

Good luck to you.
Posted 5/12/2013 6:11 AM (GMT 0)
Welcome debsoap- as I read your post I thought how much stress your in. Stress will really set off fibro. You might not feel that much stress, but it sounds like you have a lot on your plate. You might be able to change some things around to give yourself some relief.

Many of us fibromites do have eye issues. I would first get your eyes checked out by a Dr. Having floaters are symptoms of many different diagnoses. Our vision is one precious gift we have.

I am not sure if you see a therapist, but I find it as a stress reliever too. They are very helpful in trying to reduce the stress were going through.

I glad you joined with us. I came here myself looking for some relief too. After a few months my health and fibro began to improve. It was here where I learned some helpful techniques to managed my fibro better. I hope you can find the same.
Posted 5/12/2013 12:34 PM (GMT 0)
Thanks so much for the replies! I also meant to ask does anyone notice hormone fluctuations making things worse? I have periods of time where things seem so much worse and I feel depressed Nd I have nothing to be depressed about!
It's so nice to be able to tell these things to and not feel like people won't understand or like I am looking for sympathy. I am looking for someone who understands :) thank you guys!
Posted 5/12/2013 1:57 PM (GMT 0)
So sorry you're dealing with all this!  Life can be overwhelming.  Maybe just take one problem at a time and focus on that; that helps me sometimes (yeah-easier said than done, I know. sigh.)

You mentioned your intestines are 'troubled.' I would guess you are dealing with diarrhea(?)

I developed chronic diarrhea in the mid-90s, and was put on Elavil, which has a drying effect. Was just thinking maybe you could discuss this with your doctor (if this is the problem), as Elavil is also an anti-depressant.  I can understand that you wouldn't want to take anything else at this point, but perhaps this could be a win-win medication because of your current circumstances--temporary help for both issues--and I think some people here take Elavil for fibro, too, so that may be another plus.  Just something to consider....

In another post I mention my husband's problems with his lungs.  It sounds somewhat similar to yours.  We are told it's probably a viral thing, but it sure hangs on for a long time!  I hope everyone dealing with this feels TOTALLY better soon.

Best wishes and prayers things turn around for you soon!

 

Posted 5/13/2013 5:10 AM (GMT 0)
Debsoap,
I have been seeing black spots for about 3 months now and no idea why. Eye Dr said no reason for it, regular Dr said same thing, going to neurologist in June.

Having what seems to be circulation issues too, but that test came back normal...sigh.... too many issues without answers....
Posted 5/13/2013 1:06 PM (GMT 0)
Dustinshunny- yeah I have bad what seems like circTion problems also. My arms were both going to 😕"sleep"and did it even during the while I was moving around. It's better now but for about a month it was happening regularly on a daily basis. I have alot of pain in my neck and am wondering if a pinched nerve or something could cause the eye problems :/

Luvsmini- I have just the opposite! I said I wasn't taking anything but I have been taking Shaklee acidophilus system to try and help get my intestines straightened out ... The constipation has been terrible and I think it is causing me alot of back pain also .

I have a few days were I feel like I am going to "be well" and them I have a terrible day again works on my nerves so much!!
Thank for the replies !
Posted 5/13/2013 10:54 PM (GMT 0)
Hi Debsoap,

You do have a full plate! You said you've been reading posts here - did you notice Fibro 101, first thread on the list? That gives tons of great information. I've had Fibro for at least 25 years, but I was amazed when I read the list of possible symptoms on that thread....there are also links to similar conditions, what doctors think is going on with us, and lots more.

I can relate to the constipation issue - oh boy, that's no fun!! For that I take Miralax and Citrucel daily (on the advice of a gastroenterologist) and have also altered my diet....but that's a loong story.

I have problems with smells, too...it seems to wax and wane a bit, as you said....it can be bad or badder ;) Lately, I can't stand the smell of any food, because I've been nauseous all week for some odd reason. Saturday I had an extremely greasy grilled cheese sandwich for lunch and really regretted it! Bleah!

Glad to have you aboard.

Debbie
Posted 5/14/2013 5:44 AM (GMT 0)
Thanks Acheybody I have some Miralax I just haven't started it yet because I had so much stuff going on! My stomach was such a mess that I have been afraid to try anything... I lost 20 lbs since I got sick in Feb ... I am sure that not eliminating all the toxins that are probably built up I my system just from the meds I took while I was sick is not helping me any.
I am in the process if getting a New dr. But can't get in until July. I would very much like to hear about your diet. I have tried to read and find some info about what's good and what I should stay away from.
I am also looking to going to an allergist my husband insists that ii need to find out what allergies I have so I don't have to worry unnessicarily.
Do any of you take Zyrtec or Claritin

Thanks!
Posted 5/14/2013 4:38 PM (GMT 0)
Debsoap,

The diet I follow (not perfectly) is one where you eat more soluble fiber than anything else. There's a thread about it on the IBS forum here at HealingWell. Go to "IBS Resources" - then "IBS Resource Center" -then "Book Excerpt - Eating for IBS." The idea that too much fat can cause problems didn't surprise me, but it turned my ideas about eating fiber upside-down.

I had tended toward constipation for most of my life, and it was just getting worse as I aged. The low point came when I went gluten-free for about a month, precisely FOR my constipation, and instead, it made it way worse!! I was desperately looking for help, and that's when I stumbled upon this.

The excerpt is long, and it takes some time to wade through it, but for me, it sure was worth it. I'd be interested to see what you think, if you do read it.

I hope you're having a good day,

Debbie
Posted 5/15/2013 12:04 AM (GMT 0)
Your post title talked about eye troubles, if your having any problems with your eyes then you need the help of a good eye doctor, you only have one set of eye's and you should tell your eye doctor. Your eyes are very important and anything happening to them can be very scary, so please go see an eye doctor about those floaters,
Many many well wishes and keep us posted.
Posted 5/15/2013 12:36 AM (GMT 0)
I am so thankful today was a much better day! Trying to keep stress under control instead of it controlling me.... I have read up the advice you guys have given me and feel that there are some things I can do to better help myself to feel better. Does anyone know very anything g about adrenal exhaustion? I have been reading some about it and it sure sounds like part of the problem!


Thanks for all your comments everyone!
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