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Fibromyalgia
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Posted 7/21/2013 8:37 PM (GMT 0)
A take savelle and gabapentin but I still can't go gercery shopping or take my mom to the doctor or anything I can't rest between actives .On them kind of day a need to take norco to get me through the day. The next day I'm down, in bed,in pain. I could take another norco but I don't want to take them all the time...... So I'm ask all you if you go through this or something similar. What do you do to get through them days where there no resting until it's done. P.S. I'm still working trigger spots with a tennis ball and it helps a lot. Thanks for that advise. :-)

Post Edited (mrs.unique) : 7/21/2013 2:40:03 PM (GMT-6)

Posted 7/21/2013 9:43 PM (GMT 0)
When I go shopping I always use the scooter carts, because I wear out before I get done. It helps some with the over doing.
Posted 7/21/2013 10:00 PM (GMT 0)
I could do that in Wal-Mart but not all the other grocery stores around here have them. Thanks for the advise. :-)
Posted 7/21/2013 10:15 PM (GMT 0)
Oh yes, a full-on day can put me in bed for days afterwards. In order to get through the full on day to begin with though, I just rest for several days beforehand without doing any hard work or intense exercise. I'll only do short walks, Physiotherapy stretches and basic self-care, and then do sit-down tasks the rest of the time. Otherwise I just can't get through the big day.

Looking forward to hearing some more sophisticated advice than my own (which is pretty basic).
Posted 7/22/2013 12:52 AM (GMT 0)
It hard for me to take it easy with a child. He is getting older and is helping a little more, thankful for that. I'm easy to get stressed out and that don't help anything. As for them stretches you talked about I have no clue what they are. Lol...Going to google it. Thanks for your help.
Posted 7/22/2013 1:07 AM (GMT 0)
Oh. My mother has CFS and I know it's been very difficult for her to manage things with having children as well as poor health. I tend to stress out too.

I see a physiotherapist (physical therapist, a kind of allied health professional) for my scoliosis, complex regional pain syndrome, flat feet and fibromyalgia. The Physiotherapist has given me special stretches and exercises to do to improve my posture and allow me to complete a full range of movements so that I don't become stiff and unable to do things like brushing my hair (before seeing the physiotherapist, I had my brother do my hair and I could only wear button-up shirts because I couldn't lift my arms above shoulder level). Anyway, the reason that I developed mobility problems was that I had been still for too long (because of the pain and fatigue) and I now know that I have to make myself move to stop my pain and posture from getting even worse.
Posted 7/22/2013 2:44 AM (GMT 0)
It sounds like you have came along way and I know it's not been easy for you. Keep up the good work! I've have scoliosis also and had to where a Milwaukee back brace in my teen years until I stopped growing. Moving can be pretty hard to do when in pain. :-(
Posted 7/22/2013 5:40 AM (GMT 0)
Thanks, it has been tough. I'm feeling pretty good today though! Well, relative to how I've been feeling most days in the last few months.

Oh, that must have been annoying! But worth it, of course.

Oh yeah, pain can be SO debilitating!! :/
Posted 7/22/2013 7:49 PM (GMT 0)
I'm glad the trigger point therapy is helping you.  It helps me a lot but I do keep after it.  If I'm really sore in a spot, I start searching for that trigger point and massage it and the pain eases and usually goes away in that spot.

 

I do wonder, though, why you are taking all those medications when they obviously are not helping you.  You are spending a lot of money, putting chemicals in your body, and are getting nearly no results!  I would suggest that you talk to your doctor, get off those meds and try something else.  It's trial and error for us with fibro.  I tried a lot of different things until I found what helps me be in control of my pain.  You are not in control of your pain. 

 

I can manage with over the counter medications, supplements, and a muscle relaxer.  That has helped me a lot.  Some use Cymbalta or Lyrica, etc.  There are things out there that can help you.  You shouldn't be suffering the way you are describing so you do need to have a heart to heart talk with your doctor.  He/she probably doesn't know these medications aren't working for you. 

 

There is a link in Fibro 101 with pain charts and a pain journal.  I suggest you start keeping the pain journal and recording, from the pain charts, the type of pain you feel with doing certain things.  Then take this with you to the doctor's office and show this to your doctor so they better understand what you are going through.  If they do nothing, you need another doctor.

 

Sherrine

Posted 7/23/2013 1:33 AM (GMT 0)
Boy, that's no joke on what I spend on med.,doctors and lab work. I thought the meds. was helping me because before I was on them I was in bed all the time; except to cook and laundry. I even helped my son with his home work in bed. I just thought that this is as goodas it's going to get. The doctor put me on lyrics first and it done nothing but add pounds to me. I will try the pain chart and take it to him if I can feel better this it would be awesome. I don't think I have access to the best (top) doctor because of the rule area I live in. As it is now I drive an hour to see him. He seem to be a good listener and caring. I think he would look at the chart.
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