Kidney Stones/Fibro

I am starting my third bout of kidney stones and this is the second time a doctor has told me that the size of the stones I have shouldn't be causing me the pain I'm in. Well - I am in pain and I know its the kidney stones because each time I knew I had kidney stones because of my pain. Then I thought - well fibro makes you feel more pain than you normally would. Something that normally wouldn't hurt someone else would hurt us. So applying that to kidney stones, maybe smaller stones are hurting me when they wouldn't hurt other people due to my fibro. Does anyone else have experience like this? Not necessarily kidney stones but any kind of thing like this?
Sometimes I get upset that doctors don't consider fibro when discussing other medical issues especially when fibro effects so much.

I have had many, many bouts of kidney stones. Usually mine are way to big to pass on their own so I have also had many procedures to get rid of them. In my experience its the smaller ones, the ones that can move down the tube, that hurt the most. I mean it makes sense right? The stones are very sharp and they are moving so that means they are scratching you all along the way. That means more pain. Don't get me wrong, the larger ones hurt too but they are too big to move so they aren't scratching and tearing you which in my opinion causes more pain.

And then you add fibro to that!

just out of curiosity what size are your stones? My doctor told me that anything under 3.5 can usually pass on its own. Almost all mine have been larger than that. I actually had one that measured about 2.0 in early july (several years ago) and had grown to a 10.5 by late September.

I think the worst thing about the stones wasn't the pain (although that can be really bad) but the stents. Have you ever had one?

I completely agree. This is my 5th time having kidney stones, and every time it gets worse and worse. This time the stone is 7x9mm. The Dr said that I have to have lithotripsy, but I don't have health insurance so they want me to pay for it up front. Unfortunately I don't have $5000 just laying around. Anyway, I agree that because we have fibromyalgia it makes every pain intensified by about a million times.

I just found you by googling "fibromyalgia and kidney stones". I was wondering about the pain myself. It's over the top! I know I've had stones pass twice now. Not from the Dr's diagnosis but from knowing my own body after 10 years of dealing with fibro. I'm thinking the reason I was doubled over in pain again this month was from the stones passing. I called EMS the second time I had this pain. I couldn't lie down or stand up. Was barely holding myself up on a cane when they arrived. The paramedics made me walk down 14 steps and up a large hill and I had to make that last huge step up into the ambulance without assistance. This was crazy enough but when I got to the ED, the Dr asked me "what do you want from me? you're wasting my time". He sent me home after I insisted on a CT scan but didn't provide me the "actual" results of the scan or the blood and urine tests. 5 days later is when I read the results myself: protein and blood in urine as well as diverticuloses on the left colon, wbc abnormal, glucose levels high. The Dr sent me home saying "you're not going to die and we don't know whats wrong with you". He did not perform an exam other than the CT scan I had requested but did this w/o contrast. My family Dr also found bacteria in my stomach. Gave me Flagyl to clear it up. I have now found out I'm allergic to Flagyl. Had to make the 3 hr r/t drive back to the Dr who called in "an alternate" antibiotic that I could take with Benedryl to clear up the allergic reaction. When I picked up the medicine and got back home - about 8:30pm by now, I opened up the medicine to find she had given me "metronidazol" which is the same thing as Flagyl. Results: No diagnosis of the stones but now I'm bleeding profusely (haven't bled in over 4 yrs); hands and body are swollen, blistering, itchy rash on hands, shoulders, neck, face, and my eyes are swollen shut. I'm just taking benedryl now every 6 hrs to clear up the allergies until I return to the Dr on Wednesday - 3 more days! I just had enough energy to type this and now going back to bed. I'm so very tired and confused. Scared of the medical treatment. So, I guess the next time I have a stone - feeling like I'm giving birth - I don't call a Dr. and just lay or stand in agony.

Thank you! I will look into this diet recommendation!

Thanks! I've had four nights this month with no sleep at all. Finally was able to see my primary dr. for proper care. It's just a shame, you can't rely on the EMS/ED in after hour situations.