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Posted 9/13/2013 3:47 AM (GMT 0)

Since I've been diagnoised with Fibromyalgia, I have experienced lack of sleep, muscle pain and so on. Lately, I have experienced a lot of pain in my buttocks area and on my left wrist. I get so cold (even during summer time) and my whole body starts to hurt so bad. Does anyone else, experience pain in either of these areas and what do you do for the pain? yeah
Posted 9/13/2013 4:07 AM (GMT 0)
Hi nomorefibro, and welcome. I saw your post on the other thread, too, and while some people are on here at night, i do believe there are a few more here during the day. Sometimes it takes a bit before people see others' posts, but the group here is really good at supporting each other! :-)

I have widespread pain from the top of my head to the bottoms of my feet. Not everywhere all of the time, but somewhere is always hurting. And cold does make it worse. Sleep is difficult for many of us.

If you look at the top of the fibromyalgia page, there is a thread called "Fibro 101." It has a wealth of information about fibro. We are all different and it's kind of a trial and error to find what helps with your pain. For me, gentle stretching, ibuprofen, heat/ice, hot showers and sometimes resting an area (my hands/arms/wrists will hurt badly after use, and I have to rest them) will help.

Feel free to ask any questions here. We may not have answers, but we do support each other! We are glad you joined us.
Posted 9/13/2013 5:02 AM (GMT 0)
I have ostoarthritis in my lower back so my back hurts most days.

I hurt in random places at random times. I do own a few braces for resting joints when they hurt too much to move. I sometimes need it anywhere from a day to a week, depending on what I did to it. I'm prone to tendonitis with my lupus.
I take tylenol, tramadol, gabapentin, hot showers or soaks, heating pads, ice packs, muscle rubs or aspircream.
Posted 9/13/2013 6:01 AM (GMT 0)
Hi, Nomorefibro. Welcome! Glad you found us, though sorry for the reason. Yes, I've had a lot of pain in my buttocks over the years, too. Not fun. And cold? UGH. Yesterday it got down to about 68 degrees and my plastic eyeglass chain felt cold on my neck! I'll be in turtlenecks next by week at this rate :(

I take Gabapentin and Hydrocodone for nerve pain and Nortriptyline and Klonopin for better sleep (which also helps with pain levels.) As Austen said, what helps us varies a lot from person to person. Some can go the all-or-almost-all-natural route, others need more help.

Walking is good, or movement in water, or yoga - something that doesn't cause more pain....gentle exercise is what we need; we really have to scale back our expectations of what we can do, which to me is the very hardest part of Fibro.

But we do have to keep "doing." We can't stay in any one position or use any one group of muscles too long, or we'll end up paying later in pain and fatigue....I'm sure you know all about that.

It's very important to have a good relationship with your doctor who, of course, believes in Fibromyalgia....some still don't, even today, so don't waste your time with one who doesn't.

Hope to see you around more. We're here to help eachother.  :-)

Debbie

Posted 9/13/2013 6:39 AM (GMT 0)
Welcome nomorefibro to the forum! As one described I have pain from head to toe. I use to be miserable at night with pain, but I finally found what works good for me. I am cold easily too and then It causes more pain for me. The bad thing I live in Alaska and it doesn't help my condition. So what I do is sleep with a nice soft heating blanket, even in the summer. I found out it helps relax my muscles. It sounds crazy but I sleep witha a fan so I have circulating air also. We dont have air condition in Alaska. Our high in the summer if your lucky is 65. If my joints get hurting too bad I love the voltaren gel given by my Dr. It's a prescription and It's an antiinflammatory cream. It has keep me from getting the usual injections I use to get in my hips. Taking a hot shower or bath before bed is great.

I also use subutex for pain and remron for sleep/antidepressent. We all have numeroous ways to keep our pain down. The best presription is doing light exercise. Sometimes we neee a supplement of othr sources to help us. Many vitamin supplements work well. Sometimes my pain is mostly muscles spasms. I found out the magnesium really helps me. I take it at night.

What are you currently doing for your pain? I hope you continiue to visit and I bet you will get some great ideas you can try for symptoms.
Posted 9/17/2013 5:07 PM (GMT 0)
Thanks so much to everyone who responded. Fibro. is a learning experience, for sure. I quess my biggest question is (I shared with my doctor this question as well), how do I know it is Fibro. and not arthritis or something else? I understand that there are no certain test that will tell us, so how do we know? Does anyone else wonder the same question?

Another thing, I feel as if (sickness and pain) it only happens to me, like I'm in a class all by myself. I often feel like, even if you tell people that you have Fibro. and explain it to them, they still don't get it. I keep a lot to myself, because unless you have walked in my shoes, you won't understand. I can feel great in the morning and by afternoon, I am laying on the coach with a pain pill in one hand and a heating pad in another. The pain comes on so quickly and without warning.

My right upper arm may hurt, then my left wrist and hand, and my right thigh, does that sound crazy to anyone? I experienced pain in the bottom of my feet (no longer the case, thank God), any time I walked out side. I went to a foot doctor and she said that it was my Fibro., but I'm not for sure. Is Fibro. an excuss for everything? I do understand that in our feet is every nerve that is in the body, but I can't help but wonder. smhair
Posted 9/17/2013 5:27 PM (GMT 0)
FORGIVE ME, I'M NEW TO THIS. I WANT TO RESPOND PERSONALLY TO CERTAIN PEOPLE, BUT I HAVE NO IDEA HOW TO DO IT, CAN ANYONE HELP ME?

To Achybody, you mentioned about getting cold. Where I live the temperature outside is in the 90s, but I live with my son, who is 23. We have comperized on an indoors temperature of 71, but I stay cold, sometimes, I feel as if I will never get warm again, you know that cold to the bone feeling. Two years ago he brought me an electric blanket for the winter months, I use that thing all year round. Like you, I take Gabapentin and Hydrocodone for nerve pain.
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To AK Angel, I am often waken by pain, sometimes it's so great, that I have to get up and walk. No peace to be found, that's me. I have read several articles and post where people talk about injections, but I have no idea of what they are talking about, can you enlighten me? shakehead
Posted 9/17/2013 11:16 PM (GMT 0)
Nomore, you can respond like you did or you can click on the envelope by the person's name and send a private message. That is if they have email set up.
Posted 9/17/2013 11:52 PM (GMT 0)
i am new to this so here goes dont even know if this is where i am suppose to post but have fibromyalgia and was diagnosed about 15 years ago trouble finding a doctor but have had one now for the last 4 years she has recently sent me to an interventional pain management dr. had one visit and he started me on mobic. and said he would refill my oxycontin and percocet this time have been on these meds for 4 years and are working for me but now he is not sure if i have that much pain my second appt is tomorrow and am terrified he is not going to refill my meds and i am terrified.
Posted 9/18/2013 12:29 AM (GMT 0)
I also use heated pads w/ fan going so I do not sweat uugghh sorry 'glisten' because Southern belles do not sweat. ;-)
Posted 9/18/2013 1:47 AM (GMT 0)
Nomoreo - the injections I was talking about is steriod injections in my hips for bursitis. I didn't have to get one last two years because I used the voltaren gel I mention. What are you using for pain control? Most of us have a combo of things to control our pain.
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