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Direct Sunlight or Heat Causes paresthesia on the surface of skin in Fibromyalgia individuals FM/MS

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Posted 9/30/2013 6:26 PM (GMT 0)
Does hot sunlight or heat cause paresthesia on the surface of the skin anywhere on your body where there is sunlight or heat exposed in individuals with fibromyalgia.

I have all sorts of symptoms and I am only 18 years old. I have had an MRI of the brain and a physical and my physican and neurologist does not believe I have MS.mri was clean. Which i am scared it is. I take a vitamin b12 1000 mg and it helps me with my pain. Chest pain result of acid reflux. take a ppi no more chest pain/

My symptoms are headaches all the time, dizziness with extreme physical activity or randomly. Left eye pain( eye doctor looked he said no optic neuritis) Facial pain and tingling, random heat spots of body. Pain all the way down my spine and back pain. sore fingers, sore feat, muscle twitches(visible, looks like bag of worms under skin) Visual snow in vision. Numbness occurs in cold weather while paresthesia worsens EXTREMLY in any type of heat. peeing problems, incotinece and constant urge to pee. random throat pain. foggy memory and i dont know what im doing, i lose stuff easy and i randomly drop stuff out of my hands without knowing. The end of this summer in august there was extreme deep pain in all my limbs, it was horrible. i found a hot bath helped but at the same time it made my skin tingle all over my body. I staarted taking a vitamin b12 and this extreme weakness and pain disappeared which. alcholo worsens all of my pain. My grandmother has fibromyalgia but she got hers when she was 40. also my mental health is not the best since these symptoms occur. Also if i put pressure on my limbs they get tinglying on the inside extremely quickly. Also my ring finger on my left hand was constantly tingly for a week this summer and when it wasnt tingly it was extremely sore. i get these symtoms that come and go but there always there all the time. i bend my back or slouch it gets a tingling feeling in the spine. Also i have heart palpitations but my heart is fine and that has been sorted with. there is no evidence of anything wrong with my heart but yet my heart pounds with physical activity. Also i have visual snow constantly and i have a hhard time focusing. also i have a shower with those moveable shower heads and i spray sorta hot water on my stomach. nothing that no one can handle. there was no tingling but afterwards for the next day that area of the skin on my sstomach had this painful feeling like a sunburn but there was actually nothing physical there, that was just 3 days ago. but its not there.

Im really scared i have ms but my doctors are telling me i dont. and ms and fibromyalgia are sort of similar. my doctor tells me my symptoms dont sound typical of ms. please write and help me out here. my main question is that direct sunlight or a little heat cause paresthesia on the surface of the skin in certain spots in fibromyalgia people.
Posted 9/30/2013 7:11 PM (GMT 0)
It sounds like you may have fibromyalgia, but it also sounds like you have health anxiety. Try not to worry so much. It will cause fibromyalgia to flare, if you have it. You said that the doctor doesn't think you have ms. Be thankful for that. Did they say if they thought you had fibromyalgia?

I would try not to focus on the symptoms so much. IF we notice every little thing, it can drive us crazy. We are imperfect and we will have flaws. Most everybody's heart rate goes up when they exert themselves. That is normal. Maybe you can just hear your heart better than other people can.

And if you do have fibromyalgia, there are a lot of symptoms that we just have to over look. There are so many symptoms. Have you checked out fibro 101? There is a list of symptoms there.

Try not to worry a lot. Fibromyalgia reacts to stress, and so do a lot of other ailments. If you worry too much, that will cause even more symptoms to pop up and before you know it, you are suffering from all sorts of things. So try to relax. Talk to your doctor and try to have faith in him/her. Try to enjoy your youth. It doesn't last long...

I hope that you feel better.

Hugs, Karen
Posted 9/30/2013 7:13 PM (GMT 0)
Hi, Anonymous, and welcome!  Well, you could have fibro.  We have plenty of weird things happening to us.  I get the tingling, numbness, hot or cold spots, and even spots that feel wet.  I sometimes feel like water is running down my legs or that a bug is on me.  This is all caused from nerves.  People with fibro have pain in all four quandrants of their body and to have cognative memory problems....fibro fog.  So it sounds like you have quite a few symptoms.

 

If your MRI is clean, I don't think you have MS.  That is one of the diagnostic tools for MS...MRI to see if there are lesions on the brain.  Since yours was clean, I think you can rule out that illness.  There are other illnesses that have many of the same symptoms as fibro and those need to be ruled out, too.  That's what the doctor has to do since there isn't a good test for fibro.  If all the tests come back normal, usually a diagnosis of fibro is given.  I hope you see a good board certified rheumatologist and get checked out.  Be sure they treat fibro patients since there still are some doctors ou there that don't believe this is a true illness.  NO, you are  not crazy, either.  It's not all in your head. 

 

Be sure to read Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links are called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  You just might see yourself there.  Do read all of Fibro 101.  It's all good information.

 

I hope you start getting some answers.  Just not knowing what is going on can cause anxiety and then anxiety causes more "symptoms".  Just take a deep breath and know you are not alone.  We are here to help you. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 9/30/2013 11:55 PM (GMT 0)
Hey try not to worry...I had the same scare this year where my doctor wasn't sure if I had MS. I had all sorts of paresthesias but after about 6 months they started diminishing and they are almost completely gone. My MRI came back clean too and I was able to trace it all back to nerve compression from the spine...check with a Chiro and physical therapist. A good neuromuscular massage therapist can also detect these types of blockages. I found that my anxiety was the biggest contributor to this.
Posted 10/1/2013 12:04 AM (GMT 0)
Has your doctor done any bloodwork on you? If so what kind and what was the results?
You may just have BFS. It's a safe but odd syndrome. Just look it up on the web.......Benign_fasciculation_syndrome
Posted 10/1/2013 8:13 AM (GMT 0)
Wow, I think you pretty much describe fibro. I use to have the same feelings years ago. I was always thinking I had lupus. Test after test came back normal. I would say how could fibro cause so many symptoms. I found out all my page full of symptoms were all fibro related.

I am not sure if you been fully diagnosed yet? But I would get a good book on fibro. This has all the symptoms one goes through and the reason for it. It really help me as if I were putting the lost puzzle pieces together. It all made sence as I read it.

Anxiety is very common in fibromites. You have to be careful with meds that can trigger your heart to beat faster. You mention B -12 that can race your heart. I take a medication to keep my heart rate lower. It really does help.

Some of your symptoms you can learn how to manage on your own. Some of the burning your feeling is not uncommon. My skin was actually burning as if I had a sunburn the other day. I think I have learned some good coping skills I was taught for pain control and anxiety.

Feel free to ask questions. I hope we could help you some.
Posted 10/2/2013 12:30 PM (GMT 0)
Do you guys find when you are in sun or heat that your skin tingles. aand these replys are helpful
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