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Posted 1/5/2014 4:15 PM (GMT 0)
Hi everyone,  I just found this link after reading an article online in regards to fibro/lyme.  I really hope that through this website I will be able to find ideas for real and true relief for whatever it is that is causing this horrible pain, fatigue, and "brain drain fog".  I could write a book as to my health history and would love to be able to connect the dots, find someone in the medical field that is willing to listen, and help me to get to the bottom of this illness.  I can't help but feel as if my healthcare providers have just skimmed the top of my issue and slapped the ole Rx band aid across it. Don't get me wrong here - I am extremely thankful for my pain management physician as well as my pcp - just wish we knew from whence the symptoms are stemming.  I am not a nut bar but a grandmother, mother, wife, sister, daughter, friend, nurse, and educator who's life has been extremely altered due to my ?fibro? illness.  I told my sweet husband that this year my resolution is to become more vibrant and healthy because there are things I want to do before I get too old and stove up to do them.  I am all the above listed things that wants physical freedom from this painful, emotional, and mental bondage that I am in. 
Posted 1/5/2014 6:52 PM (GMT 0)
Hi, Bolshel, and welcome! I take it you haven't been diagnosed with anything but possibly been told that it's all in your head. That has happened to many of us. Our symptoms are similar to other illnesses so we need to have tests to help rule out other illnesses before a diagnosis of fibro is given. There are tests for other illnesses but no good test for fibro. It's a process of elimination.

I would suggest that you find a good, board certified rheumatologist who treats fibromyalgia patients. There are still a few out there in the Dark Ages when it comes to this illness and you want to avoid them..waste of time and money. But those that are on top of things can help. My rheumy is not only board certified but also a diplomate. That means they have to take tests on all the new things in the field to keep the title of a diplomate. The doctor should run you through a myriad of test to rule out other illnesses.

We do have good suggestions as to help you if you have fibro. There are supplements, vitamins, stretching, gentle exercises, etc. that all help with this illness. I've had fibro for decades and have had a full and enjoyable life in spite of it. I still have chronic pain but have it under control and also have learned how to work around fibro to do the things I want to do.

There is a good thread to start out with if you want to learn more about fibromyalgia. It's called Fibro 101...the first thread on the forum. When you first open this thread, you will find a great interview with Dr. Daniel Clauw who is one of the top doctors dealing with fibro. He explains in layman's language what they think is happening with fibro patients. Other good starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. All of Fibro 101 is good so do check it out.

I'm looking forward to getting to know you. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 1/6/2014 6:10 AM (GMT 0)
Hello, Bolshel. Welcome!

It is very frustrating when no one is listenening and taking you seriously....I don't know how many dufus doctors I had to go through before I found a gem! He doesn't always give me the answer I want, but he respects and actually cares about me, takes the time to listen and then really look into things, and admits when he doesn't know. That's all I ask. And it's not too much to ask!

I was really scared, when Fibro symptoms started and then began escalating....this was about 28 years ago, and I had no idea what was going on, or that anyone else felt this way...like you, my life was extremely altered by this strange condition.

"Fibro 101" really is good. I still refer back to it from time to time. (My memory is l-o-u-s-y, so I have to!) You will find what works for you - we're all different. One thing everyone seems to agree on is the need to keep moving - gently, that is, especially at first.

I hope you'll keep posting, because we do care!

Debbie
Posted 1/6/2014 7:48 PM (GMT 0)
Hi there Bolshel. I'm new here too, so welcome! Sorry to hear about the struggle you're having, and I too hope you find some great help and encouragement here. One thing that may not hurt is to look into some body cleansing treatment from a natural health practitioner to cover all your bases. Getting toxins out of your body will be helpful in addition to whatever a rheumatologist may instruct you to follow. In the meantime, may your new year bring renewed hope and healing for you! Hugs and blessings :)
Posted 1/7/2014 2:31 AM (GMT 0)
Welcome! I too am focused on being the healthiest me I can be in 2014. You will find lots of support and encouragement here. I am finding that focusing on wellness is a full time job, but I believe it will be worth the effort. One day at a time!
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