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How does Fibromyalgia end?

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Posted 2/3/2014 3:59 AM (GMT 0)
Something I think about since I know that I have fibromyalgia:
1.) It is said that it can't be cured, if you got it you will have it for the rest of your life.
2.) It is said that you would not die from it, but is this true?
3.) It is said that the older you get the worse it will be (besides that you may improve your dealing with it)

Life expectancy in western cultures is about 72, I am 66, so statistically I have another 6 years to go.

How will I end? Will the fibromyalgia pain increase until it kills me? Will the arrhythmia of my heart become a final crescendo? Has anybody watched somebody die under these circumstances and has the guts to share it with those who would like to know?

Thanks for even reading this,
Satpathie
Posted 2/3/2014 4:49 AM (GMT 0)
Hello Satpathie and welcome to the forum. Fibromyalgia is not degenerative and it will not kill you. I've had it for three years and I'm so much better than I was when I was first diagnosed. It is a journey. Learning what exercises help, how to eat right and what foods bother you. Learning what supplements and prescriptions help. All of this is individual but I advise you to leave no stone unturned because you never know what might help. I got a lot of help from acupuncture and I never would have thought that sticking a needle into my muscles would help at all.

Joy
Posted 2/3/2014 4:56 AM (GMT 0)

Satpathie said...
Something I think about since I know that I have fibromyalgia:
1.) It is said that it can't be cured, if you got it you will have it for the rest of your life.
There is no cure right now for fibro. It is for life. Some days are harder than others.

2.) It is said that you would not die from it, but is this true?
You will not die from fibro.

3.) It is said that the older you get the worse it will be (besides that you may improve your dealing with it)
I don't know about that. There are others who have had it longer than me who can answer that, but I'm getting used to it.


Life expectancy in western cultures is about 72, I am 66, so statistically I have another 6 years to go.
My parents are 76 & 77 and still going strong. My grandma died at 85. My aunt is 82. Stats are an estimate not set in stone.

How will I end?
Who know but the good Lord himself.

Will the fibromyalgia pain increase until it kills me?
You can't died from pain.

Will the arrhythmia of my heart become a final crescendo?
Who know?

Life can end at any moment for anybody. No one know when they will die, but if you live you're life in fear you're not living. nono

So live life to it's fullest and love everyone like it was your last minute on earth. yeah

Posted 2/3/2014 6:06 AM (GMT 0)
Hi, Satpathie. Welcome to the forum.

You sound pretty anxious, which is understandable. Pain and lack of ability to do what you want will do that to you! We are here to help you - that's what we do, help eachother....and we all need it at times.

Why don't you start an introductory thread, telling us a little about yourself? (If you put something like "new here" in the title, more people will probably notice it.)

Did you happen to notice our first thread, "Fibro 101"? It's a really good read....it has links to a list of possible symptoms, "what else could it be?", ways to cope, what doctors think is causing Fibro, and much more.

I hope to hear more from you. :)

Debbie
Posted 2/3/2014 10:40 AM (GMT 0)
Hello Satpathie,

You do sound very anxious about this so I think that the best thing you can do for yourself is relax. Realize that attitude is the biggest part of feeling better. Think positive about things. You will have a much more enjoyable life.

I was worst when I first got it, spent two years down in bed. I am a lot better now. So don't think it is only going to get worse.

I hope you look at fibro 101. It has a lot of information that will probably put your mind a little more at ease.

Keep posting as it does help.

Hugs, Karen...
Posted 2/3/2014 1:49 PM (GMT 0)
Doing what we can to help ourselves makes living with fibro easier. It is not going to kill us, but if we do not exercise our muscles will start to atrophy and we could lose some mobility as a result. Doing what I can reduce my stress has really paid off. Walking has given me more energy. Relaxation therapy also help eases pain.

I have learned that if I am busy doing things i enjoy, it is easier to take one day at a time. It also distracts pain and worry.

Having survived lung cancer, and living with some potential life threatening conditions, I've learned that worry serves no purpose. You either have control or you don't. If there is something I can do to improve something I try...the rest is up to Him. Faith and hope can get you through :) Enjoy Life!!!

welcome to the fibro family...you are among friends

Hugs, Robin smilewinkgrin
Posted 2/3/2014 7:08 PM (GMT 0)
Hi there, yes you already feel a little bit like friends,
Thank you to all of you who cared to welcome and to help me. You asked about me. OK I have Fibro since 30 years but even if I was hospitalised 3 times for diagnostic purposes and because of migrating from Germany to New Zealand to Australia and seeing many different GP's I only in 2013 found out what was wrong with me. Then it was confirmed by the GP I am with at this time and he helped me a lot. So I am much better now. I also get the "Adrienne Dellwo - about.com Fibromyalgia & Chronic Fatigue Syndrome" <newsletters@about.com> and they supply a lot of very good information.
about my threat: 20 years ago I had a close to death experience and know about the peace on the other side and I will be very happy to go home when I have finished my things around here, e.g. I am just nosy - not scared at all. This may be different when it really happens of course.
I really just wanted to know what is it like to die if fibro is involved as I already know how it is if a heat stroke is the reason. But perhaps it is very difficult to get some information about that.
See you soon, Satpathie
Posted 2/3/2014 7:11 PM (GMT 0)
Hi, Satpathie, and welcome! I'm sorry you are so frightened and sad right now. Fibro does not kill anyone and it's not a progressive illness. I've had fibro for 26 years and I am now 66 years old...just like you. I'm actually better than I was when I was first diagnosed since I found what helps me control my pain and fatigue. I still have pain but can work around it to do the things I want to do.

I don't think about fibro and lifespan since it isn't a terminal illness. Plus, my family lives well into their 90's and I have had two that I know of that have lived 103 and 104 years. So I am expecting a long life and I'm going to enjoy every minute of it!

If you are having heart arrythmia, you need to see a specialist. Not everything is caused by fibro and there are things that doctors can do for this problem.

I don't think you will find anyone that will tell you how you will end or what it's like to die from fibro. It's not that we don't have the "guts" to tell you but you don't die from fibro! It is not a terminal illness. Yes, you will have chronic pain with this all your life, unless they discover what is causing this and create a cure, but you can get it under control. I have had a full and enjoyable life in spite of this illness. I try things I didn't think I could do and 95% of the time I find I really CAN do them.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer, Robaxin, to help me be in control of my pain and fatigue. I also do daily stretching exercises and I walk and/or swim daily. If you sit or lay too much, you will be stiff as a board and have more pain with fibro. I also pace myself when doing things.

As others have mentioned, having a positive outlook really helps, too. Actually about as much as medication! You see, fibro waxes and wanes so I always look forward to each new day with anticipation. If it's a bad day I know I can handle that day. I look at all my blessings, all the beauty around me, and also all the things I CAN do. When I do that, I truly feel blessed.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. There are links about the vitamin and supplement I mentioned above and how these work in your body. Also there is a good link about maintaining a positive attitude when you suffer from chronic pain. It really is very good and very helpful. Also, when you first open Fibro 101, there is an interview with one of the top doctors studying this illness and he explains what they think is causing this illness. It's really good to learn all you can about fibro because we do have to be our own advocates with this illness.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
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