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Posted 2/19/2014 12:29 PM (GMT 0)
Good Morning,

I am going t6o see my Rhuemy today, I have an appointment at 9:00. I am at end of my rope right now. I was taking Nuvigil every morning and it really allowed me to get thru my full time job. I was also taking Lunesta at night for sleep. It was "ok" not great, but I could function.

 

Things changed...my insurance will no longer allow me to take 2 Lunesta pills at night, they won't allow any and the Nuvigil has started to cause major stomach cramps, to the point where I can't function. I've had a stomach scope since this all started, I have a hiatal hernia. They are not sure why the intense cramping, and will have to do further testing.

 

This has caused my fibro to now be out of control. Sleep is bad, I don't fall asleep on my own until at least 1:30-2:00 AM, then I have to get up at 5:30 AM. I am dragging during the day and trying my best not to fall asleep at work. I'm tired, sleepy and very unproductive. Then when I get home, all I want to do is go to bed. I can't sleepy, but I'm tired. With my (as well as so many others with fibro, sleep is the name of the game). I am hoping they will work with me because I am ready to just scream and go off the deep end. Please send prayers and wish me luck today.

 

-Monica

Posted 2/19/2014 1:48 PM (GMT 0)
Best wishes, Monica. Sending prayers that all get better very soon!
Posted 2/19/2014 4:25 PM (GMT 0)
I'm sure your doctor will have other substitutes...maybe things that will work better for you! I've had insurance tell me what I can and cannot take. I have two medications that I need to send a foru showing prior approval from my doctor before they will cover it. Hmmm.....seems to me that if my doctor has written a prescription for it in the first place, that means he does approve of the medication! But we worked around it. I'm sure you won't be the first one with this problem and your doctor will know just what to do to help you.

Let us know what happens because we do care about you.

Sherrine
Posted 2/19/2014 5:31 PM (GMT 0)
Oh man - I hope you can get it sorted...not sleeping is horrendous - i think i am an expert in the non sleeping field, just wish i could turn that around!

Im glad you found something which helps though, let us know what happens :o)
Posted 2/19/2014 7:47 PM (GMT 0)
I hope it went well at the rheumy's. Going on too little sleep is so hard.

Debbie
Posted 2/20/2014 4:56 PM (GMT 0)
Just a quick update, it did not go as planned. I got a new script and a paper that said it was pre-authorized, then I went to the pharmacy and got the same old run around. And if it was approved, it would be $300.00, I have a flexible spending account that my husband and I use for medication, but I am not paying $300.00!!! I just called and left a message for my doctors office. I know they are trying to get things pre-authorized, but if it is $300.00 why bother??

My daytime medication...that was not changed, since I had a stomach scope and they said my liner part is red and inflamed, she doesn't want to try anything else that my iritate me.

I'm just really tired of it all. Of course my stomach is hurting even more now because I am so stressed out. I need to go to my shrink tomorrow to get more ativan because at this point, I am having panic attack's again.

Everything was fine as of 2013, as the new year changed, so did my pharmacy!!

Posted 2/20/2014 7:23 PM (GMT 0)
hopegirl: You mentioned your stomach lining is red and inflamed--did they call it gastritis?

I was diagnosed with gastritis a couple years ago. I'm doing well now, but get occasional mild flares. Sometimes a very short time with an ice pack on my stomach helps. Not too long, of course!

  While HealingWell has some awesome forums, I don't believe they have one for gastritis, specifically. I used to visit this one: http://www.dailystrength.org/c/Gastritis/forum


It's helpful in many ways, and the links to stress are sometimes mentioned.

  I took a tablespoon or so of aloe vera gel in a glass of water every day for a long time, and I think more than other things, it helped my stomach heal, though I can't seem to lose the distention!  Aloe vera gel can cause loose stools, though, so--a head's up on that.

I also had a prescription for Anaspaz for stomach spasms and cramping.  Of course, if you took the Anaspaz, it would be another med for you.  I took it quite rarely, actually. Maybe these (aloe vera gel, Anaspaz) are something you could discuss with your doctor though, in case you're interested in them, to see if they would interfere with anything else you may be taking.

BTW, I would not pay $300., either!! smhair    Hope things are better soon.

Posted 2/20/2014 8:15 PM (GMT 0)
I found out the hard way that you can fight them in letters to get them to approved your meds. I had a med that the company wasn't going to pay for it because it was being used off label. I had been taken this for years and changed due to insurances. So i went through 3 letters and they finally sent it out to outside company that reviews them again. The outside company that reviewed it, passed it. I then learned my rights and how it works behind the scenes.

Just becareful with the Ativan. I use to get stressed out and I would pop one here and there. Next thing I knew I became very dependent on them. It was a horrible withdrawls from them. You might not have personality like me and never have to be concerned with it. I just wish someone warned me.
Posted 2/21/2014 12:32 AM (GMT 0)
What the WHAT?! Surely that's the uninsured price....

Also, have you looked into long term anxiety meds? I took Lexapro when I first started getting panic attacks and it REALLY helped. I then got off of them a few months later after I felt too...meh, but it did it's job and I now rarely (3x year) get them. I don't have a hard time getting off of benzos though, NO idea how I got that lucky, but I have to concur with Angel that a ton of people take it for years because their brain gets too used to it and they get panic attacks after stopping. I hope you are lucky like me, but be careful.
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