HealingWell
Search Close Search
☰

Chronic/ daily hives?

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/7/2014 6:14 AM (GMT 0)
I know I've described a lot of my many many symptoms and issues (many of which are undiagnosed), but I'm not sure I drew enough on the fact that I get chronic hives, almost daily! Has anyone else ever had this problem? I get them mostly on my face and chest, and every so often on my upper arms.

I have Fibro but I'm suspected to have an autoimmune disease too (undiagnosed until I can get insurance)... I've read that chronic hives are found in certain autoimmune disorders... in fact, i have read that 45-55% of people with chronic hives have an autoimmune disease.

Does anyone know anything about this? Especially anyone with Fibro + Autoimmune disease? Does anyone know which autoimmune diseases in particular may be characterized by chronic hives??

Thank you in advance.

Eden :-)
Posted 3/7/2014 6:15 PM (GMT 0)
Hi Eden,
I have responded to your posts before. I too have experienced pretty much everything you have, hives included, all except mental disorders. Thank god I got angry when it was suggested I seek mental help when complaining about physical problems to an internist! You have to take a very rational, advocacy approach. In my case, as may be in yours, western medicine looks at every "symptom" separately. I was what I call "under diagnosed" for many years. I'm too lazy to list all the diagnoses. Everything really had a neurological/immune component not being addressed. In reality, I was misdiagnosed, because no individual specialist was capable of putting it all together. In 2004, I was exposed to HSV2, and all heck broke out. The HSV2 triggered the under-diagnosed "illnesses" to go nuts, and I was determined to find out exactly what had been triggered on a genetic level. This is a very difficult journey with the best insurance and best specialists in the country. It took me 3 years. Finally, porphyria, in my case HCP! It explained every neurological issue I was experiencing, and why my body responded so badly (even 10 years later) to an in curable neurological virus. Knowing the "why", helps me to manage my care properly, with a a 50%-75% improvement when not in a "triggered" event. My disorder does effect the brain, too, anything neurological, especially where there are a lot of nerves. My buttocks seem fine, lol. There are a lot of management components to my disorder, cellular stress of any kind exacerbates the symptoms. My biggest trigger is exposure to viral infections ( whether I have immunity or not) especially colds and ingested toxins, especially medications that have neurological complications ( they are listed on various porphyria sites). I hope this helps!
Posted 3/9/2014 5:27 AM (GMT 0)
Thank you to the both of you for replying!! (Hi again, Gods Love)!!

I'm not sure if I mentioned or not, but I am not on any medications.

I do have a lot of food sensitivities and allergies, but having hives almost every day just seems ridiculous either way. They seem to not be in response to anything that I do in particular... I have read that it may just be the response of an overactive immune system. It is thought that I certainly have an autoimmune disease, but with no insurance yet, I don't know which one(s). But I read that chronic hives is often seen in autoimmune thyroid disease. Hmmmmmmm. Who knows!!

Gods Love,
I'm glad your buttocks are fineturn. LOL!

Eden :-)
Posted 3/9/2014 7:06 AM (GMT 0)
Try covering up from the sun and fluorescent lights and see if things change. You maybe photosensitive.
Posted 3/9/2014 7:23 AM (GMT 0)
You know what, couchtater. I think I am photosensitive, but I can't be sure yet (I tend to be a bit of a "hermit" at times and don't get out much)!

It seems as though I get bizarre symptoms when I'm out in the sunlight or when I'm in fluorescent lights (ughh, fluorescent lights are terrible-- awful for my headaches too)!! The most striking thing I have noticed though is that I get much more fatigued. Most people feel GREAT when they go outside, but I feel so blahhh!

With how sensitive my eyes are too, does not help. I try to keep all blinds closed when I'm inside when it's sunny out because it hurts my eyes! How horrible that I even have to do such a thing! Sunlight is so healthy, and yet, I try to avoid it like the plague! However, I have only had these issues for about a year now I would say.

I'm going to monitor my symptoms more this upcoming spring and summer though. Couchtater, does the light even make you ache more/ make your pain worse?

Eden :-)
Posted 3/9/2014 4:19 PM (GMT 0)
I have lupus and have photosensitivity.
Sunlight is my kryptonite. I'm weak and hurt from it.
Posted 3/17/2014 3:38 AM (GMT 0)
Wow! Thanks for the comments, Rockon!

Sometimes when the hives and itching are very bad, I take one or two benadryls (the pills). It sometimes helps, sometimes not. Sometimes it helps with the itching, but the hives can stick around for 3-5 days! Lately I have been getting them very badly on my neck. I know I'm very sensitive to a lot... my bf bought me hypoallergenic laundry detergent and all that jazz, but I'm not sure that's all of the issue (although certain laundry detergents do not help my allergy situation). Interesting about the mass cells, Rockon...

According to a chiropractor I have been seeing (who looks more at the "big picture" as opposed to separate symptoms), he suspects very strongly in me that I have a leaky gut (leaky gut syndrome). He believes this is where all of my problems stem from, and if I were to fix my gut issues, all of my other symptoms would go away within 6 months, he says. I, too, suspected leaky gut years ago after reading it in a medical journal (I have very severe gastro issues on top of everything else)... but it's just hard because I never knew where to "start" on fixing it. Well, he's suggested using oil of oregano everyday along with taking probiotics. My bf and I figured we'd give it a shot... we bought both of them... but we will wait until Wednesday (the next time I see doc) to ask about specific instructions on how to take them together. But we're going to try that out for me, see if it helps at all.

Eden :-)
Posted 3/20/2014 3:32 AM (GMT 0)
Rockon,

very interesting stuff ya got here!!! I do appreciate you always trying to help me out.

For now, my stomach has been feeling somewhat better from using oil of oregano 3x daily + 1 probiotic daily. I know I at least have a lot of gut issues, yeast issues, bacterial issues, etc. (chiropractor is afraid of parasitic issues in me as well)!, and this method is supposed to work well for all of that. I do see some improvement! It helps a lot of the burning in my stomach go away!

Definitely better than before!

Eden
Posted 3/20/2014 9:05 PM (GMT 0)
Thanks, Rockon. Yeah, it's what the chiropractor suggested for me. I've already become used to the taste of oil or oregano in water, lol. I kind of like it! It can help with infections too? that makes sense. I get infections constantly, some of them never seem to completely go away. And if they do, they come right back. I hope the oil of oreg helps me...

Interesting about the anxiety and the gut! I definitely believe it. I have had anxiety my whole life- from how badly I was treated growing up- and although I'm still not treated well by family, my anxiety has worsened significantly as I've gotten older... I think it's from all of my physical problems. Something is causing it to worsen...

Eden
✚ New Topic ✚ Reply