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Fibromyalgia
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Posted 3/31/2014 9:42 PM (GMT 0)
Hi everyone
I looked for a forum today because yesterday I sunk really low emotionally and found I was really angry for the loss of my life before I was diagnosed in Feb this year with fibromyalgia. I have had symptoms coming on over a period of a year to year and a half. I have extreme pain all over, in all points and nights are especially painful to move. I dread going to bed. I have to hang on to furniture to move. I am overwhelmed and in denial really. I keep thinking I will wake up tomorrow and this will be gone.

I am a nutritionist, have otherwise been a healthy individual, worked most my life and had passion for helping folks. Now I am lucky if I can manage getting myself fed and bathed and my dog fed. Walking him is rare these days. I am lonely, scared and depressed as a result. I also can't get people/family to understand how extreme this is(mostly because they are all out of town and don't see me) I am becoming a recluse as a result.

I believe this happened from having three shocks in my life back to back which caused me to have post traumatic stress disorder for two years now.

I read lots of posts here and realized that I am not alone even though I am alone where I live and new to the area, I can still have a community of people who do understand. I love the spoon story as it said it very well for me.
thanks for being here and thanks for the fibromyalgia 101 information...that helps me understand more. rolleyes
Posted 3/31/2014 11:41 PM (GMT 0)
Live Free,
I totally hear you. I think my fibro came from several life shock/crisises over a period of a decade.
Like you, I also have trouble at night. I have arthritis on top of fibro, am on Celebrex. By evening/night, it has worn off quite a bit and sometimes at night it seems like I am holding onto things to support me as I travel to the bathroom over and over. I wake up from pain a few times a night. I now take tramadol before bed and that quiets the pain enough that I get a few hours of uninerupted sleep. Do you take anything at night?
I have been diagnosed for about 5 years, but have had it for at least 6.
Posted 3/31/2014 11:42 PM (GMT 0)
(((((((((Gentle hug)))))))))

Sounds like you're having a bad flare. What kind of doctor are you seeing? What medicines are you on?
Some of the other reliefs we use are heating pads, ice packs, muscle rubs, hot soaks, hot showers. Staying still too long makes us hurt more. Try to move every 30 minutes even if it's to walk across the room.

I enjoy a memory foam mattress topper on my bed to make sleeping easier. I make sure my covers are soft and light-weight to avoid irritation.
Posted 4/1/2014 12:36 AM (GMT 0)
thanks for the hug couchtater
thanks for suggestions
Posted 4/1/2014 12:50 AM (GMT 0)
Hey <3
Thanks for hearing me
I don't trust pharmaceuticals. I use some herbs in combination
for a seditive (Sleep Relax) and that works to give me deeper sleep.
Also magnesium and 5HTP at night. I usually take a hot bath before
bed and then do some yoga stretching. Still really painful in night.

I use medicinal marijuana for pain relief as now they have the thc taken
out and only the CBD is left so I don't get high from it (I am someone who
doesn't like to get high so this is really important to me.) I will have more
medicine soon for pain so that will help my current state to improve at night.
I am hoping. There is always hope.
Posted 4/1/2014 2:10 PM (GMT 0)
Hi and welcome!
Yes it is overwhelming, but not quite in the beginning : the doctor tells you his or her diagnosis, fibromialgia, a word that if you are like me probably never heard before, then he or she doesn't tell you much about it and send you home to do your own research. So once you get home you start doing your research. And all these things you learn take time to process in your head, then one day it all sink in. Then you realize you have lost your life. Yes I had to cry that day.
I understand how you feel, we all do here. But after I cried I promised myself that I will not let this disease bring me down. I started yoga and is greatful for it.
You will be fine, you will learn how to adjust and live with it. Keep doing yoga , I highly recommend it. I have to go because of work. Please be strong.
Best.
Posted 4/1/2014 2:58 PM (GMT 0)
Hi, Livefree. Another welcome from me! Sorry you have this unfortunate condition, but glad you found us. Remember, we're here for you (as you've already seen.) I often feel alone with Fibro too, but then I come on the forum and realize nope, not at all...

Have you noticed "Fibro 101," our 1st thread? There's lots of good information, all kinds, on Fibro. It still helps me when I refer back and I've been here for years.

See you around!

Debbie
Posted 4/1/2014 6:12 PM (GMT 0)
HI, Livefree2, and welcome! I don't like taking medication either. I have been taking ibuprofen with food and Tylenol and that helps with fibro and a couple of years ago I was put on a muscle relaxer called Robaxin and that has made a significant difference in my pain.....and in my sleep! I used to get up at least five times due to pain and had to use a cane but now I get up once to use the bathroom and I no longer need the cane.

Also, there are a couple of supplements that have helped others including me. They are magnesium malate and vitamin D3. Many are deficient in these and they can cause more pain and fatigue.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. There are links about the supplements I just mentioned and how they work in the body, too.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 4/5/2014 3:09 PM (GMT 0)
Saying hello.
I was glad to hear from you when you posted on my thread.

We seem to have a lot in common.
The PTSD leading to Fibro.

You said you live in Canada and want to run to the woods or don't want to ... when I read that I thought yea, that's where I'd like to go. I live in Canada as well.

What are you finding helps with the PTSD?
Me, realized I'm low in serotonin so am trying to increase that.
Stress takes it down.

It's slow going, but it's helping the emotions for me anyway.

Pain of heart and pain of body, eh?
How's your day going so far?

Sheba
Posted 4/5/2014 5:05 PM (GMT 0)
Livefree,
I resisted the pharmaceutical route as well, but have found that one tramadol quiets the pain enough that I can get some sleep, which had become a real issue for me. I would toss and turn and wake up all night from pain, and then have to wrench my finally relaxed body out of bed at 6AM to get ready for work. Now that I have relaxed my standards on taking pain med, I actually sleep and get the rest so needed by fibro friends. I tried both Savella and Cymbalta, but got off both as they stopped being effective for pain relief after several months. I do not have access to medical marajuana, but who knows if that might change as it is getting lots of press lately. I don't like getting high either. I have close family with addiction issues and that has made me very very careful.
It is good to know that you are out there and have such a similar story as mine.
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