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Posted 3/28/2014 9:19 PM (GMT 0)
Besides all the pain and fatigue what concerns me most is my mind. My fibro came after an emotional stress/trauma.

I thought I was going to die. I was actually quite safe and in a good environment, however my emotional perception was different. This due to PTSD. I put myself into a crowd of people and shouldn't have. I put myself into two other fearful places. All for a total of 3 days. Shouldn't have.

When I got home I found I was shaking in my head so badly I couldn't sleep the whole night. I tried. So dizzy I couldn't stand.
The next day the major migraine started. Unbelievable pain.

Then the sensations going down my body, my nervous system, like hot.
The headache/migraine is there everyday now.

Can't think is the problem now that concerns me.
When I go to think I feel and my nervous system feels stressed, like don't want to feel anything. I feel pain.

When I lie down, I feel the shaking still in my head, not as bad though. I can sleep now.

What is wrong with me?

Anyone have any ideas?
Thanks.https://www.healingwell.com/community/emoticons/rolleyes.gif
Posted 3/28/2014 11:45 PM (GMT 0)
Sounds like you need to talk to a doctor and find out what's going on.
It maybe a panic attack.
Posted 3/29/2014 12:01 AM (GMT 0)
Thanks for your comment. I'll think about it being related to anxiety.
Posted 3/29/2014 10:47 AM (GMT 0)
I would recommend:
•seeing a clinical psychologist
•listening to relaxing music and doing deep breathing
•doing a bit of exercise when you're stressed - gentle swimming or yoga or Pilates or something else physical that's relaxing...
•mindfulness meditation

Warning: points 1, 3 and 4 are not easy to do! They require willpower and commitment - you've got to do the hard work, but the rewards are well worth it!
Posted 3/29/2014 11:24 AM (GMT 0)
Hi Sheba,

Welcome to the fibromyalgia forum. I am glad you have joined us but sorry about the reason for it...

If you check out the first thread on the fibromyalgia forum, you will find a lot of information there. It is called "fibro 101". There is a wealth of information there. A good and interesting read...

Fibromyalgia is so hard to live with. There are so many different aggravating symptoms. From ibs to crawly skin, to major pain all the time...

I find distracting myself from the pain helps. Not always easy and takes practice... But it can be done.

Attitude is a major game changer... With a good attitude you can battle the worst.

Keep hanging in there, keep focused on the moment at hand. Try not to think about the future or worry about it. Try not to dwell on the past and what you could do before fibro. That only depresses us.

I hope that you feel better soon. Keep posting because it really helps to get things down.

Have a good day today...

Welcome to the forum!!!

Hugs , Karen....
Posted 3/29/2014 11:33 AM (GMT 0)
Thanks Karen,
Nice to meet you.

Hope you have a good day.

Sheba
Posted 3/29/2014 12:00 PM (GMT 0)
Hi, Sheba, and welcome! You could have fibro. I'm not a doctor so am guessing like you are but I'm saying this because you said you have pain and fatigue, too. Several of the things you described could be anxiety issues which does happen with many with fibro.

I used to suffer from anxiety and it can be quite debilitating. When if first hit me I thought I was having a stroke. Pain shot up and over my skull, my heart started racing, I got very dizzy and thought I was going to faint. The fear from these symptoms made things worse. But I have since used my faith and also deep breathing to help get in control of the anxiety.

When my husband died suddenly and my mother had a brain stem stroke 17 days later, the cognitive memory issues of fibro kicked in big time! I was under so much stress, cried frequently, and couldn't remember a thing. There was a conversation that my daughters said we had but I still have absolutely no memory of it. They thought it was funny and again I burst I to tears since I thought I was getting Alzheimer's.

I headed to the doctor and he said that stress can cause this. Once I could relax about it, I did much better. I do have fibro fog but it's not bad at all. I also take folic acid and that is supposed to help with memory. They are now starting to give this to Alzheimer's patients.

But the key for you is...RELAX! It sounds like your stress, and your reaction to it, are causing you more problems. Try Lamaze breathing where you take a deep breath and blow it out slowly like you are blowing through a straw. You will probably feel some tension leave your body. Another trick I used is to lay on the bed and tighten the muscles in your feet and then totally relax your feet. Then move to your legs, hand, arms, etc. until you've worked up your body.

Once you feel more relaxed, focus on something besides how you feel. Doing a body check can bring the anxiety back. Get a good book. Watch a funny movie, go shopping, or work on a hobby. I love doing genealogy and that puts my mind in a different direction and the pain fades in the background for me.

Be sure to read Fibro 101...the first thread on the forum. There is a lot of good info there about fibro and you can learn a lot there. This will help you see what could be fibro or something else. A good starting link is called A Thorough Explanation of Fibromyalgia. Do read all of Fibro 101 though because all of it is good.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 3/30/2014 3:06 PM (GMT 0)
Wow, thank you all, because in thinking about things from the anxiety side, (which I didn't even consider), I see what you all are saying.
I went yesterday to the chiro. In a lot of pain, come out in more, well I went really funny in my head. Thought I was going to die.

I had a sleep, then thought about what you guys had said...... I was still breathing erratically. I discovered I did have a panic attack at the office. Trying to breathe out the 'straw' like Sherrine mentioned was challenging.

My thoughts since have been fearful. In childhood I experienced a lot of physical pain. Now in this state of constant pain, I panic, actually just writing this I'm crying. Breathe out the 'straw'.
I'll write back again ......
Posted 3/30/2014 4:36 PM (GMT 0)
Another thing I did was cup my hands over my mouth and nose and breath in and out that way for about a minute. Anxiety can cause you to hyperventilate and by cupping your hands over your mouth and nose, you are getting more carbon dioxide. This helps stop hyperventilating. Some breathe into paper bags but I never had a bag handy but I always have my hands. LOL

Sherrine
Posted 3/31/2014 5:12 AM (GMT 0)
Welcome mitcchell's to the forum! Anxiety is no fun. I have been through that before. Learning technique to control it makes a differece. Do you have fibro or been to the Dr. about your symptoms?

I hope we can help you. Hope to see you around the forum.
Posted 4/1/2014 12:18 AM (GMT 0)
Hi Mitchell
I am new here too. sorry you are going through all these scary feelings. I too have Post Traumatic Stress Disorder(PTSD) from three trauma events in a row and Fibromyalgia was a result of this prolonged distress. Post Traumatic is playing a role in this too. Anxiety and
paranoia are part of PTSD. I sometimes can't tell which is causing the symptoms I am experiencing at different time. What has been suggested here for relaxation is really helpful if you can get yourself to do it in the moment. Be very careful with yourself in all ways. It can feel like I am nuts or something but really I have many influences affecting me every moment, so I need to be calm, do the things that support feeling better and give myself a pat on the back for not running for the hills and becoming a loony up in the woods. (I live in Canada in the back country) I read the fibro 101 and it really helped to have all this information at my finger tips(thanks to who ever put that together for us)
Keep reaching out.
Posted 4/2/2014 1:14 AM (GMT 0)
Just wanted to give you hugs. I'm a new member too. Remember we are all here for each other.
I have had no where near the anxiety issues you have, but when I get overwhelmed and that fibrofog kicks in, I have to find something to control. For me that's my breathing. Slowing down and refocusing helps.
Posted 4/2/2014 4:57 PM (GMT 0)
Thanks everyone for your kindness and suggestions. Just got the news my Mom-in-law passed away.....
Feel kind of like I'm dying too.

You dear folk take care, I'll talk again soon.
Posted 4/2/2014 6:15 PM (GMT 0)
Welcome Sheba! 
I'm sorry to hear about your mother in law but, remember to take it easy yourself.
I also am new here but reading all the information has helped.  Fibro ++++++++++ for over 15 yrs now.
My 21 yr old son died in a car accident in 2004 (can't believe 10 yrs coming up since I've talked, held or kissed him), after that happened and the monsters I worked with, I had a panic attack and my husband called ambulance that took me to hospital because we thought I was having a heart attack. I never had one before and spent 3 days & multitudes of tests to determine that it was a panic attack. I left that job & haven't had one since & consider myself really fortunate. 
I feel for you and others that have to experience them daily.  As far as the pain, I'm daily with levels 8-9 now, lowest it ever gets is 4-5. What I've found that works best for me is:
ANYTHING TO KEEP YOUR MIND BUSY & BODY IF PERMITTING.
ASK FOR HELP.
SAY NO.
I think most people on here would agree that Before Fibro, we were the "care givers" and now it's so hard to be a "care taker".  We also did just about anything asked if possible but now we've learned to say NO more.
#1 RULE - TAKE CARE OF YOURSELF FIRST!
Hoping for Better days for you to come.
Posted 4/3/2014 1:11 PM (GMT 0)
Thanks,
gosh I'm sooooo tired and in pain.

How do we ever recover?

It's difficult, cause I have strength just to make breakfast.
Posted 4/4/2014 12:59 PM (GMT 0)
I'm looking into having my neurotransmitter levels tested.
Has anyone had this done?

The company in the U.S. - Neurogistics.

I'm working on taking care of myself first.
Posted 4/4/2014 1:05 PM (GMT 0)
Livefree,

There are so many things you and I have in common.
Could you share more of your story and what you are dealing with.

I too live in Canada, and I too would like to run to the hills and escape it all.
Posted 4/15/2014 2:47 AM (GMT 0)
I am also curious if anyone has used Neurogistics. Thinking about trying it for my neurological lyme.
Posted 4/17/2014 2:17 PM (GMT 0)
Hi Sparty

Not familiar with lyme, could you tell me the connection with neurotransmitters.

For myself, low neurotransmitters due to PTSD. Stress takes those little guys away in a hurry.

I'll let you know what happens in my dealings with Neurogistics, if you like.

Sheba
Posted 4/17/2014 9:31 PM (GMT 0)
Sheba, we have a Lyme disease forum on HealingWell. Go there and you will get great information.

Sherrine
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