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Posted 3/15/2014 6:20 PM (GMT 0)
Hi Rolf,

Welcome to the forum. I am glad that you have joined us...

Hugs, Karen....
Posted 4/12/2014 12:47 PM (GMT 0)
This post was started by Rockon.



http://organicconnectmag.com/protecting-kids-food-allergies-food-sensitivities/#.U0jYbGt5mK0




You don't have to give your email address.


It would be great if people felt the gusto to write an email to their congressman about labelling GMO foods approved by the FDA. Right now Monsato is trying to get agent orange ready food crops approved. Basically inviting dioxin use again, and right on food crops. (see the WHO on dioxons). There were petitions against that circulating.

I would like to get H.R. 1699 passed. (If they hold a vote, lol)

This post is political in nature so I took out parts of it. Thanks in advance for your understanding.

Sherrine
Posted 4/15/2014 4:23 AM (GMT 0)
Hi, I am new to this forum, however I must reply to hre above. My aunt told me fibromyalgia has a lot to do with sugar intake, however, I have read this isn't the case, now I hear again, that it's is and isn't. I would think, if anything, it would have more to do with the preservatives and chemicals used in all our foods. All the unnatural ingredients would surely have an effect on our general health in large consumption. Is this the cause for the pain? Maybe, or maybe not. However, it isn't natural, so it lies somewhere in our bodies and causes something unnatural. Just saying
Posted 4/15/2014 11:03 AM (GMT 0)
I think with everybody being different that for some people it can be. I stay away from artificial sweeteners, anything that doesn't seem natural. Sugar is natural, but I avoid large quantities of that. Well, maybe icecream once in awhile.

Welcome to the forum WV Sunshine... Do check out the first thread titled "fibro 101". It is the first thread on this forum...

I hope you are feeling well...

Hugs, Karen...
Posted 5/25/2014 7:08 PM (GMT 0)
Bump
Posted 5/26/2014 4:37 AM (GMT 0)
Not sure if this post is allowed

This post was political in nature and is not allowed on the forum..

Sherrine

Post Edited By Moderator (Sherrine) : 5/26/2014 2:42:23 AM (GMT-6)

Posted 5/26/2014 10:29 AM (GMT 0)

CharmCityLady said...
If someone has fibromyalgia-like pain after eating, would you then say that they are suffering from something other than fibromyalgia?

My pain and headaches increase significantly after I eat the wrong thing. Would you say I have another illness altogether that should not be defined as Fibro? Its not an allergy.

I do consider myself as having CFIDS or CFS, but it seems interconnected with my FM pain, and pretty much the same thing.

Medications can be considered similarly pain-inducing for me. I had the most painful body encompassing pain after having a cold eeze lozenge, and it was a direct result of having the lozenge. Obviously my pain is associated with what I consume. Would you conclude I don't have FM





given my pain is influenced and worsened by diet?

Since FM is still not fully understood, I personally do not believe anyone is warranted to say whether food is a factor or not. Instead, it would be more approrprate to say, "At this point in time we have no evidence that suggests food is a factor" How can we make such staunch conclusions with such lacking information on FM in general? We still don't have a solid cause of FM or solution to fix it. It seems like somewhat of a presumptuous assertion to conclude that food might not be a factor in some people's cases of FM-like pain, in my opinion.

That being said, it has been helpful to me to realize that not all FM people react to food. If food is such an issue for my pain, it may be a part of my solution, and so I will continue to investigate it.

Very good post :-)

Post Edited (Arym) : 5/26/2014 12:54:01 PM (GMT-6)

Posted 5/26/2014 6:33 PM (GMT 0)
Charm City Lady,

For me you have hit the nail on the head. Food is definitely a factor in my overall well being. Before I acquired FM I had a intolerance to lactose, now it is all FODMAP foods, some more than others and it also depends on quantity of FODMAPS consumed in one setting.

I also agree with your statement since we don't know what causes FM we can't rule anything in or out. We also all vary in what kind of symptoms, the degree of symptoms and what helps or hurts those symptoms.

Thank you for your well stated post.
Posted 5/29/2014 1:52 AM (GMT 0)
Heh, I forgot about those posts.

Food still rules my life but I have a much better quality of life now that I'm vigilant about my diet. I have significantly cut down on my chronic constant headaches since overhauling my diet. Last year I was having constant all day headaches about 5 out of 7 days. Now I have a slight headache maybe once every two weeks, which is a big improvement for me.

I can reduce brain fog by staying away from potential fog-triggers: coffee, some teas, beef, pork, nitrates, MSG, and other foods.

My sleep quality is also harmed by eating the wrong foods, especially too close to bed.
Posted 6/4/2014 10:05 PM (GMT 0)
Interesting video.
Top 10 GMO foods to avoid.



http://www.youtube.com/watch?v=-LAKFhDguuw&feature=youtube_gdata_player


Not easily done, tho.
(the doc mentions grapeseed oil. grapeseed oil has an even more delicate molecular structure than olive oil. Do not use it with heat. I add liquid when I use olive oil on moderate heat, to lower the temp and protect the oil. And I do liquid first, which keeps the oil off the hot metal bottom of the pan.)
------ ------
A great video about GMO study for Europe:
http://www.youtube.com/watch?v=eeW5yUSqdhY&feature=youtube_gdata_player

Post Edited (Rockon) : 6/4/2014 11:42:20 PM (GMT-6)

Posted 6/19/2014 8:30 PM (GMT 0)
This is going to be long winded, so I won't blame you if you skip it and read the TLDR summary at the end!

So I've been trying to lose weight for various reasons, some health-related and some not... I spent a week doing a diet in which I ate nothing but fruit, vegetables, and meat (with some yogurt on one day). By the end of it, I felt fantastic. I don't know if I was just having a great week, but after eating normally again for only two days, my fibro started to ramp up. I decided to try going wheat free for a month or so to see if it helps. Only a few days into that but I'm sticking to my guns! However...

I talked to an (admittedly alternative medicine) nutritionist. He wants me to cut out ALL wheat/grains except rice/dairy/corn FOREVER. I don't think i can handle this. Even if it means reducing my pain I feel like I would be miserable. I don't cook-- I hate doing it, and it's the last thing I have energy for when I get home for work -- so I feel like I would just spend the rest of my life eating bland/raw food for the rest of my life, never able to enjoy eating out with my friends or a holiday meal or ANYTHING.

Even completely ignoring packaged gluten-free options or prepared food that fits these guidelines, it cost me over three times my normal food budget to eat nothing but fresh fruit/veg/meat for a week. So its expesnsive and I don't like to eat it, and I will be deprived for the rest of my life... but I might have less pain. He says hes had fibro patients clear up their fibro almost entirely on this diet. That is really hard to just ignore, even if its probably false hopes. The prospect of never eating any of the foods I love again gave me a panic attack and I've been crying all morning. Is it worth it if I can never have a drink with friends? Celebrate my favorite holidays? Eat my own wedding cake? I don't know.


TLDR; nutritionist wants me to cut out half of my diet FOREVER because he thinks it will make my fibro virtually non-existent, but I don't think I can handle it mentally or physically.

Has anyone cut all of this out and found it has helped? I live in northern California and people really overdo this here but he seemed so sure it would help I'm all torn up :(
Posted 6/19/2014 9:26 PM (GMT 0)
I don't notice any difference in my pain in relation to what I eat. Some people have allergies, etc. I do have a few things I avoid because they make me feel ill and give me GERD.

Go back to the first page on this thread. I wrote a long post with links to good web sites that talk about whether food affects fibro pain. They say No but some members beg to differ with them. My feeling is.....if this forever diet really worked and took all of the fibro pain away, we sure would have heard about it on the news, etc. The doctors studying this illness believe it's a neurological illness. Diets wouldn't help that.

Good luck on what you decide to do.

Sherrine
Posted 7/19/2014 4:43 PM (GMT 0)
Here's a general question I'm throwing out for everyone:

Do you think it's possible to cut back on most supplements when one has fibro, and mostly eat the specific foods related to vitamin and mineral needs instead?

I think I do have an 'extra' need for magnesium (yes, I buy the Puritan magnesium malate) and also potassium helps me. I sometimes take lutein, but am thinking of just switching to more lutein-containing foods.  I get fairly good prices on supplements, but they still add up.  Maybe I could just eat more bananas, etc. for potassium.

One factor I wonder about is how much the supplements are absorbed.  Then again, I sometimes wonder how much of my food I absorb properly, too. I don't have a great track record there!

Because my digestion isn't great, I'm debating whether or not I should eliminate a couple of supplements.  It's probably a 'give-it-a-try' thing, though.

So--do you think for the most part (maybe with the exception of magnesium malate) we can rely on a single multi-vitamin and eat specific foods for specific body needs?  Or are our fibro-bodies an exception in this and we may have a greater need for supplements?  I suppose every BODY (as opposed to 'everybody') is different, though, but what are your thoughts?  Thanks. :-)

Posted 7/19/2014 9:01 PM (GMT 0)
http://www.mayoclinic.org/healthy-living/nutrition-and-healthy-eating/in-depth/supplements/art-20044894

We absorb vitamins better through food.

http://www.hsph.harvard.edu/nutritionsource/what-should-you-eat/vitamins/

Much current research suggests that vitamin supplements are unnecessary. However, as the previous article suggests, it's a cheap insurance policy.

Now, be aware, that magnesium and potassium are not vitamins, but minerals.

http://hub.jhu.edu/2013/12/17/vitamins-might-be-harmful

Finally, last December, John Hopkins scientists suggest that a multi is unnecessary, and can in some instances, cause problems.

I still take a daily multi, and I eat healthy. I also take magnesium and a calcium/Vita min D supplement.

I am fairly sure I get what I need through food--little grains, sugars, soy, or uncooked milk products. It really ought to be none, but I slip sometimes.

What I will say, for the record, is that Selected Carb diet is hard to stick to, but makes the UC so much better. It has done little for the fibro, however.
Posted 7/19/2014 9:20 PM (GMT 0)
Interesting question. I'm not taking any supplements right now, and I don't feel any different. Actually, I do seem to have fewer problems in my gut, which is why I decided to try this...but otherwise, no change.

Debbie
Posted 7/19/2014 9:30 PM (GMT 0)
I have absorption problems and can't get the amount needed through foods. Some vitamins, like vitamin D, are very difficult to get through diet alone. There is just a small amount, if any, in foods. Of course there are foods that are higher in certain nutrients but I'd be spending a lot of time trying to figure it all out.

I use a multiple vitamin, vitamin D3, and magnesium malate. Without these I felt a lot worse with my fibro pain and fatigue even though I eat a balanced diet.

I have added CoQ10 because I'm on a statin medication and this has helped stop muscle cramping. Besides, you will find CoQ10 in nearly all cells in the body so I felt this was very important. It also helps protect the heart and, being diabetic, I'm more prone to heart attacks and strokes.

I take krill oil for for my heart and also for the inflammation in my body from other illnesses. I just don't like fish and fish oil gave me diarrhea. This works well for me.

I also take folic acid to help with memory and other things, glucosamine sulfate to help with joints since I have a touch of arthritis, and lastly I take vitamin K2 to help with osteoporosis.

I think it depends on your overall health, Luvsminis. I have quite a few things wrong including digestive issues so this works well for me. I feel better, have more energy and feel I'm doing quite well for all that I have.

I would be as big as a barn if I tried to get all of this through diet. I have to count carbs and watch what I eat because of digestive problems and also the diabetes. I had major blood work done a few months ago where my doctor checked all my levels including vitamin D and magnesium....3 pages printed out....and all of my numbers were excellent! Now, I wonder what that blood work would have looked like if I hadn't been taking the supplements that I do take.

So for me, I'm going to keep on keeping on. I figure, if it isn't broken, don't fix it!

Sherrine
Posted 7/20/2014 4:19 AM (GMT 0)
Supplements completely changed my bad immune system...i won't go a day without my c....i do not like citrus enough to get it all through diet...

Although vit d is now known not to be a vitamin but a hormone..mine was low..and i cannot begin to state how bad the low vitamin d level affected me...i am coming back from those pain levels and weakness..but it takes a long time and made fibro symtoms seem so much worse....

Supplementing with ribose...really helps my energy levels...

Most of all trying to keep up my levels of "living food" definitely improves how i feel...

Protein also improves my energy levels...and i cannot have any sugar in the day until i have protein or it causes my sugar to crash.

My new favorite supplement is tumeric..it seems to help with inflammation
Posted 7/21/2014 2:39 PM (GMT 0)
Here's an interesting article about fibro and hypoglycemia--

http://www.fibromyalgia-symptoms.org/reactive-hypoglycemia-and-fibromyalgia.html

Jan
Posted 7/21/2014 4:36 PM (GMT 0)
jan1952: I'm going to check out that article; sounds interesting!

Thank you to those who responded to my question. Much 'food for thought' :) I like to 'weigh' all the info and take it from there. Looks like some great suggestions.

Hope everyone has a great week!
Posted 7/23/2014 11:21 AM (GMT 0)
I seem to have developed an allergy (or maybe just a sensitivity?) to eggs over the past couple of years. I can no longer eat a whole boiled egg or a serving of scrambled eggs, or I "pay for it" within a few hours. Just a bite or two doesn't seem to bother me, though.

Does anyone else have this? I used to rely on eggs for a healthy breakfast. I'm now looking for some good alternatives, besides cold or hot cereal. Healthy ideas much appreciated! :)
Posted 7/23/2014 7:24 PM (GMT 0)
I really can't help you a lot with breakfast since I eat eggs every day. Cereal spikes my blood sugar too much. But, maybe you are only having problems with the yolks. So before throwing in the towel with eggs, why don't you try eating just the egg white and see what happens. You can make great omelets this way or add a little cheese and real bacon pieces to the whites to make scrambled eggs.

For years I would have a toasted English muffin with peanut butter on it along with fresh fruit on the side. I still do that and it's yummy. This doesn't spike my blood sugar either and there is protein in the peanut butter. So this is another thought.

Some people love yogurt for breakfast. I don't care for it so I don't eat it but they have so many to choose from with fruit in it. That and a slice of toast would be good, too.

On a side note, if you are allergic to eggs, be sure to let your doctor know. You probably cannot get flu vaccines since they use eggs somehow in making the vaccine. This would be an easy thing to forget.

Sherrine
Posted 7/23/2014 8:36 PM (GMT 0)
Great ideas, Sherrine! I really like the idea of just eating the egg white--never thought of that one at all.

I, too, am a toasted English muffin with peanut butter fan.  I love the chewy texture of English muffins and sometimes I add a dab of jam or jelly. The fruit is a good addition. Have not tried yogurt yet, but another good call (meaning I haven't tried it for breakfast; I do like some of the flavors as a snack or dessert, though).

Will let my doctor know about the possible allergy. I didn't think of that at all! Thanks!! yeah
Posted 7/23/2014 9:16 PM (GMT 0)
Let me know if the egg whites work for you.

Sherrine
Posted 7/23/2014 9:33 PM (GMT 0)
Will do, Sherrine. Thanks again. :)
Posted 7/23/2014 10:49 PM (GMT 0)
Yes to the peanut butter on english muffin..that little bit of morning protein is very helpful to me..i am not as hungry the rest of the day with some protein w breakfast... I usually have banana with it for the potassium and magnesium
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