Hi, here's my experience with the muscles that won't work (and the neurologist lol):
I had to change neurologists because the first one started looking at me like I was very old meat loaf. I had sudden onset, right side weakness; would you believe it took the ER an hour and a half to admit me? Like I need to fall on the floor before they take me seriously. I thought strokes were dangerous. Then, 2 weeks for the neurologist. The first neurologist decided I had vascular spasms in my brain, basically, quivering arteries. This vasospasm leads to loss of the ability of the artery to carry out its normal function. As a result, the part of the brain formerly supplied by that artery effectively starves and may die ("infarction" or "stroke"). That would explain why I feel like I have stroke symptoms but have no stroke (right side weakness, numbness, and tingling). At least not one that shows up on the MRI. The neurologist didn't tell me any of this except "you have vascular spasms," and the vessels are quivering. I had to look it up.
I take topamax for the numbness and needle prickles sensation in my hands and feet, but it mostly just takes away the needle prickles. Topamax widens the blood vessels in the brain and increases serotonin levels, so they say. It has been found to be increasingly effective for migraine sufferers. Among other fun side affects like memory loss, aphasia (weird words coming out in place of what you meant to say or write), word finding problems, etc, it sounds like my regular fibro.
Stirring pancake batter hurts? That sounds dumb, but it does. I have a few things that are must-haves at family functions, now I have the kids hold up the mixer and I pour stuff in. Thankfully they find this amusing even though they are teenagers. My husband also does this and is excited because he gets to eat it!
The new neurologist is interested and did the fancy MRIs, he makes me do balance tests, walking, touch my nose, push arms down, etc., but he can't find anything. He's happy I have 1 migraine every 2 months instead of once a month. Oh, the tree pollen made me do 2 migraines in a week. I didn't have any migraines before this. He says, "just walk more." I really want to bonk him on the head. This is why I wish we had the body transfer thing so he knows how this feels. He just saw how I walked, which is the main problem, and he's supposed to fix the half dead right side. Oh, well. I'm starting to think going to medical school for that long turns you into more of a book than a person.
Post Edited (Xilamom) : 5/13/2014 10:35:43 PM (GMT-6)