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Vitamin d deficiency and fibromyalgia

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Posted 5/6/2014 6:21 PM (GMT 0)
Hi,

It was a tough winter for fibro in the northeast. I thought my fibro was getting so much worse...my muscles were so weak and painful.

After seeing my doctor...my vit d levels were low 19 ...so i am now trying to get the level raised.

As i am researching..every symptom of vit d deficiency is also a fibro symptom...so i am not sure if the fibro got worse or the low d gave me a lot more symptoms

Wondering if anyone else has experienced the low d levels and the symptoms being so much worse with this.

Thanks
Posted 5/6/2014 7:40 PM (GMT 0)
Interesting to come on here and see this post today... I just got my Vit D level results and they are at 24.1, I have an appt with my doctor tomorrow. I know that last time I had mine tested he said it was fine, which was about 1.5 years ago. My fibro symptoms weren't too bad then, but I was also on Cymbalta. A few months later I had to stop Cymbalta because my new insurance didn't cover brand drugs and I couldn't afford it. After about a year not on Cymbalta I felt like my body had aged 40 years. I was in SO much pain. Thank goodness Cymbalta is available as generic now, I've been back on for two months and I'm greatly improved. And now my Vit D levels are low... I'm not sure how much of a role the vitamin d levels play though.
Posted 5/6/2014 8:12 PM (GMT 0)
My Vitamin D levels were low a few years ago at a time I was having significant pain. On a side note, my Vitamin B levels were also very low. I was placed on high-dose oral Vitamin D as well as Vitamin B injections. I got both levels back up to normal and was tested as recently as January 2014.

That said, I had a horrific winter (here in Minnesota) with my fibro even though those vitamin levels were once again in the normal range, so it was clear my fibro was causing my present pain and not the vitamin deficiencies. Hope that helps.
Posted 5/6/2014 10:45 PM (GMT 0)
Thanks for the reply.

I noticed with the d deficiency...i am much weaker than before. It has made dealing with the fibro so much harder..but i am getting physical therapy for the fibro..and supplements and sitting in the sun for the low d
Posted 5/7/2014 12:25 AM (GMT 0)
I was 17 for vitamin D just last month so am taking 50000 a week UI for 12 weeks, plus daily 2000 to see if my numbers improve when.i have blood taken again July.

Bella
Posted 5/7/2014 12:53 AM (GMT 0)
I was at an 8 a couple of years ago. I take 50,000iud twice a week.
I just barely meet the normal range now.

Low D can cause you to feel terrible.
Posted 5/7/2014 3:33 AM (GMT 0)
Couchtater, do you mind me asking what they are telling you is normal? I keep reading we need to be at 50.and that it takes a while to get there...doctors office seemed to think everyone was low after this winter..but i knew something was really off..i had a lot of symptoms.
I read that 15 to 30 minutes in the sun can give you between 10 and 25 ,ooo iu
Posted 5/7/2014 3:40 AM (GMT 0)
I think they say if it's 35 and over it is sufficent. Fifty is the top of the scale.
I'm low on D because I have Lupus. People with Lupus are low in D because UV Rays make us very sick. The sun is the strongest producer of UV Rays.
Posted 5/7/2014 12:38 PM (GMT 0)
I am also very low in VitD.I started at an 8 and now after a year of suppliments(50,000 units a week) I am not at a 19. I notice if I miss a suppliment my pain is much worse as well a the muscle twitching.You may also want to look at your magnesium levels.They are also common to be low with us.I suppliment there as well and find it does make a difference.
Posted 5/7/2014 5:11 PM (GMT 0)
Here is an excellent link that totally explains the levels of vitamin D.

https://www.vitamindcouncil.org/further-topics/i-tested-my-vitamin-d-level-what-do-my-results-mean/

Sherrine
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