Sammie- your not crazy, I am sure your pain and symptoms are real. I have come to the conclussion that fibro is so understated. Yes, it would't surprise me if you do have fibro. Getting a proper diagnoses is very important, plus having a Dr. that truly wants to help you.
Once you got that diagnoses, which sounds like you do. I would get rid of the Dr's that are not on your side. Seeing a therapist is great because they can help you learn to cope with this chronic health problems. I use a psy. dr and therapist. Educating yourself is real important. Reading books on fibro can really help you. Many of the authors have fibro. When I read my first book it was like putting the missing puzzle together. Here was most all my answers in this book that no Dr. shared with me. You can order them on line and many can be downloaded to your tablet.
I know the fibro syndrom can be overwhelming lots of times. I found out making some adjustments in my life style made the fibro flares less. Things like monitoring the hrs. you work, limit as much stress as you can, don't over extend yourself, Learn to say NO!, exercise, eat healthy, rest when you can, good sleep habits and do things in moderation. Sometimes making these changes really helps your fibro flares.
This is a great place for support. You never feel alone here. I hope we can support you and answers your questions. There are great people that have really done some extensive reading on fibro. They have lots to offer.
For me I found out that once I had good pain control my life was tolerable. Yes, I still have pain everyday, but it's manageable. I came here at the bottom of the barrel but was able to turn my life around after being on this forum. It gave me hope. I try to keep my treatment simple. I went down the road before taking lots of meds only to get myself very dependent on them in a bad way. I do the following for my fibro. Magnesium, calcium, vitamin D, remron, heat, exercise, eat healthy, rest, limit stress and subutex for pain.
Did you get your vitamin D checked? Most fibro patients are very low in it. Taking vitamin D is important to your reduction of pain and depression and many others things such as your bones. Many of us take large supplements to just keep it normal. It needs to be monitored by your Dr. when taking large supplements. What are you currently doing for your fibro now?
Post Edited (ak angel) : 6/11/2014 12:43:04 AM (GMT-6)