New diagnosis

Hi, after 6 months of being tired, weak, shaky and also fluish every other week, saw specialist who thinks fibromyalgia. Doc also thinks I have POTS, says they can be related. I'm definitely feeling bad, but sometimes it feels like they are just guessing at anything, like there's no real certainty. I just hope to hear someone knows this agony of feeling crappy and not knowing why

Welcome zb33 to the forum. Your on the right start getting your diagnoses and finding this forum. I hope you can learn as much as I have. I was miserable when I first started and was lost in all this fibro syndrom. I began to connect with others here by reading post frequently. I learned new ways to manage this fibro. I received great support too. Asking questions is how you learn too.

I would recommend you buy some fibro books on line. It really relieved a lot of my anxiety about all these crazy symptoms fibro causes. It was like putting the missing puzzle together. I finally saw myself on each page. No dr. Shared hardly any of this info I learned in these books.

Many of us do similiar treatments for our fibro, but others have different treatments due to health issues. It does take time to learn what works for you. It doesn't happen over night. I call it a trial and error method. A treatment might work for you, but not someone else. We are all made so different.

I try to keep my treatment plan very simple. The more meds the more side effects you get. I do the following for my fibro treatment. Heat, exercise, eat healthy, rest, limit stress, vitamin D,calcium, magnesium, remron and subutex for pain.

I hope we see you around again. This is a great place to receive support. I hope you can get some control of your fibro soon.

I do not know. about the shaking, but weakness is definitely a vit d defieciency symptom...are you treating for this?
My fibro pain became so much worse and i was weak and breathing seemed shallow....still having bouts but its improving treating for d..

Please read links on vit d on google...the symptoms are so many....most of us with fibro have multiple health issues...but as i treat the d deficiency, everything else seems to be improving

He is wrong about the weakness...do you know your d number?

Hi, Zb, and welcome! A good place to start is by reading Fibro 101... the first thread on the forum. You will find links about fibro and learn a lot there. Good starting links for you would be the ones called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there.

There is a link in Fibro 101 all about vitamin D3 and how it works in your body. I personally take 5,500 IU of vitamin D3 daily. I also take magnesium malate and a deficiency in that can cause a myriad of problems and many of us are deficient it that also. I use the malate form of magnesium because it also has malic acid in it. Malic acid is found in apples and some studies have shown that when taken at certain amounts it can help with pain and fatigue that we suffer. There is a link all about that too in Fibro 101.

I do hope your doctor has run you through tests to rule out other illnesses that share the same symptoms as fibro. That is usually how you are diagnosed. Many see a rheumatologist for this. By the way, feeling like you have the flu is a symptom of fibro.

Read and ask questions. This way we can help you better. You now are not alone.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine