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Finding hard to balance life w/Fibro any suggestions?

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Posted 7/27/2014 6:22 PM (GMT 0)
As I get older it feels like I can do less, more pain, more flares etc. I mean my spine even hurts when I flare. Good way to wreck a beautiful day. If I over do any cleaning, bending I am a total wreck w/n hours.

I was going to a great Fibro Support group but, my work hours have changed so that I can no longer attend.

I cannot take any medications because I am allergic to everything. Managing w/Tylenol and we all know how much that helps. Cannot take ibuprofen because of Crohns.

My body is fighting to win and I don't want to let it. My family just forgets (not in their scope of reality) that I suffer so much and I feel guilty because they really need me right now. Finding hard to balance life w/Fibro any suggestions?

DX: Fibro, Crohns, Asthma, Allergies, Tinnitus...among others.
Posted 7/27/2014 8:20 PM (GMT 0)
Feel better?

It's tough, I hear you. However I also hear the good things you're doing for yourself. you're able to still work which is a positive it gets you out and keeps your mind focused on other things besides pain. you also enjoyed going to your support group when you could and you said you won't let your body win which shows you want to do better than how you're doing currently. Have you talked to your Dr. about your increased pain? Is it same places just more intense or is it new places?

Have you tried supplements of any kind? Exp. Magnesium and malic acid? Are you able to exercise or do stretching.? Are you pacing yourself, doing a little then resting? Has your job became more labor intense? Any work or family stress that could be aggravating it? Sometimes you can be doing everything right like you have for years then BAM it rears it's ugly little head for no reason.

Hoping that you find peace in the days to come. Take care and keep us posted.
Posted 7/27/2014 8:57 PM (GMT 0)
I understand you. As far as family goes, no one is able to understand anyone's pain but their own. The best thing you can do is let them see your pain, don't put on a brave face.

For pain relief I'd try alternate treatments. I've gotten pain relief from acupuncture and chiropractic treatment. I practice Tai Chi and that gentle exercise helps me. Diet changes have helped me an might help you too. The healthier I eat, the better I feel. I know that with Crohn's there are a lot of things that diet can do.

Your family might need you...but you need to take care of yourself first otherwise you can't be there for your family. If you are unable to help them, they'll find someone else. But if you don't take care of yourself you'll be of no help to anyone.

Does anyone else live with you? If so then you need to delegate the majority of the cleaning tasks.
Posted 7/27/2014 10:31 PM (GMT 0)
Things that help that are nt medicines...heating pad, m.e.n.s. Unit

Corvalen m, stretching, , tpoical pain relievers like soothanol x2.. This really helps my back..at night i use pain erase...it has nothing that keeps me awake...

We do have to pace ourselves, regardless of what anyone else thinks...we have never had a local support group that i can find..there are some an hour or more away...

So it helped you to have others that understood..people here surely do !
Posted 7/28/2014 7:30 PM (GMT 0)
Hi, FeelBetter, and welcome! I'm getting older, too, and am not moving as fast as I used to but I'm not experiencing more pain and flares. Maybe you have something else going on on top of fibro. This happened to me. I was getting a lot of back pain but was blaming fibro for it. When it became raw nerve paiin running down both legs and I couldn't walk without two canes, I decided to get checked out by a board certified rheumatologist. It turned out that I also have a disease of the spine that was causing the excessive pain. I was put on ibuprofen with food and a muscle relaxer that has made a significant difference in my pain. I also have Crohn's disease but am using ibuprofen with prescription strength Pepcid AC and another medication that helps protect the stomach from ulcers. If I start to have problems, I will most likely have to switch to Humira or Remicade infusions. But so far, so good.

But do get a second opinion of what is going on. You might find that there is a simple solution to help you.

I also use Tylenol, magnesium malate, and vitamin D3. The vitamin and supplement help a lot with pain and fatigue.

It's important to keep moving with fibro so do walk, stretching exercises help with the muscle tightness, gentle massage can help, too. Pacing ourselves is a must. I just finished steam cleaning my carpeting this weekend. I HATE doing it but I have off-white carpeting throughout the house. So I do a room a day and I only fill the water tank half full so it's not so heavy. I work around fibro and this works for me. I love to garden and pace myself there, too. This is very important.

Do read Fibro 101...the first thread on the form. There are links to good info about fibro and you will learn a lot there that can help you. There are links about the vitamin and supplements I mentioned and how they work in the body. All the links are good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
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