Fibro and tendonitis...and a Recision of my Diagnosis

I have read Fibro 101 and many posts. I have a question: How many of you have experienced tendonitis all over? i am dealing with tendonitis in my: achilles, elbows, rotator cuff, and knees! I went to the doctor who originally diagnosed me with Fibro, and he said: "Uh oh, that does not sound like fibro. Then he sent me for an EMG." Anyway, I am awaiting the results. Any of you have LOTS of tendonitis? If so, what helps? Thanks as usual...this board has been a lifesaver!

Yes, I have a ton of tendonitis. And ligament trouble. At the moment, my achilles are settled down but oh they can get nasty. It's amazing anything can hurt that much, isn't it? I've also been told by a physical therapist I have hypermobility in my joints and spine - don't know if that has anything to do with the tendon problem. There are times where I can feel every tendon and ligament in my body which sounds like what you are saying. Do you get where you can feel your, say, shoulder apparatus? Like all the tendons/ligs that make the whole thing work?

That is really interesting what your doc said and I'm certainly curious about that test you had and what the results will be. Will you please share the results? I've never had that test so I guess I better look it up.

There's no reason you can't have fibro AND another problem, or lots of other problems. Fibro is well known to go along with lupus, and other conditions.

 I have tendinitis all over,rheumatologist is calling it fibromyalgia because all my blood tests come back negative even for arthritis.I also get sore tounge and throat which is more than irritating on a daily basis lately.I myself think it has something to do with the drug levaquin,I have taken it in the past and last summer I had it in my iv while in the hospital for a long period of time.It would be interesting to find out how many people who are diagnosed with fibromyalgia have taken levaquin or cipro.

Interesting that some of you are talking about prescription medications being the cause of tendinitis/fibromyalgia. I was told that because I did not have this until after major surgery to remove a tumor from my abdomen that the surgery may have triggered it. The doctor who diagnosed me with fibro said that if that is the case, then it will be more easily treated or cured. I will have to dig into my medical records to see exactly how many meds I have been put on in the past and see if any of what I have now is a side effect of those drugs. When I was diagnosed with fibro (FM), I was diagnosed by a doctor who specialized in it, he checked for all the nodes on the body that are signs of symptoms of FM, which I had on every point. I had gone in with a major flair where I had to stand and walk and stretch my muscles and joints. I rubbed my entire body continuously. I could not sit in the room and relax. That day I saw another guy doing the same. I asked him what was the matter and he said in a frightened tone that he did not know. What a strange symptom to crop up on people. Anyway, I have found that walking meditation and stretching relieves what feels like nerve pain than taking a lot of prescribed medications, and the more exercise the better, even though I fight through the pain, I may not get much stronger, but I have less pain than I would if I were not exercising. I was looking today for info on whether fibro is same as tendinitis and has been misdiagnosed, temporal headaches come along with mine, and sometimes make me so hazy I can barely concentrate, and that is before I have to take something. I take 25 mg of Tramadol, if I have to, which is maybe twice a year. Today I had to take it because I was cleaning the house so thoroughly and moving furniture. I also have other diagnoses: one kidney, ADD/ADHD, and Bipolar Disorder. I take Seroquel (mood stabilizer and anti-psychotic) by the way Marijuana alone has been known to treat all these symptoms, Lamictal (mood stabilizer), Adderall for ADD/ADHD, Clonazepam prn for anxiety, and Propranolol prn for panic attacks or heart beats that feel like my chest is going to explode. I also have Rosacea, (which I was diagnosed with as a baby) on my cheeks, nose, chin, and forehead that I take Eucerin for. I been also taking many enzymes and that has helped Rosacea and tummy and digestive problems. I have also been taking Progesterone, which ladies, is good for women over 40, (although I am 35) for what our body loses in hormones, and also helps me breathe better (I don't know why). Symptoms are alleviated, not cured. All of these symptoms may still be there, but not as strong as they could be.

So many things to do, and can't do them today because of pain and tiredness also from Tramadol, and a lot of haziness.

When are we going to get everything that doctors put in our medical records over the internet? That would be awesome. It would be nice to see what sort of things they think are wrong and whether or not the manipulate the truth, without asking us or asking the right questions.

It might be more helpful if we all described our meds and symptoms and illnesses, etc. Maybe we can collectively come to some conclusions.

Oops! I should have mentioned heat helps FM, like heating pads, or heating blankets, Jacuzzi works miracles as long as you don't do ANYTHING strenuous afterwards.

Get an ANA blood test with titers. It will rule out autoimmune diseases.

I don't think it's rosacea. Sounds more like a butterfly rash from lupus.
Did you have problems as a child too?

Yep, my first diagnosis was "widespread tendonitis" because I had to have a dx for FMLA at work. Even though the meds I'm on control the vast majority of my pain, my Achille's tendons still bother me a lot and I have what is pretty much chronic fasciitis. My knees also act up, but I've had ligament damage in both knees (one torn and one sprained). My elbows hurt a lot and are really tender when I flare, but since all of my blood tests have always been normal they still blame that on tendonitis and fibro.

Rosacea can look a lot like the lupus butterfly rash, but a doctor should be able to tell the difference between them. Rosacea runs in my family and my doc has said that it looks like I currently have a mild case. He was concerned about it being a lupus rash at first.

Does anyone have pain at the ankle up the nside of both legs to the knees. My does this fairly often aqnd I wonder what causes it. Heat helps it. One Dr. says it comes from my back, the other says Lupus causes it.

tjoceans said...
Oops! I should have mentioned heat helps FM, like heating pads, or heating blankets, Jacuzzi works miracles as long as you don't do ANYTHING strenuous afterwards.

Oh! I'm sorry. I didn't know there were children reading this site. I sincerely apologize. I would never suggest anything like that to a child.

I get the capillaries just on the outside of the inside of my nose. I have some tiny dots on the tip of my nose, but otherwise I just get red, and more so when I have digestion problems or I have been around harsh chemicals like cleaning solutions. I always thought it was allergies; I mentioned to my mother that I thought I had Rosacea, and she remembered I was diagnosed with it as a baby by a doctor she took me to, because she thought I had the mumps.

I know we learn more and more about our bodies, nothing is in stone. I think it is Rosacea, I don't get the acne that fades.

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I have just finished reading A TON on celiac disease and non-celiac gluten sensitivity. I would get tested for this if you can, it's also an auto-immune disease. Insist!

I've had fibromyaliga for appox. 20 years, diagnosed around 12 years ago. It's gradually gotten worse over the years but especially this past year or so. about 6 months ago I woke up and couldn't turn my right leg more than halfway out to the side without pain in my hip which went down my leg. I thought I'd pulled something and it would go away, long story short my doctor tried me on several anti-inflammatories which didn't touch it. Then physical therapy; made it worse. I thought with time maybe it would go away. So then about 6 week ago one day I'm fine, next morning I wake up to extreme pain in my left shoulder going down to my elbow. I hadn't done anything at all to cause it. It was bad enough to wake me up at night, throbbed all day, etc. This time my doctor tried me on a predisone pac, it took the pain level down just a touch. Although as of right now it still hurts like hell just to lift it out to my side. I've never broken a bone but I swear it feels like a broken bone in there! He decided have blood tests done to check for rheumatiod arthritis, and other inflammatory diseases, etc. to explain why this kept happening. Well what a surprise, they all came up negative for any kind of inflammatories. It makes me feel like I'm going crazy or am in the Twilight Zone, to people who don't have fibro there's no way to explain what you go through each day so you don't even try. I read in an article earlier that even though fibromyaligia is the inflammation of the tendons and joints since it isn't an "itis" disease it won't show up on an xray as inflammation. So I guess that would explain feeling why you feel like everything is inflamed? I don't know, it's frustrating.

There are lawsuits against sulfa drugs for causing tendinitis.

I have rosacea and it was diagnosed by a punch biopsy. The theory that I may have had lupus had been thrown around for so many years that I wanted a definitive diagnosis. The scar is only noticeable if you're looking for it. My ANAs have never been high enough to be diagnosed with lupus, even though I have some of the symptoms, but apparently no organ damage or it would show up on tests.

I also have ocular rosacea and have had blepharitis three times.

I hope you can find some relief.

Have any of you heard of Ehlers-Danlos? It is often misdiagnosed as fibro and causes hypermobility and the worst kinds of tendon pain! But getting diagnosed is a huge pain (ha). One of my best friends was recently diagnosed after many years of mystery and misery.

thanks for the tips on tendonitis all over!