LETS HAVE SOME FUN!!!! JOIN ME...IN THE TOP TEN...

If you'd get off all that medication, you'd feel better.

I don't know why you can't do all that your SIL does. She has a form a lupus [that is not SLE] and also fibro. Well, SIL takes Cymbalta, which makes me crazy, and she takes something for the form of lupus that also helps her. I had fibromyalgia a long time before she was diagnosed, and my hubby's family ignored me and thought I was just fat and lazy (I was working full time then), but when she was diagnosed, OMG...now everyone in the family thinks HER FM is legitimate but I'm apparently still faking it. I can't work because of all my health problems, and if I tried to work, I'd have to take off about 16-20 days a month, whereas she owns her own business and can take off anytime and for as long as she wants, and the business will do just fine. Also, she made it a point to tell me she has BOTH forms of fibro (so do I, but it doesn't matter to anyone what form of fibro people have when they can't even understand fibro to begin with, so what good does it make to tell someone you have both forms of fibro?). She could retire from her business and still make money from it because she has people in place to run it. (off my rant now), but that is a very hot button issue with me.

Sorry that was not funny.

Bwfm,
WOW... Do I hear ya on that one..try this one on for size from a family member..

5) What u need to go thru another hospital scare before u start
eating better!

6). Just stick to UR limitations UR not 20 anymore!

"Fibro? Oh, that's just a wastebasket diagnosis, ya know,"....from a hospital nurse just a few years ago.

And then there's my MIL, who's always good for some of the worst, including one of yours, Chotti: "Are you SURE it's not all in your head?" "I'd be too embarassed to do that" (use a reacher), "Oh, I wouldn't put up with that for a minute!" (pick up things with my reacher because I can't get down to the ground," "All you have to do is think of people who have real problems, and then you'll realize - you don't have a one."  (Oh, ok.  Thanks.  Now I feel way better!   ) 

84 years old and the woman hardly ever has a pain.  And she passed her genes down to her son, which is great - for him.  Not so much for me, honestly, because he really does not get it, after almost 30 years.

And from the world at large: "I used to have that.  But I started exercising more and now I don't!"

"My cousin has that and as long as she doesn't eat any gluten, she has no symptoms."

"Do you take good care of yourself?  I've heard it happens to people who don't move enough."

"If you just don't think about it, you won't feel it so much."

Debbie 

 

People really have no idea what you are dealing with except those who have chronic pain themselves...

But i am sure they think if we just pushed ourselves harder..that would solve everything...not so much

Oh i am not being funny either !!!!

Walk it off.

How do you have fibromyalgia? ain't that a woman's disease.

Oh you have that? There is a pill to get rid of that, I saw it on TV.

How would you like to be so and so?

Oh, l forgot a new one a friend said recently: "You're lucky. You can work when you want to."

I quickly corrected her: "actually, l work when I'm able to." (I'm a substitute teacher, and don't feel well enough to work very many hours a week - sometimes not any.)

But I'd sure rather work normal hours and get more pay, not to mention benefits- including a pension in a few years, like she'll get! I know I've told her this many times. But there's this disconnect.

Debbie

"Do you need anything? Can I do anything to help?"

I know it's meant well, but please, don't ask.....just tell me, "Hey, I'm going to make you dinner this week. Which night would you like it?" Or "Hey, I will take your baby for you for a day. Which works best?" Or, "Hey, let me come help deep clean your house for a few hours this week. What day works best?"

Then I don't feel guilty for asking.

Rickrick.


Yeap feeling overwhelmed with all the constant STUFF people & professionals thow at us.

Hey lets all get together like the migraine groups that paints pics of what migraines feel like.

We could say we did visualize it see....it's still there this picture! Then again it could be a pic of UR dr. Hehe

"You look tired."

I always feel like saying, "Yeah, being in pain can do that to you." I just say, "I need to get more sleep."
HEART

Another one: "Yeah, I get tired, too. We ARE getting older, afterall."

or: "I get tired and often I don't feel well, but I still have to get things done." or "I'm tired, but I have to work." (Hey--I'm not exactly lying on the sofa watching old movies and eating bon bons all day, y'know.)

They definitely do not understand the 'crashing' fatigue that goes with fibro!

P.S.  My immediate family is great about my health issues. It's others (relatives/friends) who often don't 'get it,' though some are better than others.

Rickrick??

How do u visualize the pain.. I have enough trouble just feeling it.. That's the last thing I want to do..

I think u really should .Sms her .. And that my folks is called payback....lol

U know UR in trouble when UR pshyc cancels UR appt claiming migraine.....as long as the dog didn't eat her messages!

Just an FYI. Migraines are debilitating and I missed many days of work due to them when I was younger. All I wanted when I had a migraine was to be left alone in a dark room with no sound at all. It felt like someone was stabbing my head with an ice pick. They also produce auras and when the aura goes across the eye, you cannot see through it, so it affects eyesight for an hour or so. Medicine didn't help most of the time. It made me dizzy in addition to all the pain going on. Some migraines cause temporary blindness. And some can cause strokes.

I used to try to sleep during my lunch hour when I got them at work. I'd turn off the light in my office, lock the door, and lay down on the floor with a small pillow I kept at work. My coworkers would wake me up when it was time to go back to work.

Hubby had to take off work and drive 40 miles to pick me up one day when my migraine got so bad that I could barely walk due to dizziness. I had to go to the ER that time. They gave me a shot of Toradol. My FIL had to come with my hubby so he could drive my car home.

My sister has been hospitalized with migraines before. Her migraines would last 5-7 days and would make her nauseated and she'd vomit. At the end of one of her hospital stays (they were trying to pinpoint the reason for her migraines or find out if something more serious was causing her head pain) she was walking in the hall (still had the migraine), and she started projectile vomiting. So, yes, I consider migraines as chronic pain. When my sister had a migraine, her blood pressure would dramatically increase, and several times it measured in the stroke range.

Fatigue...I literally fell asleep and fell back onto the pillows of my couch in the middle of a conversation with my mother and slept for about 2 hours. She was always supportive of my problems. I don't think my dad ever really understood, but he didn't say anything about it.

When someone says that they are tired and we both just need some sleep, I ask if they feel better in the morning after they sleep. They look at me like I'm weird. I then explain that I feel as bad in the morning as I did the night before when I went to bed - that my sleep is not restorative.

My sweet MIL doesn't understand, either, but she's very nice. And she can run rings around me even at her age even after a quadruple bypass.

One thing we CAN be thankful for. At least fibromyalgia doesn't attack internal organs and is not fatal. I have several friends battling cancer right now, and I'd much rather have fibro.