Savella! Had to stop....anyone had any of these side affects?

I had started Savella a few days ago and had just moved into the 25mg in the tri pack. I started having side affects and have had to stop. Headaches, slight nausea, muscle twitching in my lips, and some strange pains in upper left chest area yesterday, I was talking to a friend when I said I didn't feel well and was going home. This strange feeling came over me in my upper chest (above breast), the color drained from my face and I became an ashen grey color  according to my friend. Had to sit down and was a bit scared as to this reaction.

 I called Dr. and he instructed me to stop the Savella.

 Has anyone else had any of these odd side affects?   Also has anyone switched to naother med such as Lyrica?  I am struggling to find relief and would like input.

 Thanks in advance.

I had a lot of problems with Savella. It felt like my body temp was sky-high, like I was trying to climb in the freezer in February. Also, it made my heart pound so hard that if I lay still my body would rock slightly with each beat; I think that was what scared me the most. I also never slept; it kept me awake about 18-22 hours every day, and on top of the already existing sleep issues it was a nightmare. I had switched to Savella from Lyrica; gained weight on the Lyrica, and had a burning sensation in my feet and hands.

After the Savella, I decided Rx drugs werent for me. Ive stopped taking all of them, and found a new doctor to help with vitamins and supplements. I go back Monday.

I hope you find something that helps.

Hello, the side effects that I had with Savella were double vision and heart paliptations with just half a dose. Told the dr and I was told to stop taking it.

Everyone has different tolerances and experiences with every medication. Some people can tolerate Lyrica or Savella and get great results. Others--like us--cant and dont. I was on 12 different medications before I said the heck with it and dropped them all. The only thing you can do, if you want to find an Rx that works for you, is to try different ones. Its the only way to determine which works for you. However, mixing multiple medications can cause side effects as well. You need a good doctor that will listen to you and your concerns.

Sherrine,
Now that's what I'm talking about... I just feel it's a bad idea to take these meds that just bring on more issues. Fibro is enough to deal with. I dont need extra! I will talk with my Dr about the meds you spoke of and see if this would work for me. I am currently using Hydroncode/acetaminaphin for pain. I can get by with one or two a day for the most part. As you know some days are worse than others, but like you I have a positive attitude and just refuse to give in. I am also trying to adjust to pacing myself, which is hard for me since I am a "go" person! But I will find my niche I'm sure.

Thanks so much for sharing..

evenkeel.... what are these older drugs? Maybe I could look into them too? Thanks

My doctor offered Savella, Lyrica, and Cymbalta to me several times and I turned it down.    When I asked him if malic acid/magnesium would help, he said it wouldn't but it wouldn't hurt me either so I tried it and he was wrong.  This helps me.  Same with the other things I mentioned.  I always would tell him what I'm taking and I also would talk to my pharmacist to make sure there would be no interactions with what medication I was taking. 

 

Sherrine 

There is a post all about it in Fibro 101.  I get mine at Puritan.com and it only says malic acid on the label but if you read the label further, which the site lets you do, there is magnesium malate in it, too...a very absorbably form of magnesium.

 

Many are deficient in vitamin D3, too, and that can cause pain and fatigue.  Also, the Curamin I take has four different herbs that work together and it has won awards for pain relief in the alternative field of medicine.  My rheumy knew all about it, too!

 

You just have to keep searching and see what works for you.  I know it's a pain but that's the way it is.  What works for one doesn't necessarily work for another.  As I said before, I'm having a good life without all the prescription medications.  I used to only take things like that but I kept getting more illnesses and more prescriptions were shoved at me.  So I started looking around and found some alternative things to help me whenever possible.  I still have some prescriptions that I have to take...for diabetes and glaucoma....but I'm taking far more supplements than prescriptions and I'm thankful for that. 

 

BUT, some fibromites do need to take prescription meds!  No one should feel badly or like a "failure" if they need prescriptions and narcotics.  We are not all alike and we have to find what will help us live our lives to the fullest with the least side effects. 

 

Sherrine

Sherrine...... I must be in a FibroFog. I can't seem to locate the malic acid/magnesium on the Puritan site. Do you have a specific ?

Thanks,
P

Apple..... I'm hoping to find a solution that allows me to control my pain via supplement and the pain med also. I just don't think I will be happy with these high dollar, high side effects prescriptions... It's so nice to read about others and what they are trying and hopefully find my solution.

What older med did you try and are you still using it?
P

spoolbus-Sorry it's taken so long to get back to this. I'm trying imipramine right now, which is a really, really old (relatively speaking) antidepressant that my doctor says isn't actually used for depression anymore but has been found to help fibro a lot. I'm up to 100 mg right now and not having any relief, though I'm not having much for side effects. Trazodone didn't help either. I think I may have tried another one, but if I did I can't remember the name right now. My doc's a huge fan of trying older, cheaper drugs for pretty much anything and says sometimes they work better than the newer, spendy drugs.

I did ok on Savella for a while, same with Cymbalta. But, after a few months I started having side effects with each of them. Nausea was part of it, and also a feeling when I turned my head (even slowly) of everything spinning.