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Posted 11/10/2014 5:40 PM (GMT 0)
How common is it for muscles to burn. Literally, I can just be sitting here and my arm muscles burn. Or they will burn with little excertion. What about body vibrations while sleeping...how common is this? It sure is annoying...so tired of feeling like this
Posted 11/10/2014 6:15 PM (GMT 0)
leap year ...burning stinging gnawing muscle pain is very common with fibro. having your skin feel like its sunburnt is also very common. I've had days where clothing and the sheets on the bed would set me on edge. You will find that symptoms come and hang out for a while and then they disappear and new ones crop up. That is the crazinessof this condition you never know what you're going to get on any given day.

try to keep a positive attitude about it the best you can try not to focus on the symptoms that only makes it worse. I know its easier said than done but try. stay busy distract yourself keep moving.

Hoping you feel better soon
Michael
Posted 11/10/2014 6:47 PM (GMT 0)
leapyear - so sorry you are dealing with this. I've been there and it's very common. The vibration is one of the worst feelings, to me it would feel like I was plugged into an electric socket. Gabapentin and magnesium have helped me with both of those symptoms. I still get them at times but not nearly to the same level. That feeling that the whole world is vibrating is pretty freaky.

I hope you find some answers soon to help you, sadly we are all different and no one has found a good answer for everyone yet. Magnesium does seem to help most of us (at least a little) with muscle pain and spasms.
Posted 11/11/2014 3:24 AM (GMT 0)
I've had the burning muscles before and dreadful muscle knots. The muscle knots I've been able to manage with yoga, breathing, light massage. I can't do anything about the trigger points by my joints though. Gabapentin has helped a lot with the excess sensations. I could hardly sleep, the feeling of the sheets on my legs was like sandpaper. Sounds and lights in the morning were dreadful. Mostly resolved and overnight believe it or not. Only one dose of Gabapentin.

I hope something works out for you and you feel better.

Jen
Posted 11/11/2014 7:49 PM (GMT 0)
lots and lots of muscle twitches today...more than usual...normal??
Posted 11/11/2014 11:18 PM (GMT 0)
I get the whole body vibrations at bedtime A LOT. It's such a weird feeling. I feel like a Christmas tree that has just been plugged in! The muscle twitches too... on and off. :(
Posted 11/12/2014 2:01 AM (GMT 0)
Ya figure that Fibro appears to have that neurological component, nerve cells/endings firing when they shouldn't. Little electrical charges, gone haywire.
Posted 11/12/2014 6:00 PM (GMT 0)
To All, Thank you for sharing. Until today I never knew of Anyone that suffered the same skin burning/vibrations symptoms that I have. Always thought that in addition to Fibro. that I just have a broken nervous system due to the trauma and grief of losing two children 5 months apart. Age 14 and 17. The neurological component, nerve cells/endings firing did not become severe until after my loss in 2006. Thanks again for letting me know I am not alone on this plant. Feel better and be well.
Posted 11/12/2014 6:08 PM (GMT 0)
Delee - so so sorry to read about your losses. I am sure such herondous losses have a huge affect on your health! Wishing you well.
Posted 11/12/2014 10:23 PM (GMT 0)
delee I'm so sorry to hear about your loss, I can't even think about losing one of my boys. ( I have 3) Life would be unbearable. Like leapyear said it probably has alot to do with your health, I know stress causes my fibro to flare up.
Posted 11/14/2014 3:27 AM (GMT 0)
Delee - so sorry for your losses. I lost a child I know how you feel. You need to take extra special care of yourself. There is a connection between major life traumas and fibro. I remember being told I needed to control my stress because it could lead to illness and it did. Who can control the stress in their lives?

Barb
Posted 11/14/2014 8:50 PM (GMT 0)
Maybe I should clarify what I mean by burning muscles. I am not talking about burning to touch, I mean I lift a small bag of dog food and they burn...or I squat down for a second and then get up and they burn (thigh)...does that make sense? That is what others feel?
Posted 11/16/2014 12:22 PM (GMT 0)
I do feel burning in my muscles or deep in my body. I'm not sure mine is from using or straining the muscle- at least I don't feel it right away as you seem to.

It moves around on me except I almost always have burning under my shoulder blades. It hurts but also feels good if I can get someone to massage under it.

Dawn
Posted 11/16/2014 2:36 PM (GMT 0)
Good point, Mojave. I just started gabapentin and I am amazed at how it works for me. I just wish I knew what it was "fixing", so I can eventually find a natural method to change what's broken.
Posted 11/16/2014 2:44 PM (GMT 0)
Mojave - great info! Thank you! So...how do we get our systems unstuck? How did they get stuck in the first place?
Posted 11/16/2014 4:23 PM (GMT 0)
Yes, this is why yoga helps so much (or you can call it gobbleygookstretchandbreath for any who find yoga a conflict with their religious beliefs. Or check out PraiseMoves).

I've come to a point in my practice where when I take a downward dog (or an upside down V shape) and I breathe fully before I am aware that I "need" to breathe fully. It's a habit a reflex and this is very comforting and relaxing and releasing.

Now, if I had more discipline with bedtimes and meditation, I'd like to reach the cellular level and "perhaps" reach the mechanisms there.
Posted 11/16/2014 9:38 PM (GMT 0)
Leapyear, we hear a lot about the burning feeling in the muscles. I have had it a few times but I get the feeling of water running down my leg or cold spots that feel like I sat in a puddle of water. Of course I'm perfectly dry. Go figure!

Delee, I'm so sorry for your loss. That is horrible and most definitely can affect fibro. I never suffered from fibro fog until my husband died suddenly. It kicked in big time and I truly thought I had Alzheimer's because I was forgetting whole conversations. Our bodies do react to shock...even healthy people...so this should explain a lot to what is going on with you. But we can heal, too! Stick with us and you will get a lot of help.

I suffered from anxiety when I was young and of course was given Valium. I took it for a year and it was changing my personality. I decided no more Valium, used deep breathing exercises breathing into cupped hands if I started to hyperventilate, and used Lamaze breathing also. I also used the scripture that I have in my signature. Prayer, which is like meditation to others, helps me a lot Once I realized that anxiety was fear I could kick it to the curb.

It does try to raise it's ugly head from time to time but I recognize it now and don't think I'm dying. I keep a positive attitude, start focusing on something else, and it leaves. With anxiety pretty much gone, that reduces stress which, in turn, helps reduce pain.

Sherrine
Posted 11/17/2014 12:30 AM (GMT 0)
thank you all for such wonderful replies...i guess i worry a lot because the burning in my arms is always there...always...it doesn't go away?
Posted 11/17/2014 4:03 AM (GMT 0)
Soon it will become background noise and you won't notice it unless you focus on it.
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