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I think I have fibromyalgia need opinions & help.

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Fibromyalgia
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Posted 11/15/2014 5:37 PM (GMT 0)


Ever since my hysterectomy in 2012 everything seemed to fall apart which lead me to more drs, xrays, mris, & lots and lots of blood work. So far I have degenerative disc disease, 2 slipped disc, faucet, sciatica, arthritis in my back, hips & right hand, my right hand is also flattening out. Mental wise I suffer with social anxiety and server panic attacks, depression, and a mood disorder which got worse after my hysterectomy, all blood work has only showed I have vitamin D deficiency and now on 50,000 units of V-D and is back up, I have 4 different types of back injection which none help at all, my pain medicine really don't help & have always had trouble controlling my pain. After all my surgeries I was in recovery to long because they couldn't control the pain, I was giving so nuch pain medicine that it'd knock a bear out, they had to get approval to put something trough my iv and it barley helped and that was before I started talking pain meds on.a daily base. I live in a fog, I am super forgetful like I can't remember Anything people tell me, headache every day, sensitive to light which lead to an mri of my brain and there is nothing there. So im back where I started. I have pain everyday some days are worse then others and it's a fight to even get out of bed, if I didn't have kids I wouldn't get out of bed.

I think I might have fibromyalgia, i've done research, but I can't seem to convince my doctor's there is something more wrong I am 29 I shouldn't feel this way. So here I am trying to get others opinions on what they think & how can I get my doctor's to do more to get to the bottom of it?
Posted 11/15/2014 7:01 PM (GMT 0)
Hi, Jessica, and welcome! Pain in all four quadrants of the body and also cognitive memory problems (fog) are two main symptoms of fibromyalgia so it's possible this is what is happening. If you haven't seen a rheumatologist, try to find a good board certified rheumatologist who treats fibro patients. All doctors should but there are still some that are still in the Dark Ages when it comes to this illness. They need to rule out other illnesses like Lyme disease and lupus because these have many of the same symptoms as fibro but have a different treatment. There isn't a good test for fibro so that's why they have to rule the others out.

It is important to keep moving with fibro. IF you sit or lay too much you will be stiff as a board and have more pain. I walk daily as a gentle form of exercise plus I take care of my home. All this counts as exercise. I'm sure your children keep you busy too but be sure to keep moving.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer, Robaxin, to help control my pain and fatigue. I also pace myself when doing things. All of the above have helped me quite a bit with this illness.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. There are links about the supplements I mentioned and how they work in the body. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 11/17/2014 4:42 AM (GMT 0)
Thank you :) I feel crazy, always pushing my doctor's to test or find out things, or maybe they'll think i'm crazy lol!


I definitely agree with keep moving thing, mornings are the worst for me,.I feel like a old person when I get out of bed, everything hurts & the stiffness is so bad I can barley stand up. After sitting and trying to stand my legs hurt so bad I can barley get up It's just so depressing to feels this way at 29.
Posted 11/17/2014 6:24 AM (GMT 0)
Jessica,

No, you're not crazy....you just feel bad. Not the same thing! Don't let anyone tell you it's all in your head. You know the difference. Maybe you need to find a new PCP.

I was just about your age when Fibro started to get its hooks into me...it took a few years to find an open-minded doctor, who diagnosed me. I feel very lucky to be his patient.

Whether it turns out that you have Fibro or not, you definitely have a lot on your plate. We are here to talk with....we understand what it's like to suffer from a barrage of symptoms, often with very little explanation. It's hard.

I feel just like you described in the morning. It is depressing.....but thankfully, it passes. Once I really get moving, I feel much better.

I hope you'll keep posting. We really do care!

Debbie
Posted 11/17/2014 6:25 AM (GMT 0)
This disease can make us a little crazy at times...thats true for all of us...our east coast is stormy right now...so everything is tight and achy even tho i did stretching and strengthening exercises today...

Have you been diagnosed with fibro ? Or rather feel that you have it?

My doctor has sent me for therapy at times, a pain specialist, although he just wanted to write scripts and i cannot take heavy meds.

They are right about keep moving...it does help...i was stuck in today and just made myself get up and move around taking care of things around the house, to lessen the stiffness

One thing that lessens my back pain is heat and also soothanol x2 , but not at the same time.most of the topicals cannot be used within a half hour of heat
Posted 11/17/2014 7:22 AM (GMT 0)
Welcome to the forum! You just might have fibro. I was in your shape a few years ago suffering with severe pain. I was under lots of narcotics only to be in a viscious cycle that I couldn't seem to get out of. All I know is my Dr. Listed all my symptoms which was about your length or more. I just couldn't understand why my body was falling apart. So I got bored and desperate one day I looked on line for answers to all my symptoms. I found this forum which gave me so much hope in finding my answer to my symptoms. I was actually happy but frustrated that no Dr. brought fibro to my attention.

I finally got the diagnoses of fibro. It was a relief to know I wasn't crazy! As I educated myself to fibro I could see myself on each page. It was like finding the missing puzzle all these years. Why I tell you this because I believe you might be in the same boat I was. I hope you seek a rheumatologist that will give you a proper diagnoses. Then you can began your treatment.

You will learn more here then you will learn at your Dr's office. Please let us know how things are going. Feel free to ask questions. I am finally doing well with the help of others on this forum. I got off of my hard core narcotics and take synethic opiate now. I hope we see you around more often
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